CHRONICles of ILLNESS @kswails - Tumblr Blog

A Letter to My Enemy

positivepearls:

Amen.

Originally posted on Sick and Sick of It:

Dear Fibromyalgia,

I’d like to talk doogree with you.

Doogree- straightforwardly, with no beating around the bush

I am no longer naïve enough to believe that despite your presence I can make my life the way I’d like it to be. I am old enough now to realize that I can never make peace with you. I will never be my truest…

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medaesthetic

submit your medaesthetic

we need pictures of you looking fabulous with your medical devices. if you identify as a medicalized individual we want photos of you with your wheelchair, walker, cane, TENS machine, braces, hot water bottle, heating pad, pill dispenser, colostomy bag, IV machine, or whatever medical device you use (fabulously)

either submit directly on our blog or tag your photos “medaesthetic”

rampyourvoice

SIGNAL BOOST!

livinglifethroughthelens

A canopy of trees along the walkway on the University of Florida campus. Photo by Chris Bastian.

kswails

Missing UF.

I signed up with ResearchMatch and you should, too! Let's make it happen!

#research

Wise Words from John Green

I apologize for not blogging lately- my health hasn’t been doing well. So, instead of using my own words today I thought I’d post with some wise words by John Green, author of one of my favorite books – The Fault in Our Stars.

“So often we try to make other people feel better by minimizing their pain, by telling them that it will get better (which it will) or that there are worse things in the…

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Did you know that Amazon gives 6% of your purchase price to Dysautonomia International when you shop through our Amazon Store, at no extra cost to you? You can get to any item on Amazon through the search box on our store: www.dysautonomiainternational.org/amazon Please share this with family and friends who shop online. Thanks for your support!

#dysautonomia #pots #ncs #chronic illness #chronicillnes #fatigue #tachycardia #postural orthostatic tachycardia syndrome

#GivingTuesday

#‎Unselfie‬ An anonymous donor has offered to match all donations to Dysautonomia International during the month of December, up to $20,000. Please consider supporting Dysautonomia International today as part of ‪#‎GivingTuesday‬ . Together we can make a difference. You can find details here: www.dysautonomiainternational.org/GivingTuesday

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Just a SPOONful of energy...

How many SPOONS do you have today??

Yesterday, my spoons were plenty. Today, I have too few spoons.Yes, I am a spoonie.

What exactly does it mean to be a “spoonie”? If you are familiar with chronic illnesses or have a friend/family member who suffers from a chronic illness, then you have probably heard them be referred to as a spoonie. But what does it mean and where did this term come from?

Alas, I present to you The Spoon Theory.

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#arthritis #asthma #CAD #cancer #CFS #CHRONIC ILLNESS #chronicfatiguesyndrome #CKD #COPD #diabetes #Dysautonomia #FATIGUE #lupus #ncs #osteoporosis #POTS #spoonie #spoons

Beautiful.

Choies

Never, Never Quit!

Serra Pearson, a girl in one of my online support groups, was diagnosed and suffered with three types of dysautonomia (small fiber neuropathy, POTS (postural orthostatic tachycardia syndrome), and AAG (Autoimmune Autonomic Ganglionopathy). [Gastroparesis is a common symptom for dysautonomia patients.] Unfortunately, Serra passed away yesterday at age 16. She left behind an amazing YouTube video…

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