B.

Take me as I am.

[letsbelonelytogetherr]

[throughthatlookingglass]

“Because to live in pain is to live in romantic appreciation of the simplest things in this life. To take delight in the mundane. To draw attention to the forgotten. We must use our pain as pixie ships to awaken the depressing shores of the ungrateful among us. It is our lot and our gift in a way.”

— Berette Macaulay (An extraordinary voice of reason in the chaos that is my life || http://sebiartfoto.tumblr.com/)

[chronicpainpartners]

Always reblog.

[sunsetquotes]

“Sometimes suffering is just suffering. It doesn’t make you stronger. It doesn’t build character. It only hurts.”

— Kate Jacobs; Comfort Food

[melrenee]

[mjalti]

having to be “mature” at a young age sucks bc you aren’t really “mature-mature” you’re a child playing at a maturity bc you don’t have the foundation to be the bigger person when conflict arrives so what you do is ignore it bc ignoring a problem and being happy about a resolution look the same to your inexperienced eyes. Then you get adults praising you for a development above your peers but you aren’t really developing. You’re stagnant. Your peers will grow up and experience things and make mistakes and grow from them but you will keep yourself in this box, ignoring things ignoring ignoring ignoring until one day you have to face the fact… it wasn’t maturity you had. It was fear. And now you’re an adult too and you make all of your choices based on an emotional risk/costs analysis bc you don’t know any emotion other than fear & you have to start healing from your own childhood by making peace that you weren’t really a mature child. You were just a child who was given too much to carry & didn’t know how to say “no”.

[iamatinyowl]

The thing about chronic pain is once you’ve had it for long enough you can’t remember what not being in pain felt like. You only recognize it as ‘not as debilitating as usual’ or ‘very much more fucking debilitating than usual’ so you have no grasp anymore of what it’s like to do things without factoring your pain levels in. People who aren’t in constant pain think that if you’re having a ‘good pain day’ it means you’re not in pain and should be able do to things. But having a good pain day doesn’t mean you’re not in pain, it means you’re in less than excruciating pain. Maybe your pain is low enough that you can ignore it. But people who don’t live in pain don’t understand that ignoring it takes energy, and even if it’s low enough that we can ignore it doesn’t mean it’s gone and it doesn’t mean we want to go out and do a bunch of things that will make it so bad it cannot be ignored.

[heavyweightheart]

the line between not going out as an act of self-care and not going out as a symptom of depression is but a gossamer thread

[gotchyagoat]

Do not tell someone with a chronic illness to “think positive”. Living in pain 365 days a year 24 hours a day is torture and it’s a miracle we can think at all and don’t lose ourselves completely.

[phloxy-foxxy-deactivated2022062]

Shoutout to all the people who grew up dreaming big only to have chronic illness take your dreams away

[purplebuddhaproject]

“Pain changes people, it makes them trust less, overthink more, and shut people out.”

— (via purplebuddhaquotes)

[youngchronicpain]

If someone loves you they will care about how your body feels. Living with chronic pain is tough, and it permeates every inch of our lives. I’m not saying the people around you have to be perfect but they should care about how their decisions can negatively affect you. Expecting you to go to events that hurt you, saying you complain too much, being entirely thoughtless in regards to how your body functions, it isn’t okay. So let’s all stop pretending it is. 

[angelsfuckanddevilskiss]

How to piss off a spoonie

“Unlike you, I don’t have the LUXURY of laying around at home all day”.

[my-person-suit-is-defective]

Person: I don’t really think your symptoms/illness/condition is actually as bad as you say it is…

Me:

[cimcaptions]

[gif of Chris Pratt in Guardians of the Galaxy Vol. 2 saying “It’s worse. It’s so much worse.”]

[remem-brandt]

the main thing about living with a chronic illness is that you just kinda get used to it. you’re USED to being in pain. you’re USED to being tired. it isn’t until you talk to non chronically ill people that you remember that this isn’t normal.

[angryspoonie]

Things I wish abled bodied people understood about disabilities and chronic illness

Not all sitting is created equal. Yes, I’m more likely to come out and do things if those things include sitting and not a lot of physical activity. the fact that I have so many people who actively take that in consideration is honestly amazing and a blessing and I appreciate it more than they know.

But the thing is, on the bad days? Or even the mildly worse days? It doesn’t matter that what you’re inviting me out for is dinner and movie. Because the thing is, I still have to sit in a certain way during the duration of that movie or dinner, or whatever we’re doing together. I can’t lay down because my back spasmed and tweaked, i can’t shift my body so that more weight is taken on one side than the other, because that side is being a little bitch and throwing a fit.

So, when you come up to me, and ask me if I want to go do x, y, or z. And I say no, I’m tired, I hurt. And you come back with but you’re sitting here. And you just have to sit in this other spot. No. Because I typically have arranged my body in a very specific position to find a semblance of “comfortable” and I can’t sit like that in the outside world.

So no. It is not in fact the same as sitting at home. And please don’t get irritated at me because I said no. There’s always a reason behind it, even if it doesn’t seem like it to you.

[rosslynpaladin]

Weird Experience: Comforting people as you explain your Chronic Condition

Empathy can have funny effects when you have to try to get people to understand your diagnosis/life with an Chronic Illness. 

It’s like you have to ease them into the idea, and then pat them on the back and try to cheer them up while it sinks in for THEM that YOU have an incurable condition. 

Their entire world view is predicated on the idea that “all illness is temporary”. They genuinely cannot cope with the idea that someone will not Get Well Soon. And YOU have to be one to ease them through this existential crisis.

You can’t just say to people, “No I am not doing anything much until the one thing at the end of this month, because I am still sick, and will be still sick for the foreseeable future. Getting into a remission will require a few years of steady slow work which might not have any effect even if I do everything right. I am sick. I shall be sick. This is my LIFE now. I’m sad, yes it’s not what I wanted, but I’m a person not a tragedy so hold off on the pity okay?. No, there’s nothing to be done but what I am already doing. “ 

And you can’t say this because THEY will panic and be offended by your total bluntness. 

You have to protect their emotions about your condition. It’s weird. And an exhausting dance to do over and over again.

[cat-with-horns]

Trade