cureHDwalkforHDlivingwithHD

They say when you blog it’s supposed to be about your passion well my whole life is my mom an family🗣👋🏾HEYYYY MJ HERE💋here to explore learn, explain, an further understand the things to come or things that may not come. I’m 27 an have been taking care of my mother since I was 14 it’s been a long road and I’m here to speak out for families with HD for the kids that developed the mental health illness from the disease passed to them unsure of everything from anxiety insomnia depression and manic bipolar😳wait that doesn’t mean I’m a bitch lol😂🤣tell me what you know better yet show me! Stand up for HD I want a cure!

[itsnotokaybutimokay]

I’ll never be the same but I’m learning to ease the pain

[itsnotokaybutimokay]

On a more personal note my mother passed away right before my birthday this year which was a couple months ago an im fighting depression day in an day out 🤦🏾‍♀️😩🤦🏾‍♀️😩I’m just not the same.

[itsnotokaybutimokay]

[itsnotokaybutimokay]

Okay y’all it’s been a while I’ve been gone I’ve had some personal issues fighting my demons but I’m back so let’s jump right back in I’ve got a lot to tell you!

[itsnotokaybutimokay]

I want to interview some people online via Skype or maybe Facebook and just kinda ask question compare an contrast. I want to spread awareness for Huntingtons disease until I can’t breathe anymore. If your up for it let me know and yes your video will be posted to my blogg on tumblr my tiktok and youtube🥰

[itsnotokaybutimokay]

Being manic is starting to feel like the flip of a light switch on every emotion I have....especially since it’s taken me over 10 years to find ways to control those feelings...it’s made me tired AF today I’m cried out I’m angered out 😂🤦🏾‍♀️ I’m done tonight.

[itsnotokaybutimokay]

I just want to find a better way to explain and understand for those to come after me an those that are here now....we all need a support system and I want to be the beginning in my city for the people I know don’t have that kind of support I’ve been through it all and I’m only 27 I didn’t have my dad around so I took care of my mom alone just wish I could have my mom back like when I was a kid I want more time to learn and understand to make better decisions to know more but I could wish all day it’s not happening

[goddessmyramz]

Please share like and follow my new blog add your opinion give me answers tag people that know about this disease let me know of events or people you may know near Ohio I would love to hear from as many people as possible I want to learn more I want to talk and compare the ages and stages please feel free @fightingforourlives

[goddessmyramz]

Please share like and follow my new blog add your opinion give me answers tag people that know about this disease let me know of events or people you may know near Ohio I would love to hear from as many people as possible I want to learn more I want to talk and compare the ages and stages please feel free @fightingforourlives

[itsnotokaybutimokay]

Your my best friend and I swear to never stop fighting for us until the day I have no breath left in me. I have so many questions an I’ll die with just my respect if they don’t get answered 💪🏾🙏🏾

[itsnotokaybutimokay]

I watched my aunt be mistreated an 1 of my uncles refuse to speak when he’s around my uncle brad he died now that was the funniest dude I know he always made you smile and laugh even though he had these ridiculous nicknames for us 🤦🏾‍♀️ well he stayed away as much as possible an in my family it’s such a secret that some of us are just “DIFFERENT” from others we are a competitive family though so it’s always been that pick a side kind of life an well they all chose their own side an coped in their own ways one silent one smiling one with high hopes an the other just didn’t give a fuck 😂🤣😂🤣I just don’t get all the secrets wouldn’t you want your kids to know an do things differently or handle things differently like why is there so much separation an anger around here? It took more than a decade for me to figure it out and still looking for a support system an people to talk to about it that may be going through the same or maybe you have HD and you know for sure.

[itsnotokaybutimokay]

I don’t think wondering if I have the disease or not is a matter to me anymore I’d rather live carefree an when it comes it comes but this here this is to tell you what you don’t know this is to show you how we cope how we overcome an learn. This journey shall be a roller coaster!!!! So ride with me. Out of 8 kids 6 I’m sure are positive, those children went on to have their own children, an those children have children. I’m learning still but I want things to be easier for our new generation than it was for mine an the one before me. I still don’t know my grandfathers family an that’s where all this started.