untitled
Fai_Ryy
occasionally subtle
Claire Keane
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EXPECTATIONS
d e v o n
Monterey Bay Aquarium
The Stonewall Inn
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PUT YOUR BEARD IN MY MOUTH
official daine visual archive
cherry valley forever
blake kathryn
h
Interview Vampire Daily
sheepfilms
Origami Around
Phantogram Three
ojovivo
seen from United States
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@hidradenitis-suppurativa
This HS Awareness Documentary features a 17-year-old German patient Hendrick who, among others, Bercume was blessed to interview and spend time with while in... An #HSAWARENESS short creative documentary film from our Youtube channel at:
The video recording of the event has since been made available by CDN CLICK HERE FOR THE TOWN HALL MEETING INFORMATION “On May 21, Rockefeller will host a town hall meeting to share information among scientists, clinicians, and communities interested in or affected by Hidradenitis Suppurativa (HS)... (VIDEO UPDATED) The Rockefeller University Hosts A Town Hall Meeting: “Shedding Light on Hidradenitis Suppurativa (HS)” #HSAWARENESS
(PLEASE VOTE & SHARE IN SUPPORT OF KAREN) Photographer and #HidradenitisSuppurativa (HS) patient Karen Boley Barill needs your vote! "My love for photography and art started many years ago after one of my surgeries when all I could do is sit and heal. It takes me to another place and allows me to find myself again, the me I lost. I feel like the whole world is going on around me, without me. This is good therapy for me and it takes my mind off the pain and depression." CONTINUE READING & LEARN HOW TO CAST YOUR VOTE HERE: http://bit.ly/2LmqIyT We are the movement for #HSAWARENESS , #iwillnotHIDE #HidradenitisSuppurativa. http://bit.ly/2Hi04Vy
A literature search and patient survey was done by The Canadian Skin Patient Alliance (@CanadianSkin) in 2017 resulting in a report published and title as “Scarred for Life: A National Report of the Patient Experience Living with Hidradenitis Suppurativa (HS)“. Continue Reading: http://bit.ly/2H9Wuwt http://bit.ly/2JpKOLl
(PLEASE VOTE & SHARE IN SUPPORT OF MARIA) "I have always had spells where I would take an interest in sketching, always finding it relaxing but like most things that too had been lost to HS, until just over 2 years ago, when I purchased my first pastel pencils. I was eager to get creating once again. My artwork was not only relaxing but I also gained a sense of purpose again. I was not just creating art but creating a sense of well being, putting a bit of Heart and Soul into the meaning of having HS." CONTINUE READING & CAST YOUR VOTE FOR MARIA HERE http://bit.ly/2IyOjeY We are the movement for #HSAWARENESS , #iwillnotHIDE #HidradenitisSuppurativa. http://bit.ly/2wSxY39
"To me, #HSAWARENESS is about outreach. So many sufferers spend years hiding and feeling ashamed. Most, if not all of us, have been misdiagnosed and blamed for our disease. HS effects your self-esteem like few other things can. I want those who have our disease to know there is no reason to feel ashamed, you have done nothing wrong and nothing to deserve this. I hope, through our awareness efforts, that we can also reach the undiagnosed, and they can get the help they need. We’re all a family. ~Paige Weis" Read More: http://bit.ly/2KQAj1m #iwillnotHIDE #HidradenitisSuppurativa as a proud #HSPATIENT. This is the #endofHOPELESSNESS! We are the #HSGLOBAL movement for #HSAWARENESS! . http://bit.ly/2Iw7V6A
(May 5, 2018) "A literature search performed by the European Academy of Dermatology and Venereology (EADV) Task Forces (TF) on Quality of Life and Patient Oriented Outcomes (QoL and PO) and Acne, Rosacea and #HidradenitisSuppurativa (ARHS)..." #HSAWARENESS http://bit.ly/2KO1MAQ http://bit.ly/2wvNwtu
“THE QUESTION: What types of content that we share and publish on best address your needs, answers questions that you have, and/or best serves the reasons why you are present or a participant within an HS support community?” #HSAWARENESS http://bit.ly/2I07AcP http://bit.ly/2G4ejfP
“With the amount of drug abuse in the US, it is very important that, as a clinic and a medical doctor, these problems be addressed quickly and honestly. This last part of that sentence is my concern. ~Michelle Tilton” http://bit.ly/2G4aXtC http://bit.ly/2I7JB7r
(May 5, 2018) “This was an observational diagnostic study on a series of patients with a first diagnosis of HS and a corresponding series of age and gender-matched controls consecutively observed in two Italian centers.” #HSAWARENESS http://bit.ly/2G2ufiG http://bit.ly/2wuWerY
We are currently accepting editorial publishing submissions to be featured on our main websites at HSAWARENESS.ORG, HSSUPPORT.ORG, or other various publishing platforms for our organization. HS Patient Stories, Medical Research News, Industry News and Current Affairs, Press Releases, and various other types of content will be considered and reviewed once submitted. Features once published are also regularly shared out to our larger Social Media network of HS patients and industry professionals. More Info: http://bit.ly/2K7tk33 #iwillnotHIDE #HidradenitisSuppurativa as a proud #HSPATIENT. This is the #endofHOPELESSNESS! We are the #HSGLOBAL movement for #HSAWARENESS! http://bit.ly/2FZj4Y2
(Full-Text Available) Complement Activation in #InflammatorySkinDiseases | #HidradenitisSuppurativa HSAWARENESS.ORG http://bit.ly/2jzhGmj http://bit.ly/2IoJrfe
"It is sadly very common that we suffer silently for decades in isolation. We are embarrassed, ashamed, and think we are alone –– riddled with guilt. The taboo nature and stigma that surrounds #HidradenitisSuppurativa (HS) is thriving." #HSAWARENESS http://bit.ly/2rp91qg http://bit.ly/2ImTe5u
(PDF DOWNLOAD) "It is now believed that #HidradenitisSuppurativa (HS) is a systemic #InflammatoryDisease that gives rise to the characteristic cutaneous manifestations. This disease is problematic for both patients and physicians to manage." #HSAWARENESS http://bit.ly/2HUCFhV http://bit.ly/2FTBo55
"HS is not an invisible disease it is just very well hidden. It is very simple if you do not actively seek help or hide from everyone the fact that you need it, you will never get it. Put up flyers, send emails, join groups, or just write long ass posts like this one. ~John Herbert" #iwillnotHIDE #HidradenitisSuppurativa for #HSAWARENESS http://bit.ly/2HUl61L http://bit.ly/2rpOUZQ
(PLEASE SHARE) "I feel strongly that your very real self-sacrifice to be open and public about #HidradenitisSuppurativa deserves to be acknowledged. If you would like to be featured on #HSAWARENESS (.ORG) we would like to give back to you." More Info: http://bit.ly/2whvyL7 http://bit.ly/2HZYWH6
"In addition to reducing his ability to work, which contributed to his depressing poverty, #HidradenitisSuppurativa (HS) greatly reduced his self-esteem,” writes Shuster in the current British Journal of #Dermatology. This explains his self-loathing and alienation, a response reflected by the alienation Marx developed in his writing. But does it also explain communism? Could Marx’s anger over the class struggles of history and the ongoing oppression of the proletariat have been fuelled by his disease?" #HSAWARENESS Read the full editorial here: http://bit.ly/2HVRsF5 http://bit.ly/2rnX3Nu