Things I've learned since becoming ill...
⢠Itâs nobodyâs fault. It is genetic. It just happened.
⢠Do not be too proud or stubborn to ask for help. You need it.
⢠Brush your teeth and wash your face (even just with a baby wipe) everyday if youâre able to do so. It makes you feel more human.
⢠Shower or bathe whenever you are able to. Good personal hygiene is good for your mental health.
⢠Some people will leave. You donât need those people. Others will stay and they are wonderful human beings.
⢠You are not a burden. You are not useless. Do not be guilty. Please. Guilt will eat your insides.
⢠You have not lost who you are. You just now have to make adjustments to accommodate this new thing.
⢠Accept the fact that you have an illness. Being in denial will only make your mental and physical health worse.
⢠Clean pyjamas are a divine gift. As are clean bedding and blankets.
⢠Self care is entirely subjective. If you want to do yoga then do it, if you wanna sit and eat takeout in front of the TV in a squirtle onesie then thatâs fine too. Whatever makes you feel good, or at least better.
⢠If you are tired then rest. Do not burn yourself out. It doesnât matter what time of day it is, if you need a nap then you have one.
⢠Talk. Write. Sing. Paint. Draw. Dance. Do something to express your feelings. Donât keep them inside. Youâll explode.
⢠Donât worry if you canât adjust right away. It takes time. A lot of time.
⢠Do not feel ashamed or embarrassed. Unfortunately illness often has embarrassing symptoms or such. It isnât your fault. People who allow you to feel embarrassed about such things are terrible people.
⢠Keep your sense of humour. Some days itâs the only thing that gets you through.
⢠There will be good days. Grab them with both hands and enjoy them. Savour them. Spend them doing things you love, things that you canât do on bad days.
⢠Prepare yourself to the best of your ability. LikeâŚalways have a hospital weekend bag packed for emergencies, keep a bed day drawer or bag near to where you sleep, have food or snacks close by, always have a water bottleâŚ
⢠Take your meds. Please. If you have a serious illness for the love of god donât listen to the âbig pharmaâ conspiracy theorists. You need your meds. They keep you alive. They enable you to function.
⢠Research your illness. Keep yourself informed. But donât dwell on what might happen. Please donât scare yourself.
⢠Itâs okay not to feel positive all the time. Itâs okay to feel down. Itâs perfectly natural. But try to be as positive as you can. For your own sake.
⢠Your own health comes first. Itâs not selfishness itâs survival.
⢠The bad days can be horrific but the good ones are beautiful, and so worth holding on for.
⢠Donât give up on love. Just donât.
⢠You are a badass warrior.
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