Interview with Sydney Nolan From IOCDF
Hello Friends I am so sorry for the delayed post, but I am also very excited to being writing this today. I had the pleasure of emailing back and forth with Sydney Nolan the Communications Assistant of the International OCD Foundation. I wanted to interview her because I think it's important to know that there are foundations/organizations that can help those who struggle with this very issue. There are places and people you can talk to who's job is to help and provide possible solutions.
I hope this brings light for you and possibly answers.
Q: Please tell me a little about your Foundation.
A: The mission of the International OCD Foundation is to help individuals with obsessive compulsive disorder (OCD) and related disorders to live full and productive lives. Our aim is to increase access to effective treatment, end the stigma associated with mental health issues, and foster a community for those affected by OCD and the professionals who treat them.
The International OCD Foundation is a donor-supported nonprofit organization. Founded in 1986 by a small group of individuals with OCD, the Foundation has grown into an international membership-based organization serving a broad community of individuals with OCD and related disorders their family members and loved ones and mental health professionals and researchers. We have affiliates in 22 states in the US, in addition to global partnerships with other OCD organizations and mental health nonprofits around the world.
Q: What does your Foundation provide for those who are interested in learning more about OCD?
A: The IOCDF provides a variety of resources, from educational programs and awareness-raising events people can access in-person to information and resources available via our websites. Examples of some of our events include our annual 1 Million Steps 4 OCD Walk, held in cities around the country each June, the Annual OCD Conference held in a different major U.S. city each summer, and a series of professional trainings held throughout the year called the Behavior Therapy Training Institute (BTTI) designed to train about how to effectively treat OCD and related disorders.
Our websites are also great resources provided by the IOCDF for those interested in learning more about OCD. IOCDF.org as well as special sites for body dysmorphic disorder (BDD), hoarding, and pediatric OCD all have an incredible amount of information for individuals with OCD, families and loved ones supporting them, and even professionals looking for more information about OCD treatment and research.
One of the best resources on our website is the IOCDF Resource Directory. This directory allows you to search your local area for therapists, clinics or programs, support groups, and other organizations that specialize in OCD and related disorders, as well as other important resources such as local support groups, clinics, and our local affiliates.
Q: What should people look for in themselves or children if they think they may struggle with OCD?
A: Like the acronym suggests, OCD is made up of two parts — obsessions and compulsions. Obsessions are thoughts, images or impulses that occur over and over again and feel outside of the person’s control. People with OCD do not want to have these thoughts and find them disturbing. Most people with OCD also realize that these thoughts don’t make sense. These obsessions can range from more stereotypical portrayals of OCD you often see in the media related to contamination or cleanliness to other lesser known ones related to something like fear of losing control, harming yourself or others, or even unwanted sexual or religious thoughts.
The second part of OCD involves compulsions, or repetitive behaviors or thoughts that a person uses with the intention of neutralizing, counteracting, or making their obsessions go away. Compulsions can also include avoiding situations that trigger obsessions. Some examples of compulsions include washing or cleaning, checking, or repetitive behaviors.
We have a list of both common obsessions and compulsions here with more specific examples, for anyone interested in learning more or who might be wondering if they are struggling with OCD. Remember that only a qualified therapist can truly diagnose OCD, however.
In the context of OCD, obsessions are time consuming and get in the way of important activities the person values. This is where the final part of the acronym — the “D,” short for “disorder,” comes in. In most cases, individuals with OCD feel driven to engage in compulsive behavior and would rather not have to do these time consuming and many times torturous acts. In OCD, compulsive behavior is done with the intention of trying to escape or reduce anxiety or the presence of obsessions.
Q: What are some ways we can raise awareness about this cause?
A: Participating in events such as OCD Awareness Week each October or in the 1 Million Steps 4 OCD Walk, held in communities each June, are great ways start to raising awareness of OCD and related disorders.
We’ve also launched a new “OCDvocate” advocacy program for those interested in taking raising awareness to the next level by sharing their stories in an effort to promote understanding and fight stigma.
Otherwise, our OCD Awareness Week website has some ideas for raising awareness you can definitely carry out all year, ranging from writing a letter to the editor of your local paper about the importance of OCD awareness and other mental health issues to hosting a movie night with OCD-related films or TV shows.
Q: Are there any ways to cure OCD, or make it easier to live with it?
A: While there is no “cure” for OCD, the most effective treatment is a form of therapy known as “exposure and response prevention” (ERP) and/or medication. Taken together, ERP and medication are considered the “first-line” treatments for OCD. In other words, START HERE! About 70% of people will benefit from ERP and/or medication for their OCD. We have more comprehensive information about ERP and medication, including tips on how to find the right therapist and make sure he or she is qualified to treat OCD, on our website.
Q: Where can one go to find help if they believe they or someone else deals with it?
A: Exposure and response prevention, the frontline treatment for OCD, is typically done by a licensed mental health professional (such as a psychologist, social worker, or mental health counselor) in an outpatient setting. This means you visit your therapist’s office at a set appointment time once or a few times a week. The IOCDF Resource Directory is an excellent place to find a qualified treatment provider in your area.
Likewise, medications can only be prescribed by a licensed medical professionals (such as your physician or a psychiatrist), who would ideally work together with your therapist to develop a treatment plan. You can also learn more about medication on our website.
Q: I see you provide a membership, can you please provide a little more information?
A: Members play a critical role in helping support the work of the International OCD Foundation. We offer a variety of membership levels, including a low-cost Community Membership option, a Foundation Membership for individuals and families, and Professional and Student memberships for those in the mental health field. While membership dues play a crucial part in helping us keep costs low for the many programs and resources we offer, members also receive a unique set of benefits dependent on what kind of membership they hold. Anyone interested in learning more about becoming a member of the IOCDF can visit the membership section of our website or email [email protected].
Q: What are some ways to get more involved with your Foundation
A: First, consider joining us as a member! You’ll receive regular Foundation email updates so you know what we’re up to, as well as receive our quarterly newsletter that contains the latest information on advances in research and treatment for OCD and related disorders, as well as member-submitted stories, poems, artwork, reviews, and more from the “front lines” of the OCD community.
You can also consider joining us at an event! You can walk with us each spring during the 1 Million Steps 4 OCD Walks, attend an Annual OCD Conference in the summer (our 2016 Conference will be in Chicago!) or participate virtually or in your own community in an OCD Awareness Week activity in the fall. The more the merrier are welcome to get involved in one of our programs.
For those in the Boston area, we also have volunteer opportunities for anyone interested in visiting us at our office for a few hours once a week. You can also reach out to an IOCDF affiliate for opportunities or check out some of these general volunteer opportunities.
I would just like to take this time to thank Sydney over at the IOCDF for responding to me so quickly, and helping me raise awareness over this past week, and providing amazing tips and information. I hope this can help you and encourage you to go find help and start living life more abundantly and with even more purpose.
"Heal the past, live the present, dream the future" -Unknown