Autoimmune Disease Relatables

Have incurable diseases? Overwhelming pain? Friends and family that don't understand? Medications are annoying? Whatever the case, this blog is your place. (Hablo español también, siéntete libre enviarme un mensaje)

[justautoimmuneproblems]

Who else is on Cosentyx?

I currently have about 80% of my body covered along with severe psoriatic arthritis and Crohn's.

[chronicillnesshelp]

every healthy person who recommends yoga and vitamin supplements to a person with an incurable illness owes me 10$ pay up uglies

[justautoimmuneproblems]

Just bought a necklace that says: "I am a warrior of an invisible battle." 😍

[ilikemyrandomthoughts]

You know you’re a spoonie when you pull up to the pharmacy drive-thru and the technician greets you by name

[justautoimmuneproblems]

Remicade

Going in tomorrow at 9am for my first infusion of Remicade. I have chronic uveitis and terrible arthralgia, along with dermatitis that presents when I get stressed. 

Anyone else take Remicade and want to share their experiences?

[disabilityhealth]

You’re going to be okay. We’re all going to be okay, just maybe not today.

[fibro-larious]

Raise your hand if you have ever been personally victimized by a healthcare professional.

[justautoimmuneproblems]

Before I got a punch biopsy of my skin where it showed it was my autoimmune disease, my doctor told me I’m, “Not bathing enough.” And he went through all those years of school for that conclusion?

[lovepotsie]

How A Spoonie Says “I love you”

- “Thank you for your help.”

- “I can help, my pain isn’t bad right now.”

- “Do you want me to do that for you?  I’ve got the energy right now.”

- “Nah, I’m not that tired yet.  We can walk around for a while longer.”

- “My pain is manageable right now, I can keep going.”

- “Oh, I wrote that down so I wouldn’t forget it.”

- “I made sure I remembered that.”

- “Are you sure you’re okay?”

- “I’m not too tired yet, I can stay up and talk a while longer.”

- “I can finish what I was doing later, I can help you with this now.”

Please, feel free to add how you say “I love you”!

[justautoimmuneproblems]

Chronic Forgetfulness

Me on a bad day: Shit I am really sick.

Me on a good day: Wait, was it really that bad?

Me on a bad day: Yes. Yes, this is awful.

Me on a good day: Wow. What the hell was I complaining about? I'm fine.

Me on a bad day: I'm not fine.

[justautoimmuneproblems]

Learning to write with your non-dominant hand 

[justautoimmuneproblems]

When you have to get out of bed, but your knees and hands hurt too much to put pressure on them... So you have to squirm your way out.

[justautoimmuneproblems]

Cuando el doctor no hable español y no pueda comprenderte pero todavía lo necesitas

[justautoimmuneproblems]

When you've been sick for a week so you can't take your immunosuppressants but you have to in order to survive but you can't

[justautoimmuneproblems]

When your brain's awake but your body's exhausted

[chronicallyblogging]

That Spoonie Feel When...

All your symptoms hit at once…

[ilikemyrandomthoughts]

Wait so some people’s autoimmune diseases resolve themselves on their own???😱😱😱 😝😠 sign me up 😷👌👌 sign me up for that 💯💯

[william-snekspeare]

Chronic illness things

When you have to wake up an hour early because that’s how long it takes you to get dressed, but losing an hour’s sleep makes you exhausted for the rest of the day.

[spoonie-isms]

Every single decision a Spoonie makes is like this.