#iwtv#interview with the vampire#amc tvl#sam reid#jacob anderson
seen from Yemen
seen from Italy
seen from Italy
seen from Canada
seen from France
seen from United States
seen from China
seen from United States
seen from United States
seen from Greece
seen from United States
seen from Türkiye
seen from Poland
seen from United States
seen from Malaysia
seen from Türkiye
seen from Poland
seen from South Korea
seen from United States
seen from United Kingdom
Please share like and follow my new blog add your opinion give me answers tag people that know about this disease let me know of events or people you may know near Ohio I would love to hear from as many people as possible I want to learn more I want to talk and compare the ages and stages please feel free @fightingforourlives
I want to interview some people online via Skype or maybe Facebook and just kinda ask question compare an contrast. I want to spread awareness for Huntingtons disease until I can’t breathe anymore. If your up for it let me know and yes your video will be posted to my blogg on tumblr my tiktok and youtube🥰
is that you..?
Hi everyone... i know its been a while since i have written something but tbh, i wasnt sure really what i wanted to write about. i’ve had a few thoughts in my head but then this morning as i was getting ready, multiple thoughts come to my mind every morning, while i’m doing my make-up, made me look at myself for a minute. is that you? is today going to be the day? what stresses do i have in my life? what am i overwhelming myself with? do i look the same? have i been forgetting things lately? have i stumbled more that i usually have? am i able to focus in class? do i feel more angry than normal? have i hurt anyone’s feeling lately? does my mind wonder to places that it has never before? is my work starting to lag? is that you? every day, i have these thoughts, along with many more run through my head. the thing about HD is that, you will never know when it’s going to “hit”. HD is so different for everyone that no one knows. HD is a mystery. yes, we know what gene HD affects and we know that there is no cure and we know that there is only medication to help the symptoms and we know there are studies going on to find a cure and we know that we cannot do anything to avoid HD from hitting. that’s scary though, isnt it? think about it, lets use my mom’s case specifically. my mom had a “boom” that really brought on her HD. my mom was a single mom for years of 3 kids then all of a sudden within 3 years, 2 of your kids decided they wanted to move to their dads. all the stress, anger, sadness, decided to mix together just perfectly then BOOM, HD symptoms. isn’t that scary to think? youre just living your life perfectly “normal” and all of a sudden you can’t work, even though you have a masters degree, you can’t drive even though you have a child at home and have places to be, you can’t take care of yourself like you should. you used to do your make up every day, make sure your hair was done, went to get your finger nails and toes done. now, because of HD, you can’t sit still long enough or you cant work your arms like you used to. isn’t that crazy? isn’t it crazy that so many people like me, 24.. even younger, have to live their life walking on egg shells because we do not know when it’s going to “hit” ? isn’t it crazy that people who know they are positive for HD or are at risk have to worry every if the choices they are making today like going to college? isn’t crazy that people positive with HD or at risk may not even want to be in a relationship? isn’t crazy that people positive with HD or at risk have to make the decision if they want kids, and even from that how they want to “have” kids? isn’t it crazy that there are people like me who didnt know HD ran in their family and now that we know, its our whole lives? isn’t it crazy that there are people that have known HD has been in their family for generation after generation and have to make the decision, if 1, they want to find out and 2, when they want to find out? isn’t it crazy that you have to worry not only for yourself but for your siblings because they havent tested to find out? isn’t crazy that you wish and pray everyday that you are the only one with it so your siblings never have to go through the thoughts you have everyday? isn’t it crazy that you thought since youre the oldest sibling that you are the strongest? isnt’ it crazy that one result can change a persons life forever? i know i have HD, and isn’t sad that i have to worry every single day if my daughter will be positive? isn’t it sad that i’m thinking about more kids in the future and possibly using IVF and having to tell my daughter that her siblings will never be at risk for HD like she is? isn’t it sad that i look at my daughter sometime when she falls or coughs from choking a little when she eats to fast and wondering, is that you ? isn’t it crazy? isnt it sad? i ask myself these questions consistently.. but the question that haunts me minute after minute, 24/7, is that you?
Please join us for our 2023 San Francisco Family Education Day! This is a free event and lunch will be provided. SATURDAY, DECEMBER 2ND, 2023 9:30 A.M. to 2:30 P.M STANFORD CAMPUS - LI KA SHING CENTER FOR LEARNING AND KNOWLEDGE (LKSC) 291 Campus Drive - Stanford, CA 94305
(via Author & Huntington's Disease Advocate) The Huntington’s disease fundraiser, the San Francisco Team Hope Walk on Saturday, October 14th, was a huge success and a fun time raising $35,000.00. Thanks to all who supported the event! You can still make a donation to the event at https://sanfrancisco.hdsa.org/events/2023-team-hope-walk-san-francisco-ca
The HDSA San Francisco Bay Area Chapter thanks Stanford Medicine, Gold Sponsor for the upcoming Huntington's disease fundraiser at Campbell Park on June 17, 2023. Please register and help in the fight against this incurable disease here: https://sanfrancisco.hdsa.org/events/2023-team-hope-walk-san-jose-ca
The HDSA San Francisco Bay Area Chapter thanks Star One Credit Union for being a Platinum sponsor for the upcoming Huntington's disease fundraiser at Campbell Park on June 17, 2023. Please register and help in the fight against this incurable disease here: https://sanfrancisco.hdsa.org/events/2023-team-hope-walk-san-jose-ca
(via Author & Huntington's Disease Advocate) Six years ago this month, I held the nonfiction book I wrote for the first time. It was surreal to say the least. "Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington's." Read about it on my website: https://theresecrutchermarin.com/
