Chronicles of a Spoonie

I suffer from invisible illnesses EDS Fibromyalgia Endometriosis Migraines Anxiety/Depression Tumor on my liver GI issues IBS Bladder issues

[miraclechild95]

This popped up on my memories on snapchat this was 4 yrs ago... I miss him so much https://www.instagram.com/p/CdVdTGburjjH1ziuWoxR2-q5pNP1YsOB4UQcaw0/?igshid=NGJjMDIxMWI=

[miraclechild95]

This is possibly the hardest choose 10 photos I've ever had to do. I have roughly a 121 photos of this best boy and I wish it was on better terms but sadly today we had to put down the best boy out there. And for anyone who has ever met Simba you know just the sweet, loving and attention seeker that he was. And before you ask I'm not ok I won't be for some time. This cat loved everyone and everything he ever met. He was the perfect nanny cat he loved taking care of kittens and he loved his ppl. I love u my fur son and u will always be with me and I can't wait to see u one day on the other side of the rainbow bridge. R.I.P my handsome boy and I miss you https://www.instagram.com/p/CdRP2pfOqxTbDBkA0SEgTdIDBwFoYHEpeNirTk0/?igshid=NGJjMDIxMWI=

[miraclechild95]

Hi guys I am looking for ideas and or tips on how to style my hair so if yall knw of any please comment or DM me or even send me YouTube videos I would be very grateful!! Thank you https://www.instagram.com/p/CdOfugfrs3xkqn7008bPyPVzKxuUmuovh8KXTo0/?igshid=NGJjMDIxMWI=

[miraclechild95]

The difference between one day from the next. I went into a really really bad pain episode at 7pm last night and it has continued to today. It's been a really rough night. Please send good vides https://www.instagram.com/p/CdGQcqbL2pdufByYwP9ldrHob1tLI-OTZAQhw80/?igshid=NGJjMDIxMWI=

[miraclechild95]

They say fake it till u make but what happens when the faking is wearing thin and it's not as "easy" as it once was what happens when that veil is thin? It's hard to love urself when ur mind and body routinely tries to kill u. But im trying... https://www.instagram.com/p/CdD1ZSIrVgk8bxQOalh3D_K6E4DafijZLaPfw80/?igshid=NGJjMDIxMWI=

[miraclechild95]

We celebrated Easter this past weekend and I tried to style my hair a bit and got to put on a real shirt I felt super cute!! https://www.instagram.com/p/Cc0T5ugLEKrFBUByqvtYQ3y-4OHYNQyBIQCdEU0/?igshid=NGJjMDIxMWI=

[miraclechild95]

Surprise!! I cut all my hair off and I love it! And u promise I will learn how to style it. But thank you to my sister @syd_nix for cutting my hair and spending hrs trying to figure it with me lol love u!! https://www.instagram.com/p/CcuH1BTsFJNowIkg02iS3G-eQJ3G0TLWYvX_iQ0/?igshid=NGJjMDIxMWI=

[miraclechild95]

I was discharged yesterday. I did have a MRI whihe in the hospital and the results came back normal and with no obvious reason for my back and legs to hurt the was they do. I am extremely exhausted and still in a lot of pain but I have my wednesday by my side lol she has not left my side once since figuring out I was home lol. I see my pain doc on Tuesday and thats when we will discuss what the next step might be. The staff at CJW the sitters are so amazing, the nurses and techs worked their asses off to help me! They worked really hard to help me get to the commode, to make sure I got my meds on time, and when would into a really bad episode they would they would hold my hand try to comfort me until it and i had calmed down. I wish I could hose hugged before I to thank giving them for going above and beyond. Thank you yet for ev6 (at Johnston Willis Hospital) https://www.instagram.com/p/CcXGnfROhjVaXfEiRWHzEwPrwZJ5hzhZrTsP9M0/?igshid=NGJjMDIxMWI=

[miraclechild95]

I want to thank everyone for the birthday wishes on my birthday!! https://www.instagram.com/p/CZQJaVwLZJ9mtbhS3BurNLDEkyIHXDVFh4jyl80/?utm_medium=tumblr

[miraclechild95]

Wednesday still doing what she does best. Being my nurse and taking care of me when I'm in a lot of pain. She's so perfect! #catsofinstagram #catlife #calicocat #calico #emotionalsupportcat #emotionalsupportanimal #eds #edsawareness #fibromyalgia #fibro #fibrowarrior #spoonie #spoonielife #chronicillness #chronicpain #spooniestrong https://www.instagram.com/p/CZAndYKrYVLlKKvw7fIlS8MVmygoM3DotnIxoY0/?utm_medium=tumblr

[miraclechild95]

I'm so happy I got to wear this to a Halloween party this yr! I'm paying for it but I got to see good ppl! #leia #slaveleia https://www.instagram.com/p/CVoxmLyL88LPkN2yTM6B9LVMjnUWD9KzxSf_vg0/?utm_medium=tumblr

[miraclechild95]

I knw the second looks like im choking her bet I swear she is very happy lol 😂 #chattycathy #catsofinstagram #catlife #calicosofinstagram #calico #emotionalsupportanimal #emotionalsupportcat #kittycuddles #cuddles https://www.instagram.com/p/CTX4aY5HqDer9gyOtvBfNnd9_ur2ZGyXPR4WcI0/?utm_medium=tumblr

[miraclechild95]

This was last week https://www.instagram.com/p/CSmqUkoHbMLTAHLudTEEsOHkoYIMh5pS8A0TiQ0/?utm_medium=tumblr

[miraclechild95]

I am here to officially introduce the newest member of the family!! Guys this is Inari!! She is very sweet but also an absolute crackhead with ZERO fear! Her and Wednesday r similar but on two different spectrums socially lol Wednesday is quick to hide and Inari takes it as a challenge and she must fight it!! Can't wait to post update everyone as she grows!! #chattycathy #kitten #kittenplaytime #kittensofinstagram #catsofinstagram #calico https://www.instagram.com/p/CR92FoHHZjOwQvUbp5X9XyQAX3COzVGKl2dqMs0/?utm_medium=tumblr

[miraclechild95]

These videos may be disturbing for ppl so if u r not comfortable seeing these please DO NOT watch!! And pls no hateful comments. So this is an update on me currently. I am currently in the hospital do to severe pain in my legs and the pain in my legs is causing body ticks so bad the I lose control of my body. As u will see in the videos I am twitching and spasming. My head contracts to the left and it looks a lot like when ppl have a tourette tick attack. These tick r very painful and they happen has the pain in my leg gets high. I'm assuming it's some sort of stress tick and that my body can no longer cope with the levels of pain I'm in. I am ok as long as the pain is low but once it jumps up the twitching starts and then escalates. Doctors r trying to figure out y my pai. Is so bad. I am not here to get pitty I just want ppl to see this and if u r going through something similar that u r not alone. Thank u guys #ehlersdanlos #ehlersdanlosawareness #edsawareness #edswarrior #ehlersdanlossyndrome #eds #edsstrong #fibro #fibrostrong #fibrowarrior #fibromyalgia #fibromyalgiaawareness #spooniestrong #spooniesupport #spoonielife #spoonie #spoonies (at Johnston Willis Hospital) https://www.instagram.com/p/CRcC2-DHchxGWufzwVWf7SzMeylvas1ngWnqYY0/?utm_medium=tumblr

[miraclechild95]

I am very tired and in a lot of pain but really wanted to be in water so I settled for the dogs pool. I wasn't out there long but at least I got out of my room. #ehlersdanlos #ehlersdanlosawareness #eds #fibro #fibrostrong #fibromyalgia #spoonielife #chronicpain (at Powhatan County, Virginia) https://www.instagram.com/p/CQwqe7lnqVJSudDc5zmi5egOeTvvPgN0DoEHJc0/?utm_medium=tumblr

[miraclechild95]

My girl doing her job! It's been rough recovery form our trip to St. Augustine and she made sure to tell me that im a bad mom for leaving her and that it's never allowed to happen again! Lol I missed my sweet little princess! #emotionalsupportanimal #emotionalsupportcat #catsofinstagram #calico https://www.instagram.com/p/CQfCcjmHuLUJs83iaD00j5F310GeTBryU9iUBE0/?utm_medium=tumblr