Mike Driver
shark vs the universe
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Monterey Bay Aquarium
he wasn't even looking at me and he found me
Love Begins
RMH
KIROKAZE
Stranger Things
Xuebing Du
Three Goblin Art
Alisa U Zemlji Chuda
JBB: An Artblog!
d e v o n
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@dearablebodied-blog
Dear abled bodied people, Written by an alter, we have DID, we have depression, we have lots of other mental disorders you can’t see that holds us back. We (the alters) aren’t here so the host can force himself to work. His physical pain is too much. He gets ridiculed by how slow he walks so he doesn’t use a cane. Thanks for being inconsiderate jerks to those who have invisible illness.
6 months ago, I was diagnosed with multiple sclerosis; my neurologist said the "official test" came back negative.. So it's not been officially diagnosed to a type yet. But the last few weeks I've been having more problems with mobility, so I put some pretty green crutches on my christmas list and mentioned it in passing to my dad, who hasn't really been supportive of any diagnosis I've gotten. He bought them for me, and told me they're for when I get "worse". How do I tell him "worse" is now?
The best thing you can do in this situation is sit down and have an in depth conversation about your diagnosis, and what it means for you, both short and long term. He may not fully understand it all, or he may be closing himself off to accepting it because he’s scared for you. I have to imagine that, given that he even bought the crutches instead of disregarding the request, he knows on some level that this is real and not going away, but maybe he’s just not willing to accept that it could happen so quickly. He needs to know that it can and is.
People use wheelchairs for a lot of different reasons. Some people use wheelchairs because they are paralyzed and completely unable to walk. That is not the only reason people use wheelchairs, and...
People use wheelchairs for a lot of different reasons.
Some people use wheelchairs because they are paralyzed and completely unable to walk. That is not the only reason people use wheelchairs, and many wheelchair users have some ability to walk.
Here are some reasons some people who can walk use wheelchairs:
They can walk, but it’s very difficult and not an efficient way of getting around
Walking causes them severe pain
Walking is medically inadvisable because of the strain it would put on their heart
They have cognitive problems that make walking more difficult than wheeling
Falling causes them to break bones, and they are unsteady on their feet and fall easily
They can’t stand in place because they need to be moving to stay upright
They can walk some days but not others
If you see someone use a wheelchair sometimes and walk other times, don’t assume they don’t need their chair. If you see a wheelchair user stand up to reach something, don’t assume that they don’t need their chair.
People use wheelchairs for a lot of different reasons, and many people who can walk some absolutely depend on wheelchairs for mobility.
Disability is complicated, and personal. There are a lot of reasons that people use various types of adaptive equipment. (None of which are the business of strangers). Knowing one reason people use something doesn’t mean you know all the reasons, or that you are in a position to assume you know what’s going on with everyone you see using adaptive equipment.
tl;dr: Many wheelchair users can walk some. They still need their wheelchairs. Don’t assume that someone isn’t really disabled just because you see them walk or stand sometimes.
Dear able bodied people: Please, for the love of god, put flat platforms/breaks in long ramps. You try holding your bodyweight up for 10yards on an incline, with bad joints to boot!
Dear Able Bodied People
I have Ehlers Danlos Syndrome and while it’s not all entirely obvious, it has a huge impact on my daily life.
I was wondering if anyone out there experienced something with their hands like this? Lately I haven’t been able to use them well. (I have multiple disabilities). They are like closed shut and when opened they just go back to this position! Does anyone know what this could mean? If anybody has had this happen or could offer advice I’d appreciate it so much. Thank you.
Please help me find someone else with my rare conditon
My name is Valerie, I’m a teenager, and I’m chronically ill.
I’ve been sick for a decade now, and unfortunately, I tend to get all the rare and ~special~ disorders. Because of this, I currently have doctors in nine cities spanning across five states. I battle six chronic conditions, and balancing them is a daily struggle, but I’ve managed.
But my newest condition has turned my life upside down. It’s called Recurrent Subacute Thyroiditis (RSAT) and most doctors will never see a case of this in their lifetime. I luckily have found a doctor who has least seen a few cases of this before, but I am the youngest person she has ever seen with this condition.
RSAT is an inflammation of the thyroid that causes overactivity, leading to high heart rates, trouble breathing, low blood pressure, dizziness, chest pains, insomnia, fatigue, hair loss, and muscle weakness. The overactivity lasts for about 2-3 months, and then the thyroid flips to inactivity, leading to lethargy, extreme fatigue, depression, low body temperature, and slow heart rates. The inactivity lasts for 2-3 months as well, making this a 4-6 month condition. I am currently in the middle of my second episode, and my first episode was just two years ago.
I am terrified. This condition has caused me to be rushed to the ER twice. This condition has rendered me so dizzy and dropped my blood pressure so low that walking is a hazard and I am in a wheelchair. This condition has prevented me from attending school since the end of October. This condition can occur again, and there is no telling when or how often.
I’ve scoured the web, posted in countless Facebook groups, analyzed research, and even scheduled a conference call with doctors in another country to try to get some answers. Not only is there no information on it, but I can’t find anyone else with it (and due to HIPPA laws, my doctor is not allowed to connect me with the other cases she has seen). I have support from my friends and family, but they cannot even begin to understand what this is like.
I am alone in this right now, but I know the internet is a powerful place. I’ve seen other kids with rare conditions find support and/or answers, and I thought I might as well give it a shot. Please, please - even if you don’t have this condition, even if you don’t know me, please reblog this and spread this around. I just need to know that I’m not alone in this. Even finding one person who has this would make the world of a difference.
Thank you in advance. Those who know me best know I absolutely hate asking for help, but I can’t do this alone anymore.
I get knee discomfort so bad sometimes it causes me pain But no one will let me get a cane to help me walk on the days its /really/ bad Because supposedly its not bad enough to need a cane??? But sometimes I can't even use my leg its that bad
Do you know what causes the knee pain? I only ask because depending on the cause, there may be things better suited to helping relieve the pain, or help you with mobility.
Personally, I’m inclined to say that in cases like this it’s better to ignore what people are telling you and to go ahead and get the cane if you feel like it will help. A knee brace is another option to help provide support. You can get both of these items at a pharmacy, so you don’t need anyone’s approval to buy them.
The only person who knows if the pain is bad enough to require mobility aids is you. Don’t let anyone else try to dictate what you’re feeling or experiencing.
A 73-year-old Utah woman who raised 35 adopted children — 26 of whom had special needs — has said she did it to ensure they “felt loved”.
Hey makeup nerds, have we got a treat for you!
One of our Twitter followers pointed us towards a new product called The VampStamp, that’ll help all you shaky-handed folks out there do a winged eyeliner look without all that crying and gnashing of teeth.
This product is so new it hasn’t quite launched yet, but you can get in on the ground floor by joining their mailing list here!
Dos and don'ts on designing for accessibility
Karwai Pun, GOV.UK:
The dos and don’ts of designing for accessibility are general guidelines, best design practices for making services accessible in government. Currently, there are six different posters in the series that cater to users from these areas: low vision, D/deaf and hard of hearing, dyslexia, motor disabilities, users on the autistic spectrum and users of screen readers.
[…] Another aim of the posters is that they’re meant to be general guidance as opposed to being overly prescriptive. Using bright contrast was advised for some (such as those with low vision) although some users on the autistic spectrum would prefer differently. Where advice seems contradictory, it’s always worth testing your designs with users to find the right balance, making compromises that best suit the users’ needs.
[github]
Okay, so I just saw your (reblogged) article about when it's time to use mobility aids and what the pros and cons of each one are. What I'd like to know is how to go about obtaining one. Do you need a doctor's permission to use them? If so, how do you obtain said permission when you're young/the doc won't listen to your plea for help? If not, what's the best options for when you're broke? Advice?
There’s not really a specific answer I can give on this, because it depends on so many different factors. Where you live (globally) is a huge one, because some countries have government run programs specifically to aid the disabled in the provision of things like mobility aids. The kind of mobility aid you’re looking at is another factor, as is the type of disability/disabilities you have.
You don’t need a doctor’s permission to obtain or use mobility devices, but if you live in a country that does provide government assistance, you usually require doctors backing you up to obtain said assistance. Unfortunately, there are a lot of doctors out there who are either genuinely clueless about disability, or are apathetic and don’t provide the support we need. When that is the case, the only thing to do is find a doctor who will listen. It’s annoying and time consuming, but worth it in the end.
Generally speaking though, we’re pretty much on our own when it comes to the purchase of mobility aids. They certainly aren’t the cheapest things to buy, but depending on your choice of device there are places that will hire them out if you need a short term option while saving for your own. Alternatively if things gets desperate you can purchase things from Amazon, Ebay and other places online, at a greatly reduced rate. I will say though, be sure to check the item specifications for things like size, weight limits and the weight of the item itself.
Hi. I follow your Tumblr and really appreciate your support and encouragement.
I know that this isn’t really on topic, but please could you possibly signal boost this post/petition regarding appropriate disabled toilet facilities?
While many disabled restrooms are barely appropriate (I wrecked my knee seven months ago because the only bathroom wasn’t big enough to allow me to transfer safely from my wheelchair) it is particularly relevant for those who are severely disabled and need a hoist and a changing bench for older children and adults. Nobody should be forced to lie on a bathroom floor or change in the back of their vehicle in a public space, yet this happens all the time.
The petition is aimed at the UK government and building regulations for large public facilities, but anyone can sign around the world, and any signal boost will obviously help.
My post and the link is at http://lokiscurvylover.tumblr.com/post/ 153390769077/
Thank you in advance for reading this.
A post explaining the pro's and con's of using mobility aids, when any how to start using mobility aids. Written from a dual perspective.
This is a really detailed consideration of the pros and cons of using a crutch or wheelchair—definitely a good resource for anyone considering a mobility aid.
Additionally, we always like to recommend this great article, When Is It Time To Upgrade? You should find it quite complementary to the one linked above!
And finally, we’d like to include a reminder that if you’re thinking a mobility aid might be useful… well, that’s something to listen to!
I’m really getting sick of my family and friends not supporting my decision to A.) Get a service dog to help aid my mental and physical disabilities and B.) Me becoming a writer since that is quite possibly the only career I feel comfortable doing. I have severe migraines due to anxiety and stress (they’re so bad I’m prone to passing out) but they say I need “to stop being sick and lazy”. I also have scoliosis, which makes walking long distances or even sitting very taxing at times. But they tell me that “yoga will cure me”!!! And I just need to “sit straight and stop slouching”!!!! When??? That’s not even the problem??? And on the writer thing. My anxiety makes me absolutely terrified people. I can’t stand people behind me, or even touching me if I don’t know they’re there. Being a writer actually eases this because I can set my own boundaries and make my own deadlines. I can do what I like and write about what I like. But because it’s not a very steady line of work, I’m told it’s pointless…. which makes me feel like I was wrong in my decision and kind of makes me second guess if I was making up my reasons for being an author in the first place. I’m so sorry I’m rambling but I just really need support and tbh Ifeel more comfortble talking to a somewhat stranger vs a doctor or counselor because of how unsupportive they are…
In 3 weeks I've only left my house twice because walking or standing too long is painful even with my cane. Everyone I know thinks getting a wheelchair is an !!!EXTREME!!! step but I don't leave the house I don't do anything I am so tired of this
It is in no way extreme. If a wheelchair means that you can leave the house without subjecting yourself to extreme pain and discomfort, then it is a perfectly reasonable step for you to take.
Anyone who tells you otherwise obviously has no true understanding of the levels of pain you’re experiencing, and no real concept of chronic pain.
It’s time to sharpen it’s edges, reinforce the handle, and keep it handy for the next dumb motherfucker who dares to try and tell you how we’ve survived every president before this one and we’ll…
