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@nonspeakingcommunity-blog
Aware of how mystifying his behaviour can appear, Naoki Higashida explains his non-verbal autism #FallDown7GetUp8
āHaving nothing to do in the present moment has the same impact on me as having nothing to do for the rest of eternity would,ā he writes. āAs long as Iām in motion, I feel as if I could become a valid member of society, like everybody else. That feeling, I think, brings solace. Maybe Iām mistaken, but I donāt think I am. By being active and in motion, my heart beats more strongly.ā
When audiences at disability conferences laugh instead of listening
A challenge to disability professionals and disabled presenters at conferences and panels: Please find a way to respond to the routine contempt that presenters with disabilities are treated with.
Iāve gone to a fair number of disability-related conferences in the past few years. At nearly every conference, I saw an audience laugh at a presenter/panelist with a developmental disability. This happened particularly often to presenters with intellectual disabilities, but I also saw it happen to autistic presenters and presenters with speech disabilities.Ā
This isnāt a matter of random jerk encounters; itās a major cultural problem. Even disability professionals who pride themselves on inclusivity and respect tend to behave this way.
This isnāt nice laughter. Itās not a response to something funny. Itās a response to presenters talking about what theyāre proud of, what theyāre good at, or talking about wanting control over their own lives. People also laugh similarly when parents and siblings talking about their disabled relative wanting autonomy or objecting to being treated like a little child. This happens all the time, and it needs to stop.
If youāre moderating a panel and the audience laughs at a panelist, hereās one method for shutting this down:
Be proactive about taking the panelist seriously:
Donāt look at the audience while theyāre laughing, and *especially* donāt laugh or smile yourself.
Wait for the audience to stop laughing.
Pause briefly before going on. This will make the laughter feel awkward.
Ask the panelist a question that makes it clear that you respect what theyāre saying.
You can explicitly ask āDid you mean that seriously?ā
You can also be a bit less direct, and say something like āThat sounds important. Can you say more?ā
You can also ask a follow-up question about the specific thing they were saying.Ā
I think that we all need to be proactive about changing this culture. (Including disabled presenters who get laughed at; we need to insist on being taken seriously. More on that in another post).
There are more ways to shut down disrespectful laughter and insist on respectful interactions than I know about. What are yours?
Something to ensure we keep in mind at the upcoming Motormorphosis Nonspeaking ConmUnity Conference during panel presentation.
"Could we serenade a humpback ourselves? Then imagine what could happened if the whales were to hear our song. We thought that would prove that when it comes to communication, anything is possible.ā
Official Full-Text Paper (PDF): Autism, inclusion, and communication in higher education.
Drs. Beth Brennan and Edlyn Penya released this full text paper via the Autism and Communication Center at #CalLutheran University last May.Ā This brief article features Samuel Cornelius Capozzi, a successful college #student who uses a #letterboard and #keyboard to #communicate. The article makes recommendations to student affairs professionals in higher education to create a more #inclusive #college culture for autistic students who communicate differently.
Communication is a fundamental human right. Everyone, regardless their ability to produce speech, deserves the right to access and use their communication method of choice in all settings. #type2text #S2C#spell2communicate #nonverbal?! #nonspeaking!! #CommunicationRights#NonSpeakingDoesNotEqualNonThinking #totallyverbal #letterboard#autism #autistic #speech #SpeechIsMotor #language #cognitive#LanguageIsCognitive #civilrights #ASHA #SLP #SLPeeps#SpeechLanguage
On February 11, 2017, a group of 9 nonspeaking autistics from Northern Virginia (a.k.a. "The Tribe") and 19 University of Virginia undergraduates gathered in...
On February 11, 2017, a group of 9 nonspeaking autistics from Northern Virginia (a.k.a. "The Tribe") and 19 University of Virginia undergraduates gathered in Falls Church to discuss and plan autism advocacy efforts. They were joined by the mayor of Herndon (Lisa Merkel), and two members of the Virginia House of Delegates (Jennifer Boysko and Patrick Hope). The two groups of students are participants in a year-long seminar called "The Science & Lived Experience of Autism." This video captures highlights from their third in-person meeting. To see a video from a previous meeting, visit vimeo.com/191409936. For more information about the collaboration, visit: news.virginia.edu/content/new-course-connects-students-autistic-tribe and wvtf.org/post/uva-students-learn-first-hand-how-people-autism-feel.
On Friday of this past week, Tracy was part of a keynote panel with Sue Rubin and Kelsey Krause at the 2017 Midwest Summer Institute: "Inclusion and Communication for All" at the University of...
From Wretches and Jabberers: Tracy was part of a keynote panel with Sue Rubin and Kelsey Krause at the 2017 Midwest Summer Institute: "Inclusion and Communication for All" at the University of Northern Iowa. The theme of their presentation was "Realizing Human Potential" through communication. A classroom teacher asked the panel what would be their best advice for her with her students. Tracy responded: "The best advice I have is to presume competence and look into the students' interests, ability and strengths and help students to feel inside the circle of life."
Advice from Philip! Faith, Hope, and Love with Autism
Great advice from Philip on interacting with someone who spells to communicate!
āPeople show they are really interested in me if they have patience to interact with me. They show patience by waiting for me to spell even if they lose time because of me. I like when people talk to me normally even if I donāt respond to them. I know what is being said and how to respond. I just need time to organize myself to type it out.ā
#ActuallyAutistic #S2C #autistic #autism #nonverbal?!?!? #nonspeaking! #totallyverbal!!! #letterboard #typers #FaithHopeLoveWithAutism #ShowPatience #NonSpeakingDoesNotEqualNonThinking
http://faithhopeloveautism.blogspot.com/2017/05/interacting-with-me.html?m=1
Latest entry from self-advocate and micro blogger Graciela L, who spells to communicate, on her forum āDare to Listen.ā G and her mother Susie partnered with Growing Kids Therapy Center in 2013 to build what is now the single largest community of spellers in the United States; in the city of #Atlanta #Georgia.
āPeople tell intelligence by politeness. Autism is not polite. I am intelligentā¦I am in here. I have always been in hereā¦Thank you for releasing my voice.ā ā Typed comments in the film, āUNLOCKEDā A Non-fiction Feature Film by Henry Corra (run time: 7:29, autocaptions)
First tumble with Tumblr!
āSpeech is 100% motor. Language is 100% cognitive. Nonspeaking does not equal Non-thinking.ā #ActuallyAutistic #SelfAdvocates #ElizabethVosseller