Kateryna Kon/Sciepro/Science Photo Library/Getty Images One of the world’s most common viral infections could underlie virtually every case of lupus, according to a recent study providing the…

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Kateryna Kon/Sciepro/Science Photo Library/Getty Images One of the world’s most common viral infections could underlie virtually every case of lupus, according to a recent study providing the…
When Friends and Family Just Don’t Get it
One of the hardest things about living with lupus is when your close friends or family question whether or not you’re telling the truth or using lupus as an excuse. Sometimes, these queries can make you second-guess yourself and wonder whether or not you really are using lupus or pain as an excuse to get out of things you don’t particularly want to do.
Many times I have had this exact thing happen to me, which has genuinely made me wonder if I am doing the right thing or not by deciding to sit out on some occasions rather than pushing myself and going forward with what I was supposed to do that day.
One thing I have learned with lupus is that it is incredibly important to listen to my body and not allow other people’s opinions to influence how I feel. This is much easier said than done, clearly, as the opinions of others are often something we value highly.
However, you know yourself best and you know when it is worth pushing yourself and when you will suffer greatly for it.
Listening to your body is the biggest life lesson I could learn from having lupus SLE, which is probably something even people without lupus could benefit from!
- Anna
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Okay, so I was really wondering how people dealt with the news that they may have lupus? And exactly what the doctor did to diagnose it, because I'm dealing with that now and I would really like to hear some other peoples stories about it.
Plaquenil
Its been 2 days since I started my plaquenil and I'm already questioning if it is going to work. I take it at night, within an hour each night so far; I get bad stomach cramps all evening and use the bathroom a lot (not trying to be gross, just honest) During the day I am ok but it is after I take the plaquenil. I guess time will tell, but if this reaction every night...I think time to find another medication! Anyone else experience this reaction? Normal? Not normal? I tend to be nauseated, some times bathroom issues with my Lupus to begin with but never every night.