A Big Thank You
Yesterday, my dear friend Bernadette Horton set up a Funding page to help with me getting my powered wheelchair (the picture above is me testing it out yesterday). Whilst I was not aware that she was going to do this, I am deeply grateful to her for this lovely gesture and for the work she's put in already. I feel extremely lucky to have a friend like Bernadette.
I’m aware that a couple of questions have already been put to Bernadette, and I wanted to answer them as best I could.
For those of you may be unaware, I have a number of conditions which affect my mobility.
I was born with Spastic Diplegia, a form of cerebral palsy which affects my lower legs, and basically means that the muscles are consistently tense and tight. I have had several operations since I was 3 years old, one both legs as well as both knees to correct an issue with my kneecaps dislocating. These have, sadly, been unsuccessful, and my right knee has dislocated twice in the last fortnight, and over 30 times since I was a teenager.
I also have Complex Regional Pain Syndrome (CRPS), an incurable form of chronic pain which started by affecting both my legs, but which is also affecting my left shoulder as well. It’s extremely painful on my worst days, and a constant distracting companion on it’s more restful times.
Lastly, I have rheumatoid arthritis in both knees, which adds to the issues above. These mean that every step I take can be excruciatingly painful, and leads to fatigue, nausea and, occasionally, depression and other side affects.
I have always been aware that my legs would worsen – I was told that as a child by a Consultant – but I have always been determined to work around any ‘limitations’ that my legs may cause. I am determined that nothing will stop the work I am determined to do, both locally and further afield, for residents who need help.
Some people have asked whether I can get assistance from my local wheelchair services, or from Access to Work. I will be speaking with the former tomorrow (Monday 22nd August) to discuss options. As for Access to Work, my employer, Kate Green, Member of Parliament for Stretford and Urmston, is in the process of speaking with them to see what is available. I have had some assistance from A2W previously – office furniture and other aids to help with my work – but it’s worth asking the question. I will keep you all up to date with any forthcoming info.
In the meantime, thank you all so very much for your amazing generosity. I’m truly humbled by the generosity already displayed from friends, colleagues and well wishers, and will do everything I can to repay your kind gestures. It means the world to me.
The GoGetFunding page can be found at:
https://gogetfunding.com/labour4wayne-waynes-powered-wheelchair-fund/.
If you have any questions please contact me on [email protected] or by visiting my Facebook page.












