Just another pain in the butt

Hi! I'm Annie. I'm 18 years old and I was diagnosed with UC when I was 14 and I was then re-diagnosed with Crohn's since I was 14 1/2. I've most likely had one since I was 13. I now have the diagnosis of Crohn's Colitis. I also have developing arthritis. This is a disease positivity blog that is also aware of the bad days. Occasionally, you will see me talk of my little sister, MK, who has Type One Diabetes and Crohn's Disease. You can also find my at my personal, likeawalkintherain.tumblr.com Feel free to ask me anything!

[it-is-ok-i-am-ok]

Me: I have a chronic illness.

Person: Oh I hope you feel better!

Me:

[morethanjustatummyache]

It’s been exactly one year since my last hospitalization and that’s really lovely

[spooniestrong]

[arthriticnerd]

I think one of the worst parts of having a chronic disease is how it sometimes just breaks you.

You can have several bad days in a row and handle it fine; then one day you lose it because you’ve gone so long taking it that you eventually get to a point where you just can’t do it anymore.

You’ll try to open the dryer door and can’t.

You’ll be cold and won’t be able to get warm. The kind of cold where you can’t get warm so you want to put your blanket in the dryer for half hour but you can’t open the damn door.

You feel grateful for any help you have, but you wish you didn’t need it in the first place.

No one tells you when you get sick that you will have days that don’t just test your pain levels or your patience, they will literally test your very will to get through the day.

[alancumminginmypants]

what it’s like for regular students:

what it’s like for spoonies:

[ibdsgotnothinonme]

Hahahahahah truth

[aestheticsandchai]

If I have one more person say that chronic illness isn’t an excuse for getting behind in school because I don’t look sick and I’ve been out enough already and should just get over it and stop exaggerating I’m gonna hit a bitch

[deeplifequotes]

I’ve never met a strong person with an easy past.

Unknown (via deeplifequotes)

[morethanjustatummyache]

Proud to say I survived high school with only one hospitalization!!

[lifeofacrohnie]

What I wish I could tell my immune system.

[sweet--potato]

happygoluckypug lmao this

[morethanjustatummyache]

I hope that today you have minimal pain, nice toilet paper, and few visits to the bathroom.

[morethanjustatummyache]

Celebrating and spreading awareness for IBD will always make me so happy because I owe so much to this disease.

[morethanjustatummyache]

So, it’s been an interesting week. I experienced severe pain all day on Tuesday and we called my doctor but she doesn’t understand this disease clearly because she told me that because my results from February were beautiful, there was no way anything could be wrong.

So I’m changing doctors. I never wanted to have her but after this situation with my real doctor, he hasn’t practiced in almost a year now. 

Other than that, it’s been a busy week and I’ve been eating gluten free and in general, I notice I’m not very bloated anymore, I don’t experience high amounts of pain after I eat, and I feel more energized. 

I only have two weeks of high school left, but really only 5 more days of school and it’s crazy to think I’m almost done.

[lifeaccordingtocrohns]

[tzillahshelor-deactivated201702]

What to do when someone you're friends with is chronically ill

If I had never gotten sick, I probably wouldn’t be as kind. If I had never gotten sick, I probably wouldn’t be as fucked up.

People who are chronically ill are very misunderstood. We’re seen as lazy, bad communicators, unstable, flaky, unreliable, etc.

And you know, we are these things. Because we experience excruciating pain and anguish every day. It’s been known to break people. 

If someone you love falls ill, try to understand that it is going to be difficult for the both of you. Try to understand that it’s really okay for you to get upset at them, and to feel annoyed. But please, please, if you can, try to understand what it’s like to be in their shoes. Please, please, if you can, try to research about their illness, what it does to them, how their life is going to be for the rest of their lives. Try to take this understanding and research, and cultivate a warm feeling of compassion for this person.

It is heartbreaking for me to see my chronically ill friends mistreated by loved ones. It is heartbreaking for me as a chronically ill person to be mistreated by my own loved ones.

We are all suffering. If you’re chronically ill and you’re being treated unkindly, please also try as best as you can to feel compassion for the people hurting you. It will help. 

We are all learning and doing the best we can. But. Sometimes, we need people to help us along. Sometimes, we need to have reality checks. Please take these words to heart, dear ones.

[fogblogger]

Having an autoimmune disorder is basically the human form of “I came here to have a good time and I honestly feel so attacked right now”

[morethanjustatummyache]

Hi. I know it’s been some time and I’m really sorry for that. It’s coming to the end of my senior year and so things are getting busy. So, things I should update you on:

I decided on college

I decided to go gluten free because my stomach has been bothering me and I thought it was working but it doesn’t appear to be really

I went to my friend’s prom on Friday and had a really great weekend filled with really good friends and memories

I have an AP exam this week and next week

I have no more full weeks of school left

I graduate May 28th but my last day of school is the 22nd.

I have a doctor’s appointment in early June and I guess I’ll see then if this gluten free thing is helping or not.

[coffiend-jackalope]

Just because you were able to “not let your illness stop you” doesn’t mean everyone else with an illness lets it stop them. Illnesses effect everyone differently. Everyone’s health before their illness was different. Not everyone is treated by the same way by the health care system. Not everyone has the same financial ability to get what they need medically. Don’t you tell anybody they are letting their illness stop them.