drew @eyechronik - Tumblr Blog

it's crazy how many health services are harder to access when you're sick/disabled like hi yes if you want an appointment please make a phone call at 8am and then go to an in person appointment and then you may get referred to a specialist three hours away. this is surely fair and balanced yes yes.

Painsomnia sunrises suck 🫠

#chronic pain #fibromyalgia #insomnio

My body is a printer.

Does it look like it works? I guess.

You wouldn't know from the shell.

Its mechanisms are a mystery.

Petulant, defiant, hesitant, uncooperative.

When you reach out for support?

"Oh, yeah, that's just the way those are.

It all looks like it should be fine.

Try again and come back if it gets worse."

The clearest signals aren't landing.

Feed it the right stock, energise it, but no flow.

If ink ever reaches the page, the tone is wrong.

New cables, fresh cartridge, the latest software?

Bandaids - short fixes for a short while.

Oh, now the queue is backed up.

It's overheating again. A paper jam - is that bad?

Better leave it to sort itself out.

We can't expect too much or ask for better.

#chronic illness #chronic pain #disability #spoonie

junglejim4322

(Making small talk) yeah I’ve been having some new and intriguing stomach issues lately

lifeafterpsychiatry

It's impossible to overlook how a lot of abled leftists think of "supporting disabled people" as an entirely theoretical act. They think that thinking and saying that disabled people deserve rights is enough to be an ally to the disabled community, despite never actually making room for disabled people in their activist spaces, never taking steps to include and accommodate us in practice, never actually listening to what we have to say about disability and ableism and never even questioning the status quo that keeps us out. At best we get to be distant theoreticals that people claim to be sympathetic towards, but we don't get to be real people IN their communities

identitty-dickruption

hello disabled person who is dithering about whether or not to ask for a certain accommodation because you could "technically survive without it". that is the devil talking. you are allowed to demand more than "technically surviving". the world is a shitty ableist place, but if you have the chance to have your needs met in any tiny way you are allowed to take it. and yes, it's still a need even if you can kind of almost technically mostly survive without it