Since I took Ciproflaxacin @ciproflox - Tumblr Blog

January 20, 2015 3:46AM

I consider myself fortunate. I feel I'm back to normal for the most part. I'll forever have a nagging thought whenever I pick something off of the ground, step on a treadmill or take any prescription. I don't feel 100%, but I'm at least 90% there. I don't know how much of that last ten I will get but I'm thankful every day I got anything at all. It took a long time to recover this much.

I'd never had a generalized uneasiness around doctors before. Now a thought that crosses my mind is "Are you going to hurt me?"

No more neuropathies. No excruciating knee pain for months. No painful tingling in the arms. No more feelings of depersonalization, brain fog, despair. My joints don't ache as terribly when it rains.

I ran 4 miles on Thanksgiving. I'm working part time and going to classes.

I don't heal as quickly. My joints feel stiffer, less elastic and flexible. I feel older.

May 16, 2014 3:40pm

I'm sick again. It started a few days ago with a burning sore throat. Then as the sore throat went away it became a drippy nose with sneezing and coughing. My right lymph node under the edge of my jaw is swollen so I assume it's bacterial.

My knees and joints are no better or worse. I wish they wouldn't creak and click all the time. The right knee has never stopped feeling a bit loose or weak.

I am taking dayquil and niquil which has acetaminophen which is good because I don't want to take ibuprofen.

May 3, 2013. 7:48pm

Went hiking at Great Falls this morning. Had a lovely time. Weather was great. Wore a knee brace on my right knee and I was careful not to overexert myself or fall. I'm so excited not to be in any pain. At least for now. I'm hoping so hard that tomorrow is pain free as well.

May 2, 2014. 7:18am

I took magnesium and a bunch of other vitamins yesterday but the muscle twitches have been driving me mad lately. They are incessant and sometimes even a muscle in my face quivers in the most horrible way. The arch of my foot, my buttocks, even the inside of my thigh. Muscles I didn't even know I had are vibrating like a cellphone alert for anywhere from a split second to several seconds. A single stray muscle twitch happened maybe at most a few times a week before. The way that muscle twitches are happening now has been ongoing since cipro. Sometimes more and sometimes less. Right now it's maddening. It's a lot of things. Weird. Unpleasant. Alarming even. At least I'm not in excruciating pain right now. I wish I could concentrate on my book.

May 1, 2014. 5:01am

Sleep has been off since last weekend when my knee was hurting. In the car it was so bad I was crying, though I don't like to admit it. Extra strength acetaminophen made the pain subside when I got home. It doesn't help with anything else though like tension or weakness. Or clicking and creaking. I guess I should be glad that it does anything at all. It's Thursday morning now. I haven't had to take Tylenol again, even though there has been pain. I don't want to take any more than i absolutely need to. I also don't want to be unaware of any damage that would be covered up by pain medication. I've spent most of my time since then in bed reading. No physical activity at all really. So unignorable pain has gone away but my knees still don't feel right. I am so conscious of them all the time because even the slightest pressure or jolt can make them very uncomfortable or painful. Like right now even. It's almost impossible to get comfortable. I got a message from the doctor that I went to a while ago. All the test came back normal she says. Blood tests and tests for h. Pylori bacteria. But what exactly did the blood test results show? I may have to make another appointment to get all the answers I want but I don't look forward to the doctor that gave me a prescription for prednisone when I explicitly told her that I've read that NSAIDs and corticosteroids should be avoided in people with bad reactions to cipro. Shows how much she was listening.

April 27, 2014. 7:26pm

Last night I had a sharp pain in my right knee again. The only activity I'd done was some house cleaning. I wasn't kneeling for more than ten minutes. This morning my knee bothered me. The immediate area around my knee that connects to my thigh is painful. I was going to go to the gym with Jon today but I decided against it. I'm glad I didn't go because my knee is getting more painful. We drove to the strip mall for some food and it hurts to walk. Getting myself up onto the chair was painful. Sitting in the passenger seat right now is painful. We're going home soon and I'm going to take some Tylenol. I normally don't take pain medication for aches and sores. I'm used to soreness and bruising from rugby and wrestling. This is something else though and it's wearing down on me mentally and emotionally. I'm going about my day as best I can. Just can't help but wonder if this is ever going away.

April 25, 2014 5:00pm

Knee and joint pain have subsided but that sore throat/cold I caught has not. It's been more than a week and I still have the cough. At least the burning painful sore throat is gone.

I went to the gym with my friend earlier this week. It was a light work out with easy weights. After stretching and floor ab exercises it was upper body with skull crushers (10lbs), curls, rows, bench.

Weak and out of shape but I felt great afterwards. My abs and bicep/tricep area is still sore. I kept in mind not to overexert myself. Hopefully my body will quickly return to what I once was. I still get irritating muscle twitches and my knee still clicks but I can walk without limping a little.

April 17, 2014. 7:54pm

My right knee does not seem to be improving. I have been largely inactive today because I am afraid I will do more damage by overexerting it. It clicks in weird ways. It feels stiff. I get slight pain if I sit, move or walk the wrong way. This is putting more than a damper on my mood.

I haven't done any physical activity lately. I rode my bike leisurely last weekend and I felt fine then. I tried using my fluoridated toothpaste again, but that would be ridiculous if that made my knee dysfunctional.

Was contemplating going to jiu jitsu classes earlier this week. Now I'm feeling depressed again. I posted a facebook status saying I wasn't going to make it, someone commented 'psh excuses.' I don't know what to say to people.

April 16, 2014. 2:17pm

Yesterday it rained all day and my knees ached really badly. Before I had been gradually feeling better;no new weird symptoms and better energy level. I haven't been taking magnesium supplements as much because they give me the runs. Maybe I'll have to take them anyway along with the joint supplements I bought.

I was thinking about going to jiu jitsu class but thought better of it yesterday. My right knee hurts more than my left, though both of them have me concerned.

Coincidentally I have caught what seems to be a cold from a friend. I have a sore throat. Yesterday it was accompanied by a slight headache.

I woke up around noon. Today's weather is beautiful. I want to go outside and do something but my knees are nagging at me.

April 11, 2014. 12:45pm

Went to a doctor yesterday. It was somewhat disappointing. The doctor listened somewhat but I didn't particularly like that visit. She prescribed prednisone and lyrica awfully quickly after telling her about the weird symptoms I was having. I'm not taking either. I don't feel comfortable with her judgment. She said she has seen these reactions and said the joint stiffness and pain cleared up completely in her other patients. I asked specifically about people who were younger and athletic but she only talked about her older patients.

Especially at my mother's disparaging comments about me reading things on the internet, the doctor assured me that I would be fine.

I told her about the two black box warnings and she said that's just because they don't know why the drug causes specific reactions as if that's supposed to make it better. She made comments about how it might not even exist, these bad reactions.

I told her I felt nausea when I tried to eat a lot of foods that I normally ate. She wanted to do tests for gut bacteria.

Anyway, a nice lady took my blood and had me blow into a small sterile bag. She also took a urine sample.

I wonder what will come of it.

MitoAction welcomes Dr. James Dykens to talk about his perspective on the relationship of mitochondrial function to overall health and discusses the potential effects of drug-induced mitochondrial toxicity.

April 8, 2014. 8:16am.

Poor Jon is asleep right now. My disastrous sleep schedule is rubbing off on him. In the early hours of the morning I woke up hungry and lethargic. I drove us to McD's and I had a quarter pounder with cheese, an order of fries and a cup of sweet tea. The first half of it was good. After that, each bite was like climbing a steep set of stairs. I managed the last bites with some ketchup which thankfully still tastes as good as I remember. Jon helped me with my fries.

My hands were really cold and wouldn't warm up. I wedged them between my posterior and the heated drivers seat. We talked about how fluroquinolone toxicity syndrome causes problems with mitochondria. I relayed that mitochondria have a lot in common with bacteria and can be considered to be in a fixed symbiotic relationship with animal cells. All genetic material is contained in the nucleus of a cell, all except mitochondrial DNA, which keeps it own DNA.

Another fun fact: Mitochondria is inherited from the female. In humans at least.

So this morning with some spare time, I looked up the Wikipedia article for mitochondrial disease and was met with a list of some truly awfully similar symptoms. There is a fascinating and specific list of mitochondrial myopathies.

"Mitochondrial DNA mutations occur frequently, due to the lack of the error checking capability that nuclear DNA has (see Mutation rate). This means that mitochondrial DNA disorders may occur spontaneously and relatively often. Defects in enzymes that control mitochondrial DNA replication (all of which are encoded for by genes in the nuclear DNA) may also cause mitochondrial DNA mutations."

Membrane penetrating antioxidants seem to be the most promising treatment. Vitamins are suggested but does not have evidence to prove it's effectiveness. Pyruvate or pyruvic acid has been proposed.

April 7, 2014. 1:27pm

Didn't sleep last night. My sleep schedule is very off schedule as has been for a while. It's difficult to sleep the way my body has been worrying me. My hands and feet are freezing. Even my elbows get cold now. I feel like I'm becoming a corpse. I have a doctors appointment scheduled with my family doctor on Thursday April 10, 2014. I felt very positive and happy go lucky yesterday but I got confirmation of the appointment this morning and I feel a lot of anxiety about it. My mother will be there. I tried to tell her about what I was going through last week but it was just upsetting. Communication is a weak point between us and its very difficult to make sure she understands what I'm saying. I understand that English is her second language but because of the responses she gives to me, I can't always tell if she misunderstood me or if she did understand and she just wants to talk over me. I haven't even gotten to the anxiety I have about how the doctor will react. Best case scenario she has a magical cure that no one else knew about, I mean, she believes me entirely and orders a bunch of tests to check various organs and body parts for functionality. Worst case scenario she doesn't even hear a word I say and listens to my mother talk about a completely different topic and I have to sit there respectfully while my mother makes disparaging comments about me and expresses her own concerns about our family's weak bladder history. I know my mother will probably not act that way and maybe even leave the room for a while so I can talk to the doctor in private but I've had some bad experiences. Ones I don't realize I'm not completely over until they have me suffocating in a steel grip of panic. I won't feel completely safe until two or three years have passed without a worsening or addition of symptoms. Oh no. Another barrages of attention demanding muscle spasms. My stomach is making noises but I don't feel hungry at all. Besides the pain throughout my legs, general weakness, anosmia, insomnia, cold hands and feet, dry mouth, and clicking joints, I can tell there is something wrong with me. I'm not hungry when I should be. In addition to the not so gross sounding symptoms, the quality control is off on my colon. That's not surprising, as that's usually the only one lingering side effect I get from antibiotics. The function that is abnormal is the urinating one. I feel that although I drink more water than I used to, I don't urinate more. Maybe I'm just imagining it. I've got my fingers crossed for not renal failure.

April 5, 2014. 3:37am

I had some tempura chicken earlier. Not as much as I usually have but I enjoyed it. I'm happy though, I installed my new hard drive and did more geeky things I enjoy today.

Feeling weak and joints are still bad and creaky. Some twitches in my face, which is alarming.

My buddy gave me this. It tastes like pickle juice. I like it.

April 4, 2014 6:43pm

I added a scoop of whey protein powder to some yogurt and a squished banana. It was pretty good until I got to the second half. I felt full already. Weird. I looked at the ingredients again and made an interesting realization. Soy lecithin. Soy has been known to made symptoms worse. Uh oh.

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Since I took Ciproflaxacin