CONFESSIONS OF A SPOONIE

I write a funny blog about some not so funny topics, like having EDS, and procrastinating. BLOG https://www.confessionsofaspoonie.com/ TWITTER https://twitter.com/reallytierd INSTAGRAM https://www.instagram.com/_confessions_of_a_spoonie_/

[gastroparesisthings]

me: *doesn’t eat all day bc nauseous*

stomach: *is hungry*

heat: *is dizzy and hurts*

me: *eats ONE SPOONFUL of jello*

stomach: *all hell breaks loose because FOREIGN OBJECT*

[impotsiblelife]

My heart goes out to you today if you have a condition that limits what you can eat. I hope that there’s at least one dish on your holiday table that you can enjoy without symptoms.  

[jessthecrohnie-blog]

How It Feels When Your Body Needs A Medication, But Said Medication Brings Side Effects

[chronic-yisus]

Me: *eats something*

Stomach: *makes weird noises*

Me: c'mon little bitch you can handle it

[cutlerydeficient]

Me: *takes small gulp of water to swallow my pills*

Stomach: WaHt aRe YoU doiNG??!! *slams panic button*

Me: *suddenly nausea* crap

[perimanda]

When the nausea and pain hits you and you automatically go into antisocial mode

[impotsiblelife]

My daily dilemma: am I having a reaction to something I ate, or is my stomach just freaking out for no reason?

[insicknessinhealth]

This needs to be said

I know myself and other sick/disabled people included get a lot of mistreatment from healthy people. These “normal” people seem to assume we are sick or disabled because we don’t take care of ourselves or try hard enough to get better. We hear it when they suggest basic shit like, try yoga, eat more kale, try vitamin x, go to bed earlier, just get out of the house more, just take a tylenol, exercise more, try to be more positive ect.

Here is the truth: we take great care if ourselves. If there was an award for attempting to be as healthy as possible we would win it. 50-60% of our day is spent taking care of ourselves (some people spend even more time if they are really sick). Sometimes we spend so much time trying to be healthy, we have no energy for anything else.

All it takes for a healthy person to get sick or disabled permanently is a change in DNA sequence, a cell mutation, sudden neurological disfunction, an introduction to a neurotoxin, sudden immune system dysfunction, introduction to a bacteria, a cold that remains permanently stagnant in the body, a freak accident. Our lives can never be completely controlled. Normal people need to understand they are at risk for these horrible events also. Regardless of how hard they try to prevent these things, shit like this happens everyday and it cannot be controlled or “fought”. We need to understand this.

[chronicallyrebellious]

Me trying to control the symptoms of my multiple chronic illnesses.

[aubreyslymejourney-blog]

When you are nauseous but need to eat to take your meds

[pots-itvelychronic]

attention

please reblog this if any of the following things apply to you/your blog, for i would like to follow you and most likely be your friend, thank you have a nice day

• disabilities -especially eds and pots • any positive posts or encouragement • personal posts • aesthetics (nature or otherwise) • actresses/fandoms • support blogs

thats all i can think of but definitely reblog if you are a spoonie, im not following nearly enough people!!!

[myjourneythroughlyme]

Myth- Chronic illnesses can be cured with diet and exercise.

[survivaltillacure]

No sleep for the chronically ill

[gymnastics-mania]

Favorite hobbies include: being the youngest person in the waiting room by at least 15 years.

[sunlight-and-sparrows-deactivat]

Chronically ill college student tips - part 1

1. Do NOT take 8ams. You’re not getting enough sleep as it is. 

2. Let your professors know if you can’t make it to class or have to extend a deadline. Your illness doesn’t define you, but if it’s hurting your grades, let them know! They’ll be more understanding if you explain why you can’t do the thing.

3. Be careful how many spoons you use, especially on weekends. Some days you might be able to go party/hike/explore your city. But don’t overextend yourself or the next week is going to be less productive than Congress

4. Pick seats nearest the door. I know with large lecture halls this can be difficult but if you need to vomit/pass out/take meds you can duck out quickly instead of toppling over your classmates, screaming.

5. If they do dorm inspections, be honest about what your meds are and why you need them so your RA doesn’t report you for illegal drug stuff. 

You’ve got this! You’re strong and amazing.

[jessthecrohnie-blog]

Just because a medication, treatment, or mobility aid is helpful doesn’t mean you have to like it. It’s perfectly acceptable to be thankful, while being upset that your life is different than you imagined it would be.

[kaleighfratkins]

callout post

my gastrointestinal system:

doesn’t fucking work