Love & Hope
I vividly remember pulling up to his school and seeing his class outside on the playground. I looked for him among the crowd to dote on him from my car for just a moment, but what I saw wasn’t what I expected. Behind the crowd of laughing children, in the far corner, there he was. Playing alone. I remember thinking “maybe he’s just shy.” While being timid isn’t a cause for concern, I must of had a subconscious intuition because my heart sank.
He had this obsession with arranging his toys and would “work” on aligning them so perfectly for hours, but he never actually played with them (or at least what I would of considered playing). I thought that maybe he had a touch of OCD. My heart, however, knew there was something more there as it hurt a little every time he wasn’t interested in pretending our living room floor was lava or that he was a superhero.
He began getting in trouble at daycare for his temper. It broke my heart to think that maybe he was upset that I had to work and was displaying his anger over our separation with aggression. His teacher suggested a program, Tuesday’s Child, for a preliminary evaluation. I figured it couldn’t hurt.
My heart was in my throat every Saturday over the 6 week duration of the program. Nervous for the results, anxious for answers, but in a way, also relieved to be among other parents whom had similar experiences with their children. “Possibly ADHD, but he’s too young to diagnose” the program supervisors said. While I let out a sigh of relief sitting across from the director that day, something still did not satisfy the overwhelming feeling of uncertainty in my heart. “Well, they’re the professionals,” I thought.
A little over a year passed. He became impulsive and unpredictable: throwing tantrums and fits over automatic hand dryers in public restrooms and randomly making loud alarm sounds. I thought, “he needs to be reevaluated.”
As I sat across from an early-childhood psychologist, he said “he meets all of the criteria for Aspergers Syndrome, also referred to as High Functioning Autism”. I felt the tears welting in my eyes as my heart shattered into a million pieces. The doctor went on “…you know what I think? I think you knew all along.”
He was right.
Did I do this to him somehow? Is he going to be bullied? Why my son?Will he have friends? vaccines? Will he need special education classes? Will he get married one day? Can he play sports? Why couldn’t I protect him from this? If I promise God I will do anything, can he let my boy be ok?
It took some time, a lot of sleepless nights, and even more countless tears, but I’m finally starting to think clearly for the first time. He was showing me all this time that he was unique, but I couldn’t see it. I spent so much time mentally convincing myself out of what was right in front of me. I didn’t need to know everything about Aspergers, I just needed to know my son. I didn’t have to blame myself for his diagnosis, he didn’t. I didn’t have to feel sorry for him, because he wasn’t sad. He is still my perfect and healthy little buddy that I love more than my arms can stretch. Aspergers will never take that away.
Aspergers is what my son has, it’s not who he is. It does not get to decide what he is capable of or what his future looks like. It doesn’t get to weigh on my heart or take precious time away from us that should be spent setting up festivals with perfectly aligned toys or practicing fire drills with the most realistic imitation of an alarm sound you’ve ever heard. It might not be your “normal”, but it’s our normal. And you know what I think? I love our normal. There are still questions that I think of from time to time, but for the most part we take it one day at a time, with hope and love. Exactly what I have felt in my heart since the day he was born.














