Katie Mackie @itch-n-bitch - Tumblr Blog

I am unapologetically me. Itchy bits n all...⚡️

For me, bringing awareness to skin conditions is extremely personal. It means that maybe someone else out there won't have to go through what I have. I hope by raising awareness I can change someone else's experience of living with a skin condition and hopefully empower them to feel more comfortable in their skin!

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A post shared by Katie | Eczema, Mental Health & Real Skin (@mackies_moments)

#eczemaproblems #topicalsteroidwithdrawal #eczema awareness week #Instagram

(via 📣REAL REPRESENTATION MATTERS❤️‍🩹)

Not everyone who uses topical steroids will develop Topical Steroid Withdrawal (TSW)

corticosteroid safety

It is unclear why some people experience TSWS after using topical steroids and why others do not. This underpins the need for more research to unravel this issue and provide better support for those affected.

Every time I see Topical Steroid Withdrawal (TSW) being discussed I am overcome with excitement which quickly turns to anger and sadness. Awareness on such a large scale is amazing BUT with no real action or change by places of power, it again leaves me feeling gutted.

There’s growing global awareness about the side effects of topical steroids, shared online, in the news and even warnings in pamphlets accompanying prescriptions.

Yet no real action or change. There needs to be action by the Government to address this issue, silence and lack of action are only contributing to widespread misinformation, online hysteria, and increased worry among those prescribed them.

Research on TSW is crucial to aid current sufferers and help prevent future cases. It’s time for tangible support and proactive research to alleviate TSW suffering and prevent future cases.

I've started a petition to hopefully address this and give us all some much needed relief from the overthinking https://petition.parliament.uk/petitions/658458

#eczemaproblems #topicalsteroidaddiction #topicalsteroidwithdrawal #tsw

Uncertainty surrounding Topical Steroid use? It is estimated that over eight million individuals in the UK suffer from atopic eczema alone, with a staggering 60% of the population either currently experiencing or having previously had a skin condition. Typically, the first line of treatment involves the use of topical steroids. There is a growing awareness online and in the news about the potential risks associated with topical steroid use. Topical steroids, often prescribed for conditions like eczema and psoriasis, can lead to dependency and withdrawal symptoms, posing serious concerns for those affected. The uncertainty surrounding steroid use, in the absence of updated guidelines or research, is causing considerable anxiety and guilt, exacerbating the already challenging experience of managing a chronic skin condition. My petition aims to address these issues directly. By raising awareness and advocating for clearer guidelines and support systems, my goal is to empower doctors to make informed decisions and provide patients with hope and healing options, alleviating unnecessary stress and guilt. The influx of messages from individuals who are scared and feel out of options is alarming and could potentially lead to further mental health issues if not addressed by the NHS/Government. Patients are losing trust, and more importantly, they are losing hope. Your support in spreading awareness and signing this petition would mean a lot. Please consider joining us in this crucial movement for informed care. Together, we can make a difference. Katie Mackie & The Itch N Bitch Community ✍🏻Sign Here: Fund Topical Steroid Withdrawal (TSW) Research and Provide Support for Sufferers 🔗https://petition.parliament.uk/petitions/658458 1 WEEK IN, nearly 4k signature mark!! THANK YOU!! (Just so you know, while the petition is UK-based, your support in sharing or replicating this petition on your own country's governmental petition sites is greatly appreciated.)

#topicalsteroidaddiction #eczema #itchy #steroids #eczema positivity #autoimmunedisease #topicalsteroidwithdrawal #eczema since birth

We think research on TSW is crucial in creating diagnostic criteria, also to inform prevalence and aid in prevention. There’s growing awaren

Spread the word! Let's make Topical Steroid Withdrawal a thing of the past. Sign, share, and declare your support for the TSW petition today! Together, we can create change. ⚠️

Take 1 minute to sign & support our cause! petition.parliament.uk/petitions/658458

#topicalsteroidaddiction #tsw #topicalsteroidwithdrawal #eczema

No one deserves to go through TSW!

Hey all, itchy gal tryna be the change!! I’ve started a petition to address the challenges surrounding the prescription of topical steroids. These medications, used for conditions like eczema and psoriasis, can lead to dependency and severe withdrawal symptoms.

https://petition.parliament.uk/petitions/658458

Let’s stand together and support each other in improving health outcomes for everyone affected by TSW and living with skin conditions.

We’re signing for the scared parents, the patients feeling out of options, and the friends we’ve seen suffer. No one deserves to go through TSW!

Share this petition with your loved ones, dermatologists, and everyone who can help us make a change.

Let’s drive meaningful action - Thank you for your support! Keep signing, sharing, and speaking up!

We can only make change by standing united for this important cause.

WE NEED ANSWERS.

WE NEED HEALING OPTIONS.

WE NEED SUPPORT.

I NEED YOU TO TAKE ACTION.

If you wish to support by sharing one of these images I've created social media captions, pictures and all you can dream to help get to 10k signatures! https://itchnbitch.co.uk/.../28/tsw-petition-support-assets/

#topicalsteroidaddiction #topicalsteroidwithdrawal

littlemissplumful

My eczema, then and now. I’m feeling very emotional looking back at what my skin looked like exactly one year ago today. I had just stopped using my #topicalsteroids and was going through the withdrawal symptoms that come with that. I’ve really been struggling with my #eczema this week but seeing these photos pop up has reminded me just how far I’ve come. Severe flare ups like that used to be fairly frequent. Although I clearly still have bad times they’re nowhere near as bad. The mental struggle is the same to be honest but at least now the pain is more bearable and it doesn’t look quite as bad. To every single person who messages me about my skin condition whether you’re going through the same thing or are offering me your sympathy, I appreciate you and thank you. Having my eczema crew on here is like a support network that I can lean on and also help in any way I can whether that’s understanding the struggle or sharing what works for me. Eczema, #psoriasis & #topicalsteroidwithdrawal is a nightmare to deal with to be honest, so if you can relate to any of this I FEEL YOUR PAIN. We’ve got this 🙌🏼 #tsw (at London, Unιted Kingdom) https://www.instagram.com/p/CTVGxjloa9Y/?utm_medium=tumblr

Let’s make Topical Steroid Withdrawal (TSW) a thing of the past - sign the petition to fund vital research and support those battling withdrawal symptoms. Together, we can pave the way for a future where prescriptions bring relief, not anxiety. Together, we can make a significant impact on the lives of those affected by TSW, providing them with the hope and support they need to recover and thrive. Katie Mackie Petition, Petition 658458, TSW Petition SIGN NOW: https://petition.parliament.uk/petitions/658458

#autoimmunedisease #eczema #eczema positivity #TSW #topicalsteroidwithdrawal #topicalsteroidaddiction

Let’s make Topical Steroid Withdrawal (TSW) a thing of the past - sign the petition to fund vital research and support those battling withdrawal symptoms. Together, we can pave the way for a future where prescriptions bring relief, not anxiety. Together, we can make a significant impact on the lives of those affected by TSW, providing them with the hope and support they need to recover and thrive. Katie Mackie Petition, Petition 658458, TSW Petition SIGN NOW: https://petition.parliament.uk/petitions/658458

#eczemaproblems #skin positivity #autoimmunedisease #eczema #eczema positivity #tsw #topicalsteroidwithdrawal #topicalsteroidaddiction

Fund Topical Steroid Withdrawal (TSW) Research and Provide Support for Sufferers

Let’s make Topical Steroid Withdrawal (TSW) a thing of the past - sign the petition to fund vital research and support those battling withdrawal symptoms. Together, we can pave the way for a future where prescriptions bring relief, not anxiety. https://petition.parliament.uk/petitions/658458…

#eczemaproblems #eczema #eczema positivity #tsw #topicalsteroidwithdrawal #topicalsteroidaddiction

✨NEW TATTOO✨ My Skin positivity lil lady on my arm. When I saw this while scrolling Pinterest I saw the line cross overs as patches of #Eczema / #Psorasis and just fell in love with it. Main message: Skin Positivity isn’t about changing the appearance of your skin, it’s about changing the way you see your skin.