#lupus flare

[interyuurei]

[chronically-bailey]

I just want to say that I am still disabled on the good days.

My disability isn't gauged on me using my cane or walker. Somedays I shower and brush my hair. Somedays I wear high heels and skirts. Somedays I can run and laugh and go out.

Those days, I'm not better or not disabled anymore.

Somedays I choose to wear a pajama shirt as a regular one or wear the same shirt or the third day in a row. Somedays I wear sneakers for the support and put my dry shampooed hair in the easiest style and spend the day on the couch.

Those days are still good days to me.

Somedays are so bad I don't leave my bed. Somedays I use my walker in the house and still can't go for long without needing to sit. Somedays I can barely speak because I'm in so much pain.

My disability isn't subject to how I feel on any given day. I will always have this.

Feeling better ≠ being better. Feeling better ≠ "fixed". Feeling better ≠ faking it.

I think that that's overlooked a lot

[snowe-zolynn-rogers]

When you’re in a major depressive episode with keep slipping and zoning out from ADHD and dissociating from anxiety at the same time while having an on and off flare for the last 3 days but you’re trying to be everything for everyone because everyone else’s needs come before your own mental health that has been ignored or pushed to the back burner for years anyway.

[overcomingoverthinking]

It’s Lupus awareness month!

Yesterday May 10th, was World Lupus Day.

For those of you who don’t know what Lupus is, lupus is an autoimmune disease where the immune system attacks its own organs and tissues.

It is hereditary and called the “women’s disease” because it is found in more woman than men but if found in men it’s considered rare and in some cases, much worse..

Lupus also causes other issues within the body, and can be considered a copy cat because of how alike these symptoms (fever, fatigue, joint pain, weight changes, swollen glands, skin issues such as butterfly rash etc.) can be found in other various diseases. Which is why I always encourage everyone especially women to speak to a rheumatologist to run the right tests if experiencing these symptoms because it can take years and several doctors to make a solid diagnosis if unsure.

It’s an everyday battle physically, mentally and emotionally. Some days I feel normal and other days I’m very fatigued and I’m physically down or mentally down. I’ve compared myself to feeling stiff like the tin man because my joints hurt on most days or like I was hit by a bus because my muscles are very sore on others. Sometimes I’ve even felt like a guinea pig because of so much medications I’ve had to take to control it. But over all stress management has become very important to me which has led me to making sure I have the right kind of people around me. I’ve even had to learn to change my diet. I try my best to take care of myself. I can tell you I am not the same person from when I first got diagnosed 6 years ago. I appreciate life so much more now and I know I’m not alone on my journey. I am a lupus warrior. I may have lupus but lupus doesn’t have me!

I only hope that this post is helpful and finds its way to those who needed it and can raise awareness to those who do not know.

[fuck-customers]

Y’all, I have never in my life wished for a lupus flare. But here we are. I don’t have all the symptoms for anything but a flare, but with the pandemic it’s a concern. But I am not sure how it could be anything else. I go out but I dont get near anyone and I literally touch nothing outside my home and car. I carry alcohol on me and soak my phone when I do get home. And the symptoms I do have don’t fit anything else. I’ll put the symptoms under a click more so you don’t have to see them unless you want to.

Ok I can’t figure out how to do that on mobile. So I’ll reblog or edit this later if y’all want to know.

-Rodney

[peterhollandkait]

Help needed!

Hey y’all! I have a friend with newly discovered celiac disease and potentially lupus and she is having trouble coming up with meals. She is also lactose intolerant. If anyone has any advice or any yummy meals and snacks that my dear friend brittany can have, please lmk!

[beautifullyautistic]

Well that was a shit show. Taken by ambulance to hospital because of debilitating migraine and left side weakness and dehydration. Arrive and all’s fine whatever until we see the actual doctor who questions me over and over until I literally cry, asks me if I want him to give me fluids to which I answer yes, says ok and orders a CT scan and leaves me in the waiting area for two hours. Says ct showed nothing, fair enough, and that I can have a spinal tap but the whole conversation he keeps saying if I think I need it and how there are so many sick people. I ask about the fluids he says it’s not going to help and besides there are sick people in the hospital and it’s going to take to long. So now I’m home, still in horrible pain, still severely dehydrated and now feeling like a waste of time. Thanks A and E.

[sailorheart]

Pushed myself too hard yesterday at work.

Had to train some new hires yesterday so the day consisted of walking back and forth across the store and I probably used the stairs every half hour. Today my entire body aches horribly, no matter what I do there is no relief. Can't sleep due to the pain. I'll be hiding in my room crying, don't mind me.