i’m not sleepy in a cute way but in a chronic depression and insomnia way
Mike Driver
Xuebing Du

#extradirty
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Keni
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he wasn't even looking at me and he found me
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@melrenee
i’m not sleepy in a cute way but in a chronic depression and insomnia way
Things I've learned since becoming ill...
• It’s nobody’s fault. It is genetic. It just happened.
• Do not be too proud or stubborn to ask for help. You need it.
• Brush your teeth and wash your face (even just with a baby wipe) everyday if you’re able to do so. It makes you feel more human.
• Shower or bathe whenever you are able to. Good personal hygiene is good for your mental health.
• Some people will leave. You don’t need those people. Others will stay and they are wonderful human beings.
• You are not a burden. You are not useless. Do not be guilty. Please. Guilt will eat your insides.
• You have not lost who you are. You just now have to make adjustments to accommodate this new thing.
• Accept the fact that you have an illness. Being in denial will only make your mental and physical health worse.
• Clean pyjamas are a divine gift. As are clean bedding and blankets.
• Self care is entirely subjective. If you want to do yoga then do it, if you wanna sit and eat takeout in front of the TV in a squirtle onesie then that’s fine too. Whatever makes you feel good, or at least better.
• If you are tired then rest. Do not burn yourself out. It doesn’t matter what time of day it is, if you need a nap then you have one.
• Talk. Write. Sing. Paint. Draw. Dance. Do something to express your feelings. Don’t keep them inside. You’ll explode.
• Don’t worry if you can’t adjust right away. It takes time. A lot of time.
• Do not feel ashamed or embarrassed. Unfortunately illness often has embarrassing symptoms or such. It isn’t your fault. People who allow you to feel embarrassed about such things are terrible people.
• Keep your sense of humour. Some days it’s the only thing that gets you through.
• There will be good days. Grab them with both hands and enjoy them. Savour them. Spend them doing things you love, things that you can’t do on bad days.
• Prepare yourself to the best of your ability. Like…always have a hospital weekend bag packed for emergencies, keep a bed day drawer or bag near to where you sleep, have food or snacks close by, always have a water bottle…
• Take your meds. Please. If you have a serious illness for the love of god don’t listen to the “big pharma” conspiracy theorists. You need your meds. They keep you alive. They enable you to function.
• Research your illness. Keep yourself informed. But don’t dwell on what might happen. Please don’t scare yourself.
• It’s okay not to feel positive all the time. It’s okay to feel down. It’s perfectly natural. But try to be as positive as you can. For your own sake.
• Your own health comes first. It’s not selfishness it’s survival.
• Be kind to yourself.
• The bad days can be horrific but the good ones are beautiful, and so worth holding on for.
• Don’t give up on love. Just don’t.
• You are a badass warrior.
Waking up every morning with extreme pain all over your body and exhausted like you had no sleep at all… and wondering what you can do about it but there’s nothing you can do about it. It’s been not months but years now and it will always be like that. So you just wait every morning, aimlessly.
I am too aware of my skin, of my own body. I wish it would shut up.
So true!
I want all the spoonies on here connected.
Reblog, follow or like to show how big the community is and to show you’re there for all.
Let’s keep the ball rolling! Let’s add more to the family! 💜
Thanks for the bump ups guys
I need some kind of spoonie support group so bad.
I am here for you!
I just came across this post as I was wondering if there’s a place on Tumblr for anonymous spoonie confessions. Seems like fate. Anyone got any ideas?
http://chronic-confessions.tumblr.com
http://chronicallyconfessing.tumblr.com
To all the people with a chronic illness
I never knew how hard it was to wake up in the morning and dread the day because my body hates me. I can barely eat anything anymore, and it’s a constant struggle of anxiety and pain. But at the end of the day, this is MY life, and I can’t let my illness control it. I hope everyone out there who is struggling with a chronic illness lets themself be happy. Your illness is not who you are. My illness is not who I am. You must take a step back and appreciate life and breathe. No matter how hard it is.
Following more spoonies! Friendly reminder to take your meds and rest bbys ily
Pete Beisner knows a lot about supporting a partner in pain. Here, he shares insights on how to take care of the person you love. OMG THIS IS AMAZING GUYS! I NORMALLY READ AND CARRY ON BUT I JUST FELT LIKE THIS HAD TO BE SHARED!
Trying to remember if I just took my meds or not...
All the time!
Mishka’s Malfunctioning Meatsuit
Hi there, welcome to a tale of terror and…bad things. Objectively bad things. I’ve been struggling with chronic pain for several years. Myofascial Pain and Fibromyalgia really know how to make a woman have a bad time, and I only recently managed to start getting treatment. (a.k.a I finally found a doctor who actually gives a shit and we all know how rare that is.) It’s been tough and it’s impacted my ability to work tremendously. It’s also impacted my ability to enjoy anything in life but that’s a given and no one really wants to hear how you’re a killjoy now because of medical issues. Self treatment is nowhere near as beneficial as treatment by a specialist. Trust me. Unfortunately, treatment is damn expensive and wow, I need help and it’s time to admit that.
If you want to help me out, here’s my gofundme: https://www.gofundme.com/mishkasmeatsuit
If you cannot help or simply do not want to but kinda wanna be a little nice, you can also:
A) Share this and maybe it reaches someone having a spur of generosity. Crossing my fingers that its the maddening kind.
B) if you’re rich and reading this, you kind of owe me because I’ve defended capitalism at least 3 times in my life
C) if you’re a fan of Bayonetta and see a resemblance in me, you should be overcome with desire to help me and yes, I will wholeheartedly accept your help, thank you.
D) I have cat ears in my photos. That’s reason enough to help me. Do it for the cat ears.
Paypal is also an option:
Click the money cat. it’s a literal money cat.
In all seriousness, I would genuinely appreciate any help.
Suddenly running out of spoons like
[Black and white gif of a woman fainting onto a plush rug.]
Pretty much how it feels!
Ten years ago, I was about to get sick I cannot remember it I cannot remember waking up at 7am, 5 days in a row Week after week after week I don’t remember if it was easy but I remember it was possible I cannot remember when nothing ached When if I didn’t walk, it was because I was lazy Not because I couldn’t
I cannot remember When taking a shower Was relaxing Instead of exhausting
I cannot remember When I wasn’t a burden When I was fun And energetic And up for anything And no one had to slow down or miss out Because of me
I cannot remember How it is to remember When I didn’t need to write anything down And didn’t break promises And didn’t forget my own name When I knew all the words I needed When everyone said How eloquent I was I can remember everyone said it But I can’t remember being it
I cannot remember Being upright all day And never lying down Or counting the hours From painkiller to painkiller
I cannot remember Reading page after page for hours For fun And understanding every word Without reading a line twice over Or three times, or five And without feeling like a failure
I cannot remember No pain I cannot remember it What did I do? Did I walk faster? Or further? Did I stay out all night? Or did I just sit around? Without knowing that one day Just sitting around would be all there was And even then The pain wouldn’t end
I cannot remember Having energy instead of pain I cannot remember Concentration and memory And still knowing how my sentence had started When I got to the end
Two thirds of my life, I was healthy And I cannot remember