Made For Us @madeforus - Tumblr Blog

#maternityphotoshoot

Brunch at Amy's with @sotg_

Brandon,

You photographed my wife Megan and me on New Years Eve in 2013, on fifth avenue. We were on our way from the opera to ring in 2014 at the 21 club. When you shared our photo on your site, your caption was that we met in Austria, on a train, in the snow.

On Monday Megan gave birth to our daughter Lotte (our first child), who had been diagnosed with a serious congenital heart defect (HLHS). On Thursday she underwent open heart surgery for nine hours. Although the procedure was technically a success, an unexpected complication prevented them from taking off the heart lung bypass in the OR. The surgeon made an unprecedented decision to keep her on ECMO (life support) for a few days to allow her heart to rest, so that they could try again to restart it.

She has basically been in stable condition, but over night developed some complications that necessitate trying to start weaning her off the machine today. I have no words to describe the torture we feel as parents, when all we can do is sit by our daughter’s beside, trying not to look at the tubes and wires coming out of her open chest, and holding her cold little hand. I had two magical days with Lotte, who before the surgery was basically a “normal” baby. We got to touch her, feed her, change her, and we’re so lucky to even see her open her eyes. I’m not a religious person so I’ve not prayed, but I constantly close my eyes and picture Lotte with her beautiful eyes open. I’m not sure I’ll ever see those eyes again, but I’m so thankful that I have them in my mind.

I wanted to ask whether you could somehow help us increase awareness of pediatric congenital heart disease, which is sadly not widely known and publicized. It’s especially hard for Megan that today is Mother’s Day, and perhaps you could share a photo of Lotte on your site. Doing so would not only inform your readers of this important and terrible condition, but help us hear the support of others.

Thank you so much.

Adam

First #MrSoftee of the year. #IceCreamMan

#icecreamman #mrsoftee

nbcparksandrec

madeforus

Crying my eyes out in anticipation...

sir-orfeo

—but you must obey the god within you, not the god within me.

C.S. Lewis, Till We Have Faces (via sir-orfeo)

emmagoodall

favorite female ensembles → troop beverly hills

madeforus

Currently watching...

solosoyyootravez

jenniferbarkley-deactivated2015

ohproserpine-deactivated2015053

Tell me about your despair, yours, and I will tell you mine. Meanwhile the world goes on.

Mary Oliver, excerpt of Wild Geese (via pippa-blackwell)

amythegloriouspond

madeforus

Merry December 10th!!

#community #nbc #christmas #shirley Bennett #merry #december

Wrapped some packages this morning #ChristmasPresents

#christmaspresents #craft paper #ribbons #gift tags

gohoneycocolove-deactivated2015

Chris Rock just said the most insightful thing on race

“ So, to say Obama is progress is saying that he’s the first black person that is qualified to be president. That’s not black progress. That’s white progress. There’s been black people qualified to be president for hundreds of years. If you saw Tina Turner and Ike having a lovely breakfast over there, would you say their relationship’s improved? Some people would. But a smart person would go, “Oh, he stopped punching her in the face.” It’s not up to her. Ike and Tina Turner’s relationship has nothing to do with Tina Turner. Nothing. It just doesn’t. The question is, you know, my kids are smart, educated, beautiful, polite children. There have been smart, educated, beautiful, polite black children for hundreds of years. The advantage that my children have is that my children are encountering the nicest white people that America has ever produced. Let’s hope America keeps producing nicer white people.”

http://www.vulture.com/2014/11/chris-rock-frank-rich-in-conversation.html