Real life medical update:
Top surgery went great! I’ve been healing for over two months. However a few things have happened on my medical journey:
I went as saw a specialist at Duke University and I now have an official diagnosis for hEDS. I have been in an awful flare for about a month. My body pain is through the roof, I haven’t been able to really keep any food in my body. I haven’t lost around 15 pounds. I had some testing done today and hope to get answers. Because I’ve been so sick money is once again very thin and not something I can bring in. I’m still waiting on a disability ruling.
I had my first PET scan since my cancer remission and everything looked pretty good with the exception of a 3mm nodule in the top lobe of my right lung. Right now it’s not calcified and something to keep an eye on.
I am sharing this again, mostly to cover my own persona monthly bills (car payment, therapy, credit card payments) and medical bills. (Yall these specialists are killing me)
5/30/25 Top surgery went great! I’ve been healing for over two months. However a few things have happen… Julia Crow needs your support for













