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if u need triggers tagged send me an ask. i won't post it publicly unless you specify otherwise i'll just add it to the list!

i currently tag for: spiders, vomit, gore/blood, and flashing lights

#intro post #pinned post

mckat-sims

Friendly PSA right now: despite what well-meaning family and friends might say, people with autoimmune diseases like lupus, mctd, uctd and others SHOULD NOT take anything that stimulates the immune system. So no echinacea, elderberry, garlic, garlic supplements, melatonin or anything that "boosts" or "stimulates" or "activates" the immune system without consulting with a doc. Yes, melatonin too.

For a lot of us, it's like adding gas to a flame. It'd be like recommending someone with an out of control heart rate to drink lots of espresso to make them feel better. Generally considered to be a bad idea, and can trigger additional inflammation and make us very sick.

So don't take them unless you are cleared to if you are autoimmune, and don't recommend them to folks with autoimmune disease you know. Please please don't. You could be doing way more harm than good.

onthelearningtongue

denial

cowsabungus

A guide to designing wheelchair using characters!

I hope this helps anyone who's trying to design their oc using a wheelchair, it's not a complete guide but I tried my best! deffo do more research if you're writing them as a character

gokbukethings

@a-captions-blog

a-captions-blog

[Art description: Several panels titled, ‘A Guide to Visually Designing Wheelchair Using Characters / (From a Wheelchair User)’ The title panel shows five boxes with red X marks drawn over them and one with a green checkmark. The five X boxes show a person in various inaccurate wheelchair positions, including lying on the floor, sitting with their head sticking out horizontally, and floating upside down above the chair. The subsequent panels have the watermark CowsABunges and are as follows:

1. Standard Chairs: Standard chairs are easy to obtain, cheaper chairs which come in standard sizes, so usually don’t perfectly fit the user. Consider how your character might customise their wheelchair. These chairs are usually dark colours, so think about easy personalisations such as stickers, and spoke skins. [Line drawing of a standard chair with blue text labelling it as a ‘transit chair’ and saying, ‘someone else would push this.’ Separate text emphasises the high handles of the chair.] [Coloured drawing showing a dark-skinned person sitting in the chair, with text that says, ‘Self Propel: This chair can be moved independently, but is often bulky and therefore hard to move.’] [Coloured drawing of one edge of the chair, which has a sticker that says, ‘Cripple punk’ as well as a strawberry sticker and a heart sticker, with descriptive text that says, ‘Wheelchairs can match your OC’s vibe!’]

2. Some people need more support in a standard chair. Some users need extras on their chairs to support them, such as head rests, and belts. Some users may use ‘tilt in space’ chairs. This is all dependent on factors such as core strength, and seating needs, so consider how your character is effected by their condition when deciding the right chair for them. [Drawing of a light-skinned person in a standard chair with a thick cushion and a head rest, which has been labelled in purple.] Foot propelling: Some users use their feet or toes to help propel themselves, and accomadate this by removing the footplate on their chairs. [Line drawing showing a person from the waist down in their chair. Text has been drawn to label the belt tightened across their thighs and to show that the foot plates have been removed.]

3. Active chairs: Active lightweight wheelchairs are bespoke chairs made to allow the user to propel themselves with as much independence as possible. Due to being totally customised to the user, they are expensive and less accessible than standard chairs. [Coloured drawing of a light-skinned person making a peace sign while sitting in a purple active chair. The chair has a noticeably lower back, sides, and handles than the standard chair.] Gloves: Wheelchair gloves are like marmite: some people love them, some hate them. [Three drawings of hands showing different types of gloves. One covers the thumb and leaves the other four fingers exposed, one covers the entire hand, and the last leaves all the fingertips exposed.] Wheels: There are also different types of wheels for chairs, with different price points and different qualities that people may need or want. [Drawing of two different types of wheels. One has a white rim and three wavy spokes, and the other has a black rim and many straight spokes.]

4. Standard Electric: Standard electric chairs are power chairs that come in preset sizes, so they might not be a perfect fit, but can be less expensive than active chairs, and easier for the user to be independent than a standard manual chair. There are many different variations of standard electric chairs, to fit different needs. [Coloured drawing showing a medium-skinned person in a pale orange headscarf in profile as they sit in a standard electric chair.] Chairs can come in different colours, with different levels of portability, and postural support. Like with all chairs, users can be fulltime, or ambulatory (part time). [Line drawing of a standard electric chair, which has a cushioned seat and back mounted on a base with three sets of wheels and a large flat foot plate.]

5. Bespoke Powerchairs: Similar to self propel wheelchairs, electric/power chairs can be made to the exact measurements to the user, with elements added to aid posture and stability of needed. These chairs tend to be expensive. [Line drawing of a bespoke powerchair. The back and seat have been customised, and the base is slightly smaller with a different foot plate.] Joysticks: Joysticks used to control the chair, can be customised to the style and needs of the user. [Two drawings showing a wide joystick with ‘wings’ on the edges and another that is a round knob on a stick.] [Coloured drawing of a light-skinned person sitting in a bespoke powerchair, shown from the front. Text highlights the arm rests and custom colour, a dark blue.]

6. Ambulatory users: Out of the 1.2 million wheelchair users in the UK, a third are ambulatory users, meaning they are able to walk to some degree/under certain circumstances. It’s totally possible for your character to be a part time wheelchair user, and vary which mobility aids are used. [Three coloured drawings of a medium-skinned person whose right leg is amputated above the knee. They use a red active chair, a pair of crutches, and a prosthetic.]

7. Summary: This isn’t a totally comprehensive guide and there are definitely facts I’ve forgotten. This can be a start for those totally clueless on designing wheelchair users. Research is the best way forward if you have bits you have no idea about. Wheelchair users ‘experiences are the best research! [Line art of an active chair.] However: don’t just go asking wheelchair users and disabled people about your characters or invasive questions for your research. They aren’t here just to give you information. There are loads of already existing information from wheelchair users online. [Line art of a person in sunglasses finger-gunning at the camera.] \End descriptions]

[Plain text: A guide to designing wheelchair using characters! \End PT]

strangehorse

Entirely genuine question but could you explain some more what the process of recovering from OCD involves? The more i hear about it the more i think i am also idk prone to it ? Have some elements? But the recovery also sounds like how i decided to deal with it so maybe i just got really lucky?

I wrote a really long reply and then it got eaten by the internet and now I am sad. I am writing it again, though, because of who I am as a person.

DISCLAIMER: I am not a medical professional. My OCD has been subclinical for most of my life. You should absolutely question what I say and do your own research.

OCD often requires different treatment to other mental health issues, because it is very easy to treat it incorrectly and make things much worse. This is because many people do not understand what OCD actually is.

OCD is based on obsessions- intrusive, upsetting, distressing thoughts- and compulsions- actions taken to reduce that distress. To a certain extent, anything you to do to deal with the distress of an obsession can become a compulsion, and therefore part of the disorder.

Asking a friend for reassurance or support can be a compulsion, and make OCD worse.

Watching a specific show or playing a specific game to calm down can be a compulsion, and make OCD worse.

Saying "That's OCD, not me" or "Stop" in response to intrusive thoughts can be a compulsion, and make OCD worse.

Arguing with the intrusive thoughts using facts and logic can be a compulsion, and make OCD worse.

Therefore, the best treatment we have for OCD involves exposing the person to triggers for their obsessive thoughts, and then not letting them engage in any compulsions. This is because, with enough time, their level of distress will go down- but the person never normally gets there, because they 'bail out' early using a coping mechanism/ compulsion, which reinforces to the brain 'ah, so that WAS dangerous! well done on getting out! I'll keep being scared of this!'

This process of experiencing distress without performing compulsions or running away/ avoiding it is known as exposure and response prevention therapy, or ERP. It's part of CBT, and it's used for phobias as well as OCD, because they tend to have a lot in common.

You can probably imagine a fairly basic ERP protocol for, say, a fear of germs-

Obsessive thought: If I touch a door handle I will get sick from the germs Compulsion: Washing hands after touching door handle ERP action: Touch door handle, do not wash hands

But you can get obsessive thoughts about anything. What if, say, your obsessive fear revolves around you killing another person? Your compulsions might involve avoiding being near other people, or avoiding sharp objects, but with this type of OCD the majority of the compulsions are often internal, and take the form of excessive rumination. This is sometimes known as purely obsessional ('Pure O') OCD, or primarily cognitive OCD. So you might get someone who is terrified that they are going to kill someone, and spends a great deal of time worrying about that, and is very distressed about the whole thing. The rumination is the compulsion.

How can we expose them to that obsessive thought for the purposes of ERP? You can't have them actually kill someone, because ethics boards never let us have any fun.

But you can have them, say, write a script where they describe killing someone, and how it would feel, and the consequences, and then make them read it 20+ times a day and feel the distress of it each time, while not engaging in any compulsions.

This is imaginal exposure! You can read more about it here, including some sample scripts/ stories. It might feel insane, but it seems to actually work very well. With time, the stories stop feeling so distressing, and start feeling quite boring. It runs on the OCD-countering logic of 'if it scares you, you should not run'. From the source linked above:

If your obsessions are anything like those described in these stories, you may be triggered by them. That’s ok. Life is full of things we don’t like, and avoiding those things doesn’t make them go away. In fact, for those suffering with OCD and anxiety, avoidance of fear is almost always a far bigger problem than what triggers the fear in the first place. So if your anxiety gets triggered by reading either of these stories, I encourage you to view that as an indication that this is exactly the type of story you need to write for your own recovery.

ERP seems to be the best treatment we have for OCD. It is, however, often very difficult and unpleasant, so it has a pretty high drop-out rate. I have not done ERP myself, largely because these days my OCD lies largely dormant, only occasionally rearing up to suggest that It's Very Important We Spend Nine Hours Ruminating On This One Very Important Topic while wearing a fake mustache and hat in the hopes I don't realise it's OCD.

There are other therapies used for OCD too. I personally was helped a great deal by ACT, which uses a different philosophy to arrive at very similar conclusions. ACT is all about deciding what matters to you, and acting in a way that takes you towards those values, regardless of what your thoughts/ feelings might do about that. A lot of ACT focuses on accepting uncertainty, so the only really acceptable response to an OCD thought like 'Am I responsible for 9/11?' is 'Maybe! Maybe not!'

Am I secretly a murder-desiring psychopath? Maybe, maybe not.

Am I secretly a- look, maybe, maybe not, but right now we need to do the dishes, okay?

(This is, additionally, why so much online discourse is fucking catnip for OCD, and so antithetical to healing. If you find yourself being pulled into thought loops and spirals where it feels very important that you really Unpack Some Shit, and you really have to investigate whether or not you harbour Secret Problematic Beliefs, and perhaps you should cut out certain parts of your life in order to become more morally Pure because what if what if what if- I recommend taking a very strong step back, and going on a walk, and maybe doing some reading on scrupulosity themes in OCD.)

So, there you have it. It's obviously all a lot more complicated than I've made it out to be here, but I do find it darkly funny that the treatment for OCD is basically "you need to feel bad and not do anything about it until, eventually, you stop feeling so bad".

Of course, I might have misrepresented everything here, because I never had anything near OCD, because I actually just a bad person, and I'm a fraud and a phony for claiming to know anything at all about OCD.

Is that true?

Maybe! Maybe not.

STILL ALIVE NOT DEAD just bad at being active on multiple socials at once 😭😭😭

#adhd hnghhhh #“haven't seen tumblr in awhile. can't believe it stopped existing”

boxenstopp

an ode to my online friends (i love you)

saveaboudfamily

An “Israeli” soldier posted a video of a drone he was steering toward a Palestinian family’s home in Gaza, laughing as he terrified civilians like it was a game. No one knows what happened to that family.

saveaboudfamily

My mother called me moments ago, crying. She told me they are soaked from the rain, and the children slept in their wet clothes after their tent collapsed. My heart is breaking for my family. Please, donate if you can and speak about us.

Chuffed – PayPal – Verified

red-garden

As the weather gets colder Aboud and his family are at an even higher risk for cold and fever. Donate anything you can, they need shelter, warm clothing, food, and medical supplies. As hopeless as it seems, the fight must not stop, humanity must not be abandoned.

joeyclaire

please share and donate!!

unfortunate that there's very anti-low empathy vibes in this line :/ but similarly to how raze's tinnitus like is probably supposed to be a joke/not to be taken seriously as a disability hc, i feel like vyse is also low empathy autistic

i feel like it tracks with her categorization. she was probably very good at masking and still is, but mostly uses it to unnerve the others.

i have some thoughts but none of them are coming out right oof. thoughts, though?

so i have been saving this ask for AWHILE because i had planned to write an infodump but the thing is that there is nothing i could possibly say to sum up my thoughts quite as much as this textpost does

like yeah that's it that's the one actually

#(i have a low empathy quotient and finding this out was a shock to me #i identified as hyperempathetic for years because i did not know what the word empathy means)#anyways vyse and neon are low empathy autistic. to me #waylay and killjoy are hyperempathy autistic #valorambling #ask tag

ever since i saw this i've been unable to shake "MEAN TO ME" from my vocabulary

(also is this form of alt text better for you? the whole END ID thing, or no?)

oh no this is gonna be scrunt ass milk the sequel for me i fear it's FRYING ME either way is equally excellent for the alt text!! i personally don't have a preference and it was so kind of u to ask, thank you!

#twitter went down right as i was trying to reply to your tweet and i just sat there in stunned silence for about thirty seconds #valorambling #ask tag #also i feel like raze and skye have the FUNNIEST interactions bc they're both generally cheerful but in such opposite directions

to my wheelchair users/bedbound people:

i got my first bedsore after a year of being mostly bedbound and i'm curious what y'all do to help that? there's generic advice online but most of it somehow manages to never apply to me

#also how do you get over the sheer humiliation of having your first bedsore but that's an unrelated question lmao #mecfs #bed bound #wheelchair user #disability

one of my wife's coworkers has heard so much abt me from my wife that they want to be friends. which first of all that's adorable on my wife's part for talking abt me that much. but secondly, i'm still pretty much housebound despite some significant improvement in my symptoms recently, and the coworker in question is not only coming over to my house tomorrow afternoon but is also coming with brunch because they figured it's hard for me to prepare food during the day when my wife is gone

#having someone immediately consider those things was. astounding #usually it's this long pain in the ass learning curve #of like hearing the same 5 offensive things and then patiently gentle parenting grown ass adults out of their ableism #so this is a very refreshing change of pace!#like for context my last attempt at new friends ended with one of them calling me a cripple as a joke #to my FACE. in my LIVING ROOM #audacious behavior from someone who doesn't know about the Wheelchair Sword

cigarettefurby

i am so bad at reading tone that i just blocked an entire comment section on twitter bc i thought they were flaming this woman for getting a doctorate and they were actually showing support unironically

cigarettefurby

ahat (assigned hostile at twitter)