The other night, I walked along Lake Merritt under the blue moon. They say beneath these moons you face a heightened activity of the mind. Your feelings drip to earth with the moonlight. The dewiness of the evening left on your skin reminds you to reckon with them.
The blue moon hit me hard that night. It was a moon that asked me to be plain with myself, to evaluate with great honesty what I do, who I care about, what I believe in, and where I lay my devotion.
I have started and stopped writing this post over and over again for the past few months. I suppose I have been stunted by a fear of sounding trite about this, or for flexing my general lack of profundity when sharing something that my immediate family has for so long kept between us and close to heart. We don’t often share the things that pain us let alone ask for help. But that night, I felt as if the blue moon deepened the urgency for this particular telling and reminded me that it’s incredibly difficult to be lyrically graceful when you are scared, or tired, or longing, or sick. And in matters of hardship, life or death, things will always be hard to say.
This is hard to say. And I don’t have any more preludes to postpone what the moon told me to share (something my family too has thought long and hard about sharing).
My sisters are my life and my oldest sister Christabel has been sick for many seasons with end stage kidney failure. In plainer terms, she has no kidney function on her own and currently wakes up three times a week at 4 AM for dialysis to survive. Despite dialysis, countless surgeries, scars, medications, and bad days– my sister has continued to live. She is the most vibrant, strong, and hopeful human I know despite all the ways that kidney disease has impacted and limited the bounds of her young life. Shouldering all of this, she still manages to be a caring (and sassy) wife, intentional yogi, incredible educator, and fiercely supportive sister and daughter. She has in many ways raised me–as my sister, best friend, and third parent. And she continues to push me to always live too. She has nursed my silly broken hearts, encouraged me to continue searching for the work that fulfills me, and reminded me to explore and party a little. I love her and I would be lost without her.
In trying seasons like these, hope rises and falls like the moon. Three of my family members have tested to be living donors–and have not been matches. Calls off the waitlist have fallen through. While I am finally at a point in my life professionally and spiritually to begin the process of testing on my own, I can’t help but think about what more to do to help her keep living.
In my various nonprofit and NGO jobs, I’ve asked for your support but no cause hits closer to home than this. I have decided to participate in this year’s Kidney Walk in Los Angeles with and for Christabel. Here is my fundraising page. I will walk/run/jump/sing to raise awareness about kidney disease and organ donation in hopes of finding a donor for my sister.
To join our team, click the “Join Team” link on the Kidney Walk page.
If you are interested in being a living donor or know anyone who would like to donate, call Scripps Transplant at (858) 554-4310 and visit this webpage for more information: https://www.scripps.org/services/transplant-services__kidney-transplant/services__living-kidney-donation
Or please make a monetary contribution! When you donate, more than 80 cents of every dollar donated directly supports programs and services, including:
Educating Americans through multimedia public awareness initiatives about kidney disease and ways to reduce their risk.
Empowering those at risk to take action at free, local kidney health screenings.
Supporting kidney patients, organ donors, and their families - online at www.kidney.org, on the phone toll-free at NKF Cares (1.855.653.2273), and through personal peer-mentoring.
Advocating as the voice of the kidney patient in Washington DC to address the organ donor shortage, fund more kidney research, and defend Medicare coverage for kidney disease.
Sharing the latest treatment information and practices with healthcare providers so patients get the best possible care.
Or pray, or wish, or write to the moon, the universe, etc.
Thank you for listening. That feels good too.