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I started a podcast with my best friend!

I started a podcast with my best friend!

Hi friends! Today I have something fun to announce. If you follow me on twitter or instagram, you might have already seen. But if not, surprise! I started a podcast with my friend, Sam. This week marks one full year that I’ve been isolating due to the pandemic. One full year locked in. But throughout this not fun time, I’ve been kept company by my friends via virtual hangs. And that’s sort of…

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Disabled people need to be prioritized for the vaccine

Disabled people need to be prioritized for the vaccine

Disabled people need to be prioritized for the vaccine. And the fact that they aren’t is horrifying. If I sound repetitive by this point, it’s because this is basically all I can think about. Every single day I wish that I was able to get the vaccine, and that my friends could. That other high risk people who are terrified could. The way America is handling the vaccine rollout is shameful. When…

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New year, same pandemic

New year, same pandemic

I love the start of a new year. The idea of a fresh start excites me. And I know that new year’s resolutions are cheesy and unnecessary, but I think they’re fun. I like to make plans and cross goals off a list, I like to have some sort of direction to go in, even if it’s self imposed. Plus, January is my birthday month, so that helps with the good vibe. But starting a new year in the middle of a…

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20 things I learned in 2020

20 things I learned in 2020

Hello friends and happy new year. We made it, 2020 is over. I know we’ve all had a rough go of it recently. I usually feel excited at the idea of a fresh start but January feels more like a scary continuation than a new year. That said, I’m genuinely hopeful that things can and will get better.  In keeping with tradition, here are 20 things I learned from 2020. Every single movie about a…

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Why I don't support the MDA telethon

Why I don’t support the MDA telethon

If you’re new here, I have a type of congenital muscular dystrophy. Muscular dystrophy is, in simple terms, a category of neuromuscular diseases. I personally don’t know which exact flavor of MD I have, since I’ve never been tested beyond my initial diagnosis I got as a baby. But for the purposes of this post, all you need to know is that I’m under the muscular dystrophy umbrella.

For a long…

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Are you registered to vote?

Are you registered to vote?

Hi friends.

There is so much at stake in this upcoming election. It is quite literally, and terrifyingly, a matter of survival. For disabled people, the lgbtq+ community, BIPOC, immigrants. For that matter, given our current administrations disregard for climate change or any science at all, the entire planet is at stake. If you think that we’ll be fine for another 4 years with Trump, you have…

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Why did it take a global pandemic for things to become accessible?

Why did it take a global pandemic for things to become accessible?

I keep finding myself asking one question over and over: why did it take a global pandemic for things to become accessible? Obviously, things aren’t perfect. There’s still so much work left to do and it’s not like a flip was switched making the ADA perfect. Man, I wish. But seriously, look around at all that’s available right now.

Working from home

So many companies have made the switch…

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Lockdown life update

Hi friends! How’s lockdown treating ya?

First off, I just want to say that I know that everything is awful and scary and generally terrible right now, so I’m proud of you for getting through it. I’m happy you’re still here and super grateful that you’re spending even a few minutes of your day reading anything I have to say.

It’s weird looking back at the year. It feels like we should…

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I'm back I guess

I’m back I guess

Hi friends!

*coughs*

*clears cobwebs*

It’s been a heck of a long time since I’ve popped in here. When quarantine started, I had a hard time writing. Everything was sad and scary and the thought of writing about anything that mattered at the time was just too much for me, so I avoided it. I always planned on coming back when I was less frustrated with the situation, but if you’re reading…

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My friend and I are both in wheelchairs and our disabilities are nothing alike

My friend and I are both in wheelchairs and our disabilities are nothing alike

For today’s post, I teamed up with my friend Sarahto highlight just how different disabilities are from person to person, even between two wheelchair users. Lots of people who have limited or no experience with disability in general tend to lump all wheelchair users together and assume that our experiences are pretty similar when that’s really not the case. Sarah and I are the same age. We went…

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February 2020 highlights

Happy leap year day! Today is the last day of February 2020 but because it’s the 29th it feels like a bonus. And it also means that it’s time I write my highlights of the month, so hey, you’re reading this now so I actually did the thing and wrote a new post! Ticking that off as a win for past me.

This month has felt a little chaotic for me. Work has been… a lot. I mean my job isn’t hard…

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11 Wheelchair accessible date ideas

11 Wheelchair accessible date ideas

In honor of Valentines Day being just a few days away, I thought I would console my sadly single self by coming up with some fun date ideas that are all wheelchair accessible! There’s this strange belief that disabled people don’t or can’t date, and that couldn’t be further from the truth. But I do know that it can be hard to come up with something fun or exciting to do, especially when you have…

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January 2020 highlights

It always blows my mind when I see people saying they felt like January is 200 days long. For me, January always flies by scary fast. Maybe because my birthday is at the end of the month or maybe just because I always get a little excited and anxious at the start of a new year. Regardless, it’s the 31st and I wish I had at least one more week of January. 

In the hopes of giving myself…

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I am too comfortable with my depression

I am too comfortable with my depression

I am too comfortable with my depression. Nagging, spiteful, cruel, sad, hurtful thoughts feel like second nature. When they’re gone, I almost feel nervous. I wonder where they’ve gone, what I’ve done to deserve the quiet without them and it leaves me feeling like something is missing. Some part of me, granted a part I dislike, but a part of me nonetheless.

I convince myself that it serves a…

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I love being disabled and I sometimes hate my disease

I love being disabled and I sometimes hate my disease

Being disabled is something I often celebrate. But here’s something I don’t say a lot: I really hate some of things muscular dystrophy does to me. Muscle cramps suck. Getting exhausted after moving 3 things off your desk is unendingly frustrating. Feeling like something should be SO easy but your body saying otherwise can be crushing.

But none of that negates the fact that I love who I am. I love…

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My 2020 goals

Happy New Year everyone! I hope you enjoyed the holidays and have had a happy start to 2020. I’m actually sick currently, my whole family is. Right after Christmas, my mom caught a cold and I’m now on day 8? I think? Of being sick. It’s been a pretty brutal start to the year. We had fun plans that all got canceled and I’m still a little sad about it. But today is the first day I’ve felt up to…

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19 Things I learned in 2019

19 Things I learned in 2019

There are only two days left of 2019. What?!

We’re reaching the end of an entire decade, and if you’re anything like me, you’re probably stressed out about that. Everyone is sharing their accomplishments from the past ten years, which is cool! But every time I read one of those posts it’s a surefire way to make me get the stress sweats and overthink my entire life. I’m making progress, I just…

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