Disability is not a dirty word. Me calling myself disabled is not me insulting myself. I am using a word that describes the fact I am not able-bodied.
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Disability is not a dirty word. Me calling myself disabled is not me insulting myself. I am using a word that describes the fact I am not able-bodied.
hello, want to send love to people who cannot do even low effort/energy hobbies today.
Who spending today listening to podcast or scrolling tumblr or watching movies.
Who can't watch/listen to new media because too exhausting, instead need only simple or familiar stories.
Who doing these things sitting or lying in bed, in supportive/adaptive chairs, or supported by pillows and adaptive equipment to remain sitting.
And also to people who won't see this because scrolling tumblr too bright or too overstimulating or too exhausting. If you do see this on a different day, you're not forgotten.
It doesn't matter if other people see your hobbies as low effort, and can't imagine why you can't do them today. Your body is not theirs. You're the one living in it, you know what's achievable for you today.
Be kind to yourself, know that you're not alone.
when rest and "lazy days" stop being optional, you eventually stop enjoying it. i don't even know how to relax anymore. there's barely any relaxation in rest for me, it's all forced by a sick body.
Today I will list the things that cause a sudden flare up of my condition:
1. Nothing.
Like for real, it’s the butterfly effect, it’s ocean currents, it’s nothing or everything—but I can tell you what it’s not. It’s not my ‘fault’ or due to some laxity of routine. Chronic conditions gonna chronic.
Have one? You don’t have to play 20 questions with yours either. Stuff happens. ❤️
trying to figure out What is causing a flare up will have u behaving like a rogue detective on the brink of collapse connecting a bunch of red string to a cork board. What does it all mean . .... ........
It’s Ehlers-Danlos awareness month and I am very aware right now
Socializing while being chronically ill is fucking terrible. It hurts to cancel plans all the time bc you're sick or in pain or just have to prioritize resting instead of going out and hanging out with friends. You feel left out because you are left out. You miss out on the talks and moments and experiences with them and it alienates you from the friendships wether you like it or not.
But it's not your fault. Please remember it's never your fault. You're doing the best you can. It's okay.
Guy Who's Flaring Up voice: im :3 not flaring up :3 im fine :3 trust :3