Bleck!

32; F; Spoonie; Type 1 Diabetic, Fibro Warrior, Arthritis, degenerative disc disease, asthma, hearing impaired, possible Lupus and Meniere's disease; INFJ-A; "Failure is not an option." - Gene Kranz, Flight director for Gemini spacecraft. "I know what I bring to the table, so trust me when I say I'm not afraid to eat alone." "...Do not go gentle into that good night. Rage, rage against the dying of the light." - Dylan Thomas "We fight death for a living every single day. We can't let it know we're afraid of it, or it'll kick our ass." -J.D.

[take-a-dip-in-the-deadpool]

THIS!!

THIS IS AN AMAZING WAY TO THINK OF CHRONIC PAIN

[normal-with-adhd-is-a-joke]

I wanted to point out that Nurse Hadley, the woman in this video, is a hospice nurse. This is what people say to and about patients who don't have long left to live. The fear of addiction and dependence on pain medication is so strong that people deny their literally dying family members proper pain management. You're never going to please the "but what about addiction" people, ignore them and take the meds you need to function.

[liv-abetic]

My CGM alerting me that my blood sugar is rising.

[tomcruiseisshortandsoami]

Normalise comedians getting slapped when they joke about someone else’s diseases

[nonrecreational]

It's been rough. Winter is killing me. It always does. I just can't handle it. I stupidly put my notice in. I need the insurance, but eff me I guess? I have labs tomorrow and ordered information on the Avise test. Took a questionnaire and downloaded my symptoms chart. I also have a suspicion I have PBA. I have found myself hiding from the world to prevent others from seeing my outbursts.

[greenbeany]

Unfunny joke: "lol that cake will give you diabetes"

Funny joke: the diabetes healthcare that my hospital provides me

[therearenogirlsontheinternets]

The Onion knows the real score

[thessalian]

So, the Onion just gave up on satire altogether, is what we’re saying. Can’t say I blame it.

[trollingyoualways]

[ritualisticlamb]

My diabetes educator: “Your glucose levels are quite stable and low today, thats great!” 

Me who hasn’t eaten in 24 hours: “Haha yeah, it sure is”

[stormtroopersandsonics]

[therearenogirlsontheinternets]

The Onion knows the real score

[thessalian]

So, the Onion just gave up on satire altogether, is what we’re saying. Can’t say I blame it.

[raisesomehale]

C R I N G Y when I tell a medical professional “This is how I manage my T1D after a decade of finetuning a treatment regimen that works for me and my endocrinologist” and their response is somewhere along the lines of “Oof, well actually that’s not the official way to treat the X and Y problem and really honestly you should do it the Proper way, you know, The Way That You Have Already Proven Hasn’t Worked For You instead? Mmkay?” 

Because all I hear is “I trust the information from a single chapter I crammed in last minute the night before my medical exam 15 years ago above that of a patient’s real, every day experience. Also I’m an insufferable walnut.”

[chaotic-diabetic]

I’m so sorry that me mentioning the chronic condition that I have to live with everyday of my entire life is making you uncomfortable.

/s

[gahdamnpunk]

AND a race one since the most affected regions will be Africa, Asia and Oceania

[rock-fish-deactivated20201231]

as a friend pointed out, this headline makes it sound like supply will be dwindling. supply is fine. people will be *priced out*.

[trekmemes-deactivated20220205]

this is fucking MURDER.

insulin has been mass produced (from animal extracts) since -1923-. slow acting insulin has existed since the ‘50s, and ‘human’ genetically engineered insulin (derived from E. coli bacteria) has existed since 1982.

insulin treatment for diabetes is not some new or ‘unproven’ treatment. according to beyondtype1, “Humalog rapid-acting insulin came on to the market with a list price of $21 a vial in 1997.” adjusting for inflation, a vial these days should cost about $34 at most. instead, it costs over $300. there is NO reason for it to be steadily gaining in price to the point that diabetics are unable to afford their lifesaving medication, other than the sheer inhuman greed of pharmaceutical manufacturers.

let me reiterate: life without insulin (for Type 1 diabetics in particular) is a slow and painful death sentence. the ability to treat diabetes is a relatively modern phenomenon that has allowed countless people to live full, healthy lives. we should be expanding full covereage and access to insulin to diabetics the world over, and it should be FREE.

[plantyhamchuk]

Have y’all heard about Open Insulin Foundation?

“ We’re a team of biohackers with a variety of backgrounds, and skills, and relationships to insulin and diabetes from many cities and countries around the world, including Oakland, California; Baltimore, Maryland; Paraiba, Brazil; Dakar, Senegal; Yaounde, Cameroon; and Puerto Rico. We’re working to develop the first practical, small-scale, community-centered model for insulin production to make insulin accessible to all. We envision a world in which communities in need have local sources of safe, affordable, high-quality insulin, and where people living with diabetes and their communities can own and govern the organizations that produce the medicine they depend on to survive. 

What We Do

We are creating an open-source (freely available) model for insulin production that centers on sustainable, small-scale manufacturing and open-source alternatives to production. We are developing protocols to produce short-acting (lispro) and long-acting (glargine) insulin, working on developing open-hardware equivalents to traditional production equipment, are researching sustainable regulation pathways to bring our insulin to the public, and are building capacities for local, small-scale manufacturing.

How Do I Participate?

Our work would not be possible without the support of volunteers, interns, and community advisors. We welcome people of all backgrounds from all over the world to bring their enthusiasm, time, connections, and experiences, both in life and in work. Our volunteers promote us on social media, build equipment, run experiments, write reports and blog posts, facilitate meetings, connect with other organizations and groups, meet with experts in the field, run virtual events, and contribute in designing tools, resources, and methods of all sorts.

Potential Partners

We welcome collaboration with other groups that share our mission―community labs, academic institutions, patient advocacy groups, and NGOs.

Donate

Your donation will help us get closer to our goal. With a healthy financial situation, we can pay for lab supplies, acquire lab equipment, recruit scientists, and pay for consultation fees for regulation and manufacturing experts.”

Open Insulin Foundation

[baileybailybaylee-deactivated20]

Support open source technology

[medele]

I always choose silence because i’m too tired to explain what’s going on in my head.

[sacred-pro-fiction]

Blood Sugar: *goes over 300*

Me: aw man Im gonna get a bad grade in diabetes :(

[partying]

via @minnahigh

[miiriya]

[shareddreamingexperiment]

yea bud! i was on the grind nonstop for a few months until my body said haha watch THIS! and took me out of work for 3 weeks

[rhube]

Sometimes, it will take the rest of your life.

I can’t stress this enough. I wish I could get through to everyone I know. If you try to organise and be productive with every minute of your day, eventually, your body will pull the rug out from under you in a dramatic fashion, and you may end up being able to do very little at all, in a world that has no sympathy for people who need to rest.

So rest now. And work on making sure the people around you know it’s OK to rest.

And don’t feel guilty for resting. Practice telling yourself that rest - quality rest, where you’re not stressing about something you feel you ought to be doing - is actually a productive thing to do for your body.

You are an animal. You need to respect that animal’s needs. That includes laying about doing nothing as much as it does enrichment and running about.

Even your fucking computer gets overheated and slow if you don’t allow it to shut down and update sometimes (which is actually a lot of what sleep does for humans, btw). You eve notice how sometimes your browser just crashes sometimes because you have too many tabs open, or one of the tabs is causing the whole machine to run slowly?

So don’t tell yourself you want to work like a machine because guess what? Machines fucking fall over all the time if you overload them, try to do too many things at once, or don’t let them rest.

Rest knits up the ravelled edge of care.

[mercurialmedusienne]

If you don’t make time for your wellness, you will make time for your illness.