Ill render this at some point but for now take this cat
Fai_Ryy
PUT YOUR BEARD IN MY MOUTH
The Bowery Presents
Noah Kahan
macklin celebrini has autism

oozey mess
hello vonnie
he wasn't even looking at me and he found me

Discoholic 🪩

Love Begins

Andulka
No title available
No title available
we're not kids anymore.
2025 on Tumblr: Trends That Defined the Year
Misplaced Lens Cap
official daine visual archive

ellievsbear

No title available
trying on a metaphor
seen from United States

seen from Ireland
seen from Argentina
seen from Brazil
seen from Tunisia
seen from Argentina
seen from Philippines
seen from Türkiye

seen from Bangladesh
seen from Argentina

seen from Ecuador
seen from Türkiye
seen from Moldova

seen from Brazil

seen from India
seen from New Zealand
seen from United States

seen from Türkiye

seen from United States
seen from Thailand
@littleelectric
Ill render this at some point but for now take this cat
Some Amy sketches
Wayfaring stranger
oh brother
Little Bingqiu fluff comic from brainworms
hello EDS people. calling all EDS people. especially if you live in Victoria, Australia like me.
what is the process of evaluation like? what kinds of tests do they do?
I have been informed that I should discuss this with my GP and get a referral to a rheumatologist(?). I have been ignoring this possibility for years but given that I had an actual nurse informally assess me and on the basis of that tell me that I should get it formally assessed, I'm actually thinking of getting the process started with the assumption that it will take a long time.
also, not to be flippant, but what's the point? what will I gain by getting my fun joints assessed? why should I care?
and yes, while I was told to ask specifically about EDS, I do not have enough information currently to know either whether I would genuinely meet criteria for any kind of hypermobility, or whether Ehlers-Danlos is even the kind of hypermobility that would be relevant.
@thebibliosphere i think from memory you have EDS? sorry for the ping but I just want to be faintly prepared before I go to my GP next week.
funny fact: it was actually a crisis assessment team psych nurse who was doing a holistic initial assessment and when I mentioned both ASD and potential POTS immediately asked whether I was bendy or not, then asked me to demonstrate specific joints. she seemed more interested in my bendiness than the "psychotic symptoms"... which were the actual reason I'd been referred to the CATT in the first place after coming out of the psych ward a few days earlier. I find this amusing. anyway.
I can’t tell you what the process of evaluation will be like for the area you’re asking about, but to address your “what’s the point?” point:
Ehlers Danlos Syndrome—and many other connective tissue disorders— affect Every facet of your health. From dental care to vascular health, to which antibiotics are safe for your tendon health, to straight up needing different types of sutures, anesthesia, and recovery care after surgery.
And that doesn’t even begin to cover comorbidities like POTS, MCAS, fibro, etc and general quality of life.
It’s also important to determine which type of EDS you might have because it can help with preventative care for your future based on the specific subtype. There are some very specific health complications that can occur and knowing if you have EDS can help you take preventative steps, but also hopefully ensure you get the care you need more quickly in the event something does go wrong.
I have hEDS and while my joints are garbage, it’s my immune system that’s more heavily impacted, as well as my internal organs which have tried more than once to become external of their own volition. I also had my Achilles tendon rupture spontaneously after being given an antibiotic (ciprofloxacin), which can affect connective tissue, even in people without Ehlers Danlos Syndrome.
To put it bluntly: it’s not just your joints, it’s all of you. And all of you deserves care ❤️
thank you! I will bring it up with my GP next wednesday for sure then. everybody cross fingers and toes for me (but gently. please do not overextend.)
also, in the process, should I specifically mention that my dad is Highly Suspect also for various of these things and I am casting an eye at him too? my GP is also dad's, and I've told dad before that there are certain things he should bring up to the doctor (e.g. his funky reaction to local anaesthetics that mean he's happier to go without than to have to suffer the weeks of agony that follow an anaesthetic that doesn't even help him), but he always just goes 'oh well' about them because he doesn't care enough about certain aspects of his health that he has decided do not matter. I'm assuming family history of flexibility is at least moderately important to mention, but none of us have a diagnosis of anything that I'm aware of. ...maybe I drop that on the family chat just to double-check my bendy sister hasn't snuck off and got her a diagnosis of something though.
I would yes. Amusingly, my diagnosis led to my mother getting a “this is very likely what is wrong with you” comment from a plastic surgeon following her double mastectomy, when her wounds just refused to heal.
I was on the phone to my dad during the doctor rounds while they were talking about wound care and I was trying to be like, “hey did anyone tell them I just got diagnosed with EDS.”
And suddenly I could tell the plastic surgeon had crossed the room because his voice, which had been much further away, was suddenly right there and he said, “say that again.” And I explained I’d been diagnosed with hEDS a few months before and you could hear the unspoken “son of a bitch!” In his voice, because if he’d known there was a history of EDS in the family, he would have done her surgery differently to accommodate her wound care needs.
So, yeah. Bring up family even if they’re unwilling or unable to get a diagnosis. My mother constantly having premature babies in the third trimester was apparently an indicator of connective tissue issues not being supported that to this very day she still blames on herself for drinking too much caffeine.
Family history of Weird Stuff matters.
Have a Monday Mourning for pride!
🍃wip
Shizun can never say no to Bingpup
new ocs ref yay
today i have a study for you guys
sometimes i hit a flow state when painting pants and it makes me happyyyyy
teamwork makes the dream work. and dreamwork. makes shrek
fantastic. i love it. i posted this after my wife said it yesterday and as i was doing it i was like "this can't be an original thought. as soon as i hit post someone's going to say 'you stole this from a tweet from 2014' and i'll say 'no, i stole it from my beautiful wife.'"
oh my bingqiu
To my favorite game and gang!
[ ArtFight 2026 ] [1] Leech Girl 🩸
for sylcona