well fibro my algia™ @paingremlin - Tumblr Blog

trashfirefallon-deactivated2019

raise your hand if you’ve been personally victimized by your own gastrointestinal tract

watershalation-deactivated20191

Disabled and chronically ill Americans protesting the repeal of the affordable care act today outside senate majority leader Mitch McConnell’s office, June 22nd. The response? Capitol police violently moving them as always. Fuck the police the state and our president for their vicious ableism

spoonie-humour

When u have a flareup at night and ur just there muttering in a disgruntled fashion to your teddy bc nobody else is awake

#i mean i mutter to mallory but ya

cripkidclub

The Future Is Accessible

otipemisiwak-archive

When people assume that non-disabled people deserve a medal or special recognition for having normal relationships with disabled people it makes it extremely difficult for us to recognize unhealthy or exploitive relationships. In the past, I have allowed myself to be manipulated by other people because I believed that I was lucky simply to have friends. I have tolerated things that made me uncomfortable or unsafe because I didn’t believe I deserved better. I put my true friends through endless rounds of questioning, and having to prove to me that they really did like me, because deep down I didn’t believe they actually could. When you’re constantly told hanging out with you makes someone a saint, you begin to see yourself nothing more than a charity project. You begin to accept less than you deserve, because you live in a world that doesn’t see you as fully human or fully desirable for relationship.

Loving Me Does Not Make You A Saint - by Claiming Crip (via otipemisiwak)

mezzalunanova

Friendly Reminder

Existing as a disabled person in a capitalist society that values people by how well they sell their labor is totally punk

nihilisticspace

reblog if you're disabled

really need more disabled people 2 follow

lifewithafeedingtube

Correct response!

itrhymeswithalayne

people have no idea what its like to be 14 and have everyone telling you that you’re faking and pretending to be ill for attention or to skip art class and the doctor’s telling you you’re ‘just being a teenager’ when you actually had a serious kidney disease

if someone hadn’t eventually listened to me i would have died

Please, please support self-diagnosed teenagers, don’t pretend they’re not really disabled, don’t belittle or mock them, don’t exclude them from disabled spaces and for the love of god don’t pretend you know more about them than they do

token-white-friend

i am disabled to this day because when i was a teenage girl, my doctors didn’t take me seriously. when i said i was in extreme pain, they said i just wasn’t trying hard enough at physical therapy to repair a broken ankle. turns out they’d fucked up the surgery to fix it, and their neglect of my months of complaints meant it was damaged beyond repair. i still have mobility issues 8 years later, will have pain and require surgeries throughout my life and will, always, be disabled. because of them. because of the silencing of girls’ voices, in all spheres. because doctors do not value the voices of teenaged girls.

ofmovingparts

When I was twelve, the knee specialist I had finally convinced my mom to take me to (after years of begging) told me that my knees hurt because of my hips widening.

“No,” I said. “You don’t understand. I can’t walk when it happens, it hurts so bad. It’s been since I was a little kid.”

“It might twinge a bit, sure,” he told me. “Go to physical therapy for a few weeks.” I burst into tears.

My mom then refused to take me to physical therapy, because it was a long drive and the doctor said it wasn’t serious, so why should she bother? That was the start of her not listening to any complaint about my joints I ever had.

As it turns out, my knees were dislocating every couple of days. She and my doctors ignored and taught me to ignore sprains, fractures, cartilage tears, and dislocations until I moved out and learned that it wasn’t normal. I missed out on years of my life because of my doctor not only discounting the experience of a young girl, but fully blaming my pain on the fact of my being a young girl.

Listen to children when they tell you something is wrong with their bodies.

ryncoon

I had stomach pains for years as a kid. Almost daily. I was blamed as a faker.

I have Celiac.

gluttonys-blog

People know what the hell is going on with their own bodies. If they don’t think something is right fucking listen to them.

sorayachemaly

In their study, “The Girl Who Cried Pain: A Bias Against Women in the Treatment of Pain,” researchers Diane E. Hoffmann and Anita J. Tarzian documented the degree to which girl’s and women’s pain is routinely dismissed as the “not real,” “emotional,” response of “fragile” females. Not only are girls and women who experience pain less likely to be taken seriously when they describe it, but they are less likely to be treated by medical professionals.

disability-positivity

your mobility aids aren’t ugly and they don’t make your appearance any less attractive.

kipplekipple

I can’t believe this needs to be said, but…

- Withholding medication from a disabled person is not a joke, it’s not a punishment, it’s abuse.

- Withholding mobility equipment from a disabled person is not a joke, it’s not a punishment, it’s abuse.

- Withholding stim toys, comfort items or similar from a disabled person is not a joke, it’s not a punishment, it’s abuse.

- Stopping a disabled person from using harmless routines or coping mechanism is not a joke, it’s not a punishment, it’s abuse.

Stop.

so terrified so aware of the v real possibility that i won't be able to afford healthcare and therapy so aware that i might not be able to survive

#election 2016 #death mention #and ik i'm not even the most vulnerable

katyrecovering

Okay, I’m going to be dead fucking serious right now. You are sick enough. If your friend had the flu, would you tell them not to seek medical attention because they “didn’t have a high enough fever?” Because that is EXACTLY what you sound like when you refuse to get help because your weight isn’t “low” enough.

And I know. I know there is a voice in your head screaming that I am lying, but I promise that you are sick. You know why? Because healthy people do not function like this. Well people do not eat in such a dangerous way. This is not how non-disordered people function. And that fact ALONE is enough to make you deserving of treatment.