When they diagnose you with a Chronic Illness they tell you the symptoms, the side effects, how it can progressively get worse, what treatment is available, hell theyâll even suggest what to eat but what they donât tell you while youâre sitting across from them is how hard the rest of your life suddenly becomes.
They donât tell you all your favourite hobbies that required a lot of energy might as well be tossed to the side.
They donât tell you all your life goals and dreams get jumbled up and switched around and some even need to be put on the back burners until youâve found a way to manage your symptoms.
They donât tell you how every day from here on out is going to be an uphill battle with two wounded legs and the weight of the world on your back. And that there will be people telling you âYou donât look sickâ or âYou just have to power through itâ or my personal favourite âMy relative has a similar disease and she runs 8 marathons a year and eats nothing but kaleâ.
They donât tell you how lonely youâre going to be. Your chronic illness gets in the way of hangouts, meetings, school, your job and the only socialisation youâll be getting is from text messages or phone calls and thatâs if your friends remember you- because they havenât seen you in so long. Or worse theyâve stopped inviting you because you âcanât come out to playâ because something hurts.
Iâm learning all of this on my own. Iâm learning how to live with a disease I didnât think I would in a million years have. I was completely blindsided with how much this was going to take out of me.
Iâm sitting here in tears because I miss being able to get out of bed and just do things. Because my body hurts. Because I miss my friends. Because Iâm starting to think they arenât going to be my friends in the next few days, hours, or minutes.
It sucks and it hurts. I hurt physically and mentally and I just want it to all go away.