LA Lupus Lady Finding the Flair

Sharing my passion while finding my flair. Living with Lupus and sharing that "Lupus Awareness is Fun!"

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Inspired by @inezandvinoodh and the Gagosian LA exhibit.

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Left or right? Summer flower question.

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Mack the Molecule explains “What are T cells?” in this short video found in our newly created Lupus Glossary.  .

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Love learning about lupus with Mack!

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How do we find and sharing meaning in the "State of Now" ~ here's my story about the night before the #140conf12

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Lupus Community Gather for the First Congressional Lupus Caucus

Last week, members of the lupus community gathered in Washington, DC for the first Congressional briefing on lupus.  The meeting of the Congressional Lupus Caucus gave those attending a chance to share their personal stories and tospeak about why supporting lupus research and considering future policy is vital for advancing treatments and ultimately finding a cure for lupus. 

Karen Geisenheimer Morris attended with the Alliance for Lupus Research (ALR) and says, “It was an honor and privilege to speak to Congress on behalf of the ALR and themillions of people who share my struggles and frustrations with this terribledisease.   It was very encouraging to see the large number of Congressional attendees and their enthusiastic response to our meeting. While this has been a rough road, it is important for us to get the word out there.”

Click the picture of Karen speaking to the Congressional Lupus Caucus for the full story.

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Here's the story about me and my niece and celebrating her birthday in New York City!

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My first post about taking "Lupus Style" aka #LupusStyle to New York City.

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Have you seen Mack the Molecule’s video about our virtual walk?  Watch it and see how you can “get in on it.”

Summer is the right time to plan and start thinking about your virtual walk team and event.  You don’t have to wait… create an event and build your team today.  While gathering with your friends and family over the Fourth of July, get them to join your team.

While applying your sunscreen before getting in the pool, talk about why you are getting in on it with a virtual walk (or event).  Now is the time to get creative and have fun.  You may choose to “Strike Out Lupus” with a bowling or baseball themed event or walk around a local park or landmark, hosting an open house works too.  The details are up to you.  Remember that 100% of every dollar raised through each virtual walk goes directly to fund lupus research programs.

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Having Lupus means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about Lupus and its effects, and of those that think they know, many are… actually mis-informed. In the spirit of informing those...

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We had a busy and fun Lupus Awareness Month 2012.  From Collaborating for a Cure on World Lupus Day to our “Walk with Us to Cure Lupus” Walk events across the country, we hope you enjoy the video! 

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This is a post about a day when my passions collided in New Jersey at the 2012 Alliance for Lupus Research "Walk with Us to Cure Lupus" ~ 

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Tiffany and I are "Friends Against Lupus" 

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Through the end of May any and every donation you make to my NYC Alliance for Lupus Research "Walk with Us to Cure Lupus" page will be doubled... Hubby and I are going to support your support "dollar for dollar" Read the blog for more details... Happy Lupus Awareness Month!

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Kelly Ripa is in on it!  Are you?  The Get In On It campaign from the Alliance for Lupus Research launched on World Lupus Day 2011.  Get In On It inspires people to take action and rally behind our mission to find better treatments and a cure for lupus.  Lupus affects over 5 million people worldwide.

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The Alliance for Lupus Research “Collaborating for a Cure” meetings and reception took place on World Lupus Day, May 10, 2012!  Researchers gathered to discuss and celebrate the latest research advances in lupus.