#dysautonmia

[scenessystem]

POTS got me like

[shouldthisbecalledrecovery]

Just Spoonie Thingz

We put pool noodles on the door frame to protect my head when i pass out. Because i will injure myself even in my wheelchair!

[1spoonatatime]

Me, responding to a public post about someone sitting during the National Anthem: Some people can't stand; I look healthy but am at risk of passing out, especially on a hot day, if I'm standing still; I have a condition called POTS. If I'm sitting, it's not to be rude. No one owes you an explanation about their personal health, ever.

Someone, inevitably: wHAT, YOU CAN'T STAND FOR TWO WHOLE MINUTES, WOW, HOW CAN YOU WORK???

[therandomcantina]

So it’s October now, and we all know that this is Breast Cancer Awareness month. All the little kids are going to wear pink jerseys to their soccer games, and everyone comes out to support those suffering from breast cancer. Good stuff.

But did you know that this month is also Dysautonomia Awareness month? Dysautonomia is a category of several conditions that affect the autonomic nervous system, including postural orthostatic tachycardia syndrome, better known as POTS. POTS affects some 500,000 Americans, often young women, but is still somehow relatively unknown. I know I hadn’t heard of it until an old of mine started experiencing symptoms of it two and a half years ago. Though POTS isn’t often life threatening, it can be pretty debilitating, making it difficult or even impossible to carry out normal everyday activities.

I’d encourage you all to do a little research on POTS so you are familiar with the symptoms and affects. Here’s an article to get you started

Here’s a link to Dysautonomia International’s page for Dysautonomia Awareness Month

[bobbyschwartzmd]

Dysautonomia and Sympathetic Pain

Dysautonomia is a condition where the autonomic nervous system does not work right.  The autonomic nervous system is responsible for controlling automatic functions in the body such as heart rate, blood pressure, pupil size, bowel and bladder urges, skin temperature, and even limb swelling.     Many people with chronic pain never consider that rather then sensory or motor nerves, muscles, tendons, ligaments, and bones there is yet another major source of musculoskeletal pain.   The sympathetic nerves (that is their name) which are part of the autonomic nervous system, can actually cause more severe pain then each of the other tissue types just named.  When involved light touch, changing barometric pressure, and changing temperature can hurt.  Weather sensitive pain, as seen with conditions like arthritis, necks, backs, head ache, RSD/CRPS, and Fibromyalgia, is a true sign that there is dysautonmia of the sympathetic nerves.  The good news is that there is a way to identify it (medical thermology) and there are ways to treat it. Learn more about dysautonomia,  sympathetic nerve, and weather sensitive pain at Piedmontpmr.com.

[bobbyschwartzmd]

CRPS, RSD, Fibromyalgia, & Dysautonomia

CRPS, RSD and Fibromyalgia all share somethings in common: weather sensitive pain, sympathetic dysfunction, and elements of Dysautonomia.  Dysautonomia suggests more extensive, or global abnormality of the autonomic nervous system (ANS).     The ANS is responsible for things like making our heart beat, pupils constrict and dilate, or keeping our blood pressure regular when we go from sit to stand.   If just the heart rate and blood pressure are not regulated we call it Postural Orthostatic Tachycardia Syndrome (POTS).   If just skin temperature and associated pain are involved we call it CRPS/RSD in more severe cases and Fibromyalgia in less extensive cases.   Others just have weather sensitive pain.  Learn more about these syndromes at piedmontpmr.com.

[kswails]

Pearls Of POTSitivity

Check out my blog!! In a world full of chronic illnesses and disease, there is still room for hope, determination, and positivity.