[poems-and-words]

[cementforbones-deactivated20171]

Chronic. a word that essentially means that your life is altered permanently. you can, of course, learn to manage living this new life but it’s not going to change. you are you. you can’t escape your own body. your bones can’t heal from this. they’ve been carved this way, without you knowing it. you must learn to accept this broken form. there’s no other option.

[thedamselinadressblog-blog]

Reblog if your immune system hates you too.

[sbstewartlaing-deactivated20180]

I like to think of my immune system as ‘overachieving’.

[spooniediaries-deactivated20171]

Mine seems to be very busy “we must attack her gut, and her joints, and her lymphatic system ALL THE TIME”

It’s like guys, actually I’ve had a cold for over a month now so if you could perhaps focus on that instead, rather than attacking ME

[nlolupus-blog]

[ormeart]

a small thing I did today

[dyssupport-deactivated20230307]

At least we have holiday movies to keep us company this time of year! #dyshumor

[perrfectly]

[nlolupus-blog]

It was a really, really long process. There were lots of doctors thinking I was "just depressed." I was told several times I was healthy, or that I had chronic fatigue syndrome. Blood markers started showing up, though, when doctors actually started taking some of my symptoms more seriously. At first I was diagnosed with undifferentiated connective tissue disorder, then lupus SLE after a big flare.

Anna Scanlon’s Lupus Story

[nlolupus-blog]

Restless legs syndrome and lupus are two distinctive conditions, but they actually may occur together in many cases. Read our infographic above to learn more!

[nlolupus-blog]

When Friends and Family Just Don’t Get it

One of the hardest things about living with lupus is when your close friends or family question whether or not you’re telling the truth or using lupus as an excuse. Sometimes, these queries can make you second-guess yourself and wonder whether or not you really are using lupus or pain as an excuse to get out of things you don’t particularly want to do.

Many times I have had this exact thing happen to me, which has genuinely made me wonder if I am doing the right thing or not by deciding to sit out on some occasions rather than pushing myself and going forward with what I was supposed to do that day.

One thing I have learned with lupus is that it is incredibly important to listen to my body and not allow other people’s opinions to influence how I feel. This is much easier said than done, clearly, as the opinions of others are often something we value highly.

However, you know yourself best and you know when it is worth pushing yourself and when you will suffer greatly for it.

Listening to your body is the biggest life lesson I could learn from having lupus SLE, which is probably something even people without lupus could benefit from!

- Anna

[spooniestrong]

When someone asks you if your chronic illness is gone yet:

[creativeronica]

How to respond when someone keeps telling you how to "cure" your uncurable illness...

[stacojiu]

Rest a little, you deserve it ♥

[nlolupus-blog]

Do you have any advice or insight for this lupus warrior? Join the discussion!

[magic-is-true]

[pineappleparasol]

[melodyhansen]