My name is Angie (my friends call me aeroangie, from My love of the band Aerosmith). I'm 45 years young, and I'm a badass warrior/spoonie.
I have endometriosis, diverticulitis, colitis, fibrosis, ptsd, anxiety, depression, chiari malformation and drum roll please now currently battling bacterial meningitis.
I had brain surgery march 29th and have been in hospital since March 14th. My legs and feet stopped working and I would just fall to the ground. A mri showed 3 spots on my back. A deteriorated disc, slipped disc's and a syrinx (chiari problem). A surgeon came in to say he wanted to fix the problem asap. I agreed to spinal fusion as I had no date yet for brain surgery.
I was admitted to hospital (already waiting for over two years for the decompression surgery) then the neurosurgeon called me with the new surgery date. It had been pushed too many times because of covid and my OG surgeon had to quit his practice due to having a brain tumor. So this meant no spinal fusion yet.
I only was in the hospital for 3 days after brain surgery before being transferred back to this one. They all said I needed to have spinal fusion if I wanted any feeling in my legs/feet. But I started to feel unwell and wanted the pee bag out because I was worried about an uti. They removed the cathader and immediately I started feeling better. No more chills or fever. But I really didn't want to have the spinal surgery so soon after.
The next few days I was feeling off but knew I wasn't doing much in hospital but told the nurses about a rash that appeared all over my body. After mentioning it to the floor doctor a few times, he gave me cream.
I woke up Tuesday morning with a blinding headache that nothing touched the pain. I was crying so badly that I started to vomit. A team of nurses and iv techs all tried to get blood work unsuccessfully.
The next day the pain was full blown out unbearable. I couldn't see, eat, drink or talk. I needed blood work still but nobody could get it. The doctor ordered a picc line. In the meantime I was basically unconscious. I could hear things but could only moan in pain. I had a CT scan done, picc line put in, then a scary lady came in from infections diseases control to say they thought I had meningitis. I was so confused. How could I have this? That's for kids. I went for a lumbar puncture to confirm I had bacterial meningitis. Later that same day my stitches git out and I had mri done. They started antibiotics before all the testing and that's what saved my life.
I spent 2 days in and out of consciousness and trying to keep my husband up to date on what was going on. I Also needed to talk to our son. I was afraid to die and wanted to make sure he knew I loved him. The lumbar puncture had me on strict bedrest which also meant no visitors.
Eventually my head pain and neck pain improved. I stopped throwing up. Fever had been 104 at one point (39.9) and it was back to reg temps. Of course my neck is still painful where they're moved parts of the bone. But it's controlled with antibiotics.
It's been less than a week and I still have some meningitis symptoms but antibiotics are working.
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