couple months ago but how good does my arm look here?!
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Sweet Seals For You, Always
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Sade Olutola

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YOU ARE THE REASON

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Peter Solarz
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we're not kids anymore.
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@lxttle-lou-blog
couple months ago but how good does my arm look here?!
I need some tumblr friends, hit me up
⚫️⚫️
just a wee selfie 😝
oh dam😵
I didn’t choose the lesbian life. The lesbian life chose me.
(via bromeliaearheart)
The world has bigger problems than girls kissing girls and boys kissing boys.
(via constantlyrunningfrommyproblems)
me: hello darkness my old friend
darkness: new phone who dis
my wee cutie
Please help me spread awareness about Huntington’s Disease.
If you don’t know what Huntington’s is.. please take time to click on my link and have a full explanation on what Huntington’s is, the symptoms and my story on why i am doing this jump.💓
Thank you all X
So there's somthing I think I need to talk about. To me it's very important and not many people know this about me. My real daddy that is still in Iowa has a disease called Huntington's Disease. Im sure a lot of you don't know what it is. Mainly it's a disease that slowly over years kills your baincells. In the process it aslo kills you. There is no cure for this horrible disease, and as it progresses it makes it so you can't do anything for yourself. Now my daddy is soon to be 60 and he can't walk, talk, feed himself, go to the bathroom, dress himself, and more then likely it makes it so your not even the same person. Your memory goes, luckly he still remembers me and my family. My daddy is the strongest person I know. At this point in the disease he shouldn't still be around. But he's been hanging in for years, I've never been so proud of anyone. He truly is my best friend and my hero. Now he's never been your typical dad, but he's always been the best one he could. He taught me how to play guitar when I was young. He taught me what it was to be strong. He taught me so many things I could go on for hours. I remember all the good memories we have and it tears me up inside to see him the way he is now. But no matter what he's always gonna be my daddy. No matter what, im always gonna be proud of him. When I was younger I didn't really know how to react to his disease. I would try to hide it. When people in stores would stare i'd feel so ashamed. But the biggest thing he taught me was not to care. Now that I'm older Im not ashamed anymore. I walk right into stores holding his hand, pushing his wheel chair. Like I said before as late as he is in this disease, he shouldn't be around. He can't talk but for some reason the only three words he can mumble are I love you.
Me, my daddy & my mom.
💕💕💕💕💕💕💕💕
Huntington's Disease Sucks
My wife has Huntington’s Disease. She inherited this condition from her mother, who suffered for years and died a few years ago due to its devastating effects. This is a genetic mutation; an autosomal dominant, non-curable, fatal disease. It exists in every cell of your body, but wreaks havoc on the most important ones…particularly the neural cells in the brain since they are the most complex. Depending upon the extent of the mutation your body can fight it for a number of years, but eventually cells begin to die and all sorts of things go wonky.
Usually it starts with cognitive issues such as mood swings, anxiety, depression, and other behavioral issues. As other areas of the brain start to struggle the person may develop issues with memory, processing, obsession, perseveration, or communication. Eventually autonomic response and motor function declines leading to things like choking, rigidity, uncontrolled movements, balance and gait issues. Your brain is dying! At the end of it all most patients are financially devastated, bed ridden, on feeding tubes, completely reliant upon others for their care, unable to communicate effectively, on multiple medications, and often in pain. At that point, other than their caregivers these wonderful people have quite often been completely abandoned by many of their friends and family. This may very well be the worst part.
I did not understand all of this when we got engaged, but have learned a lot more about it throughout our 18 years of marriage. Having watched her mom go through this I am very aware of what this does to people. It is a devastating, emotional disease that leaves a mark on everyone involved. I also have two children who are at-risk for HD; each has a 50/50 chance of developing it.
My wife is already on disability from work and dealing with cognitive issues, anxiety, depression, balance, and fatigue. She’s doing her best to stay positive through this, but many days are a complete struggle.
I am committed to seeing this through to the end for my wife, and my children if possible and necessary. However, I must admit that I am scared of what the future holds.
Sending you, your wife and all of your families love ❤️
Huntingtons.
Today I had one of the most grounding and saddening experiences of my life. Today whilst visiting the hospital, I met a man living with Huntington’s disease.
For those of you who are unaware of this condition, Huntington’s disease is a progressive hereditary movement disorder, a neurodegenerative condition that affects muscle coordination and cognition. Essentially, a mutation in one gene (Huntingtin) leads to the formation of defective proteins that then go on to damage the brain, particularly those areas associated with the control of movement. The most characteristic symptom of Huntington’s disease is chorea, involuntary and uncontrolled movements which are incredibly dysfunctional and debilitating. For a long time, the condition will result in a person with a relatively intact mind, trapped inside a non-responsive body.
Symptoms usually begin to occur when the individual is in the prime of their lives and unfortunately, there is no cure. The physical capacity of the person will slowly decline until movement ceases to occur as the individual battles with cognitive effects and conditions like dementia. Neurodegenerative diseases are terrible, but this has to be one of the worst.
The man I spoke to today was unaware of the disease prior to his diagnosis and only sought out his doctor when he began to notice a generalised lack of coordination. He has now been living with the diagnosis for 7 years, and in that time, has deteriorated quickly. As I sat there talking to him, you could see his frustrations as he failed to control his limbs, lacking the ability to sit still. His wife, seated by his side, spoke to me about the difficulties they face day to day in performing simple tasks and how much their life has changed in such a short time.
I could literally feel my heart sinking within my chest as they proudly showed me photos of their two children, knowing full well that both have a 50% chance of suffering the same fate.
Today was a difficult day for me, but absolutely pales in comparison to the difficulties patients with neurodegenerative diseases face each and every day.
So I met my dad’s sister who is also affected by Huntingtons Disease. She was having trouble talking, walking and eating/drinking. Then I asked what her CAG repeat number is and its 49.
the same number as mine.
she got her symptoms at 25.
twenty-fucking-five.
im only 19.
that means there is a possibility that i could get symptoms in 6 years.
but everybody is different.
i just need to keep telling myself that.
<b> Be brave </b> - Huntington's is fucking horrible, I recently lost a very special man due to this and another amazing young man i care for is facing whatever is next to come at his stage... I want you to know, Huntington's will never be able to break you as a person, you are you, and you're fucking amazing. Sending you love ❤️