Keeping It Real

because someone has to

[stunningpicture]

So proud of my mother for doing her own research after I sent her that meme. A sign she hung in her car window.

[jettestblack-deactivated2017080]

Stay woke

[pual1010-deactivated20150723]

Is this true?

[mallninjacode-deactivated201812]

Not only is it true, it gets worse. The Susan G Komen For The Cure Foundation has actually successfully sued “competing” charities, because (paraphrasing) their “message or branding was infringing.”

You read that correctly: they took money that people had donated to cure cancer, and hired attorneys with it, to sue ANOTHER group of people trying to find a cure for cancer, who, in turn, had to us their donated money to hire their own legal counsel to defend themselves.

[redbloodedamerica]

[spacemohawks]

Yeah signal boost because not enough people know about this and seriously FUCK SUSAN G. KOMEN THEY ARE THE ACTUAL WORST

[beanmom]

Some links…

http://thinkbeforeyoupink.org/

http://www.somethingawful.com/feature-articles/for-the-cure/

http://thestir.cafemom.com/in_the_news/132728/susan_g_komen_foundation_has

(reblogged in honor of my mother, who died of breast cancer, 11/13/97)

[hello-missvixy-deactivated20160]

Reblog every time I see it. Roughly once a month.

[blockmind]

Also please never forget the pink fracking drill bit

that’s right fracking you know, a process using chemicals known to cause cancer that leech into the water supply

http://www.triplepundit.com/2014/10/baker-hughes-fights-breast-cancer-pink-fracking-drill-bits/

http://www.nbcnews.com/health/cancer/pink-drill-bits-bring-complaints-komen-tie-fracking-n223166

[alexithymia42]

It’s that time of year again, please remember Komen is the actual worst

[sofia-ciel]

Komen For The Cure is pretty much awful.

[imaginarycircus]

My mother died in 1996 from breast cancer. Most cancer charities are scams, in that people throw fancy parties and get rich off them and very little money goes into research or support for patients. Here are some vetted cancer charities that get good scores on Charity Navigator and pay medical expenses or fund research:

Breast Cancer Research Foundation

Cancer Research Institute

Dana-Farber Cancer Institute

63 four star rated cancer charities on charity navigator

[spacey-sandwich]

Signal boosting this

[emmalily]

Reblogging from myself because it’s October now

[way2icy-deactivated20211127]

[positivelyadhd]

[ID// A tweet by Javia @/jaealissa_ which reads "someone once told me something along the lines of "you've gotta do your best every day, but remember that your best is going to look different every day" and it's one of the most healing things I've heard to this day because it reminds me to not but too much pressure on myself. One day you're feeling great - motivated, you get like 20 things done. The next, you could be fighting through anxiety, health problems, just not feeling it, and you get two things done - or none. Both days, you did your best and that's really all that matters. //end ID]

[politijohn]

[spooniestrong]

This is exactly why insurance companies shouldn’t exist / be allowed to deny or approve anything. Doctors do that when they order treatment.

[taking-care-of-you]

[attainablerecovery]

[chatwiththeclouds]

Image ID: Tweet by @cherryrae "It's OK to be disabled. It's OK to be ill without chance of remission or cure. Physically or mentally. It's OK to have moments of weakness. It's OK to grieve. It's OK to rest. It's OK to do what's right for your body. It's OK to feel bad feelings. You're. Good. Enough <3"

[pandymonium001]

Cysts, yay

A couple of days ago, I was dancing around my living room like a fool (I got a house and now have space to do such things), and I suddenly felt this horrible, very different pain on my left ovary.  I thought, “Well, I just fucked something up.” I went to sleep hoping it would be better in the morning, and I realized the more I walked, the worse it got.  Then I was sitting in the floor with my 3 month old niece/godchild, and when I scooted, I felt another horrible pain on that same ovary.  When I got up, it felt much better but still had some minor pain.  It was weird as fuck.  In the meantime, I called my OBGYN, and they scheduled an ultrasound for today.  They found two 4.5cm cysts on my right ovary, and one 5cm one on my left one.  I thought there likely was one on my right ovary, but the pain from it wasn’t that bad.  So, I was surprised by the 2 cysts there, but not-so-much about the left one.  She called them “simple cysts” and said they were different than polycystic ones, but I don’t know what the difference is.  She told me to follow up in 6 weeks.  Yay?

[justcatposts]

“Please give me kisses and cuddles” 

via unknown

[exigencelost]

Spoonies do you ever get into that zone where you’ve been an exhausted trance for hours forcing yourself to stay awake, and now you can finally go to bed except you *cant* because your body doesn’t know how to turn off the “stay awake your life depends on it” switch?

[pandymonium001]

All the freaking time.

[attainablerecovery]

[pandymonium001]

Good time for an update

I know it’s been a while since I’ve posted about my health shit, but for the most part, I’ve pretty much just maintaining things.  I moved from Texas to Louisiana last year and have spent the time since then getting all of my doctors switched over.  Today was my first Endocrinologist appointment, and I was honestly really impressed.  She was about my age, maybe a little younger.  She really took her time and spent a good hour talking to me about everything, and I’ve only ever had that happen at the Mayo Clinic (that I can remember).  

While I was going over my PCOS symptoms and diagnosis with her, she said she wanted to be sure there wasn’t something more serious going on.  I ended up mentioning that I had gone to the Mayo Clinic years ago after my blood pressure was so insanely high, and she asked me if I had been tested for Cushing’s.  When I told her yes, she asked how they tested it.  When I told her I had done the 24 hour urine test, she said, “Good, so you should be good there then.”  I was impressed that she was even willing to consider it and knew enough about the testing to accurately rule it out.  

She wants to do the insulin resistance test (I think I’ve done this before), so that should be fun.  I also have to schedule blood work with that.  We also discussed possibly doing one of the PCOS drug trials, but she said I would likely have to stop taking my birth control, metformin, and spironolactone first.  And let’s be honest, that’s gonna be miserable.  I hope the pay-off is worth it.  Someone should be calling me about that in the next couple of days.

Overall, I’m pretty optimistic.  I don’t know how I lucked out with a good Endocrinologist on the first try.

Also, I somehow managed to lose 5 lbs.  I was worried I had gained 15 since I’ve been eating like shit, so woo for that?

Unrelated(ish), but I’ve been having the nausea/vomiting issue off and on that I was having a year or so ago, and I think it’s related to my morning meds (specifically, the metformin).  I think my dosage might be too high, so that may get adjusted if I can’t do the drug trials.

[illness-adnauseum]

When you're having a high pain day and people keep asking if you're okay

[pandymonium001]

This was me yesterday.  It was a bad, bad day, and I ended up drinking a lot so I wouldn’t have to feel it.  Today has been rough (I almost never drink), but hey...I don’t hurt like crazy.  So, win I guess? I definitely don’t plan on doing that again anytime soon.

[aureliism]

Source : selfcareisapriority

[positivity-in-pain]

[joshkerr]

Kenguru is a tiny electric hatchback for wheelchair users By Ellis Hamburger, theverge.com

Ken­gu­ru’s elec­tric car has no seats, and you drive it by putting your hands on motorcycle-style han­dle­bars. It’s built for wheel­chair users, who can roll right through the rear hatch of the car into the dri­ver’s area. The Austin-based…

[bunnika-deactivated20180603]

THIS IS SO COOL.

[disgustinghuman]

fucking amazing wow

[subjuggulation]

NO BUT DO YOU UNDERSTAND HOW GREAT THIS IS? DO YOU REALLY? PEOPLE IN WHEELCHAIRS CAN HAVE SMALL CARS NOW, THEY DON’T HAVE TO RELY ON EXPENSIVE LIFTS TO HELP GET THEM INTO CARS, THEY DON’T HAVE TO MODIFY THEIR CARS FOR THEIR NEEDS BECAUSE THE CAR IS ALREADY DESIGNED SPECIFICALLY FOR THEM. THIS IS ACTUALLY SO GREAT AND IT GIVES SO MANY PEOPLE THE OPPORTUNITY TO BE MORE INDEPENDENT AND IT MAKES ME SO HAPPY!

[igotpillstheyremultiplying]

Have I reblogged this already? Don’t care.

[lacependragon]

Also for those worried about prices: it’s about $25,000 when it comes out, so about the price of a mid-sized car. And there might be grants for it.

[spoonie-living]

Love & Discounts in the Time of Coronavirus

A guide to food, money, and kindness during Coronavirus 2020

Hey folks, one of our favorite blogs, How To Get On, has been doing a coronavirus resource series. Lily does amazing work, so you’re sure to find some useful things here.

[monsieurrobot]

[craftyrebelwhispers]

Attention!! If you get one of these txts, block the number and then delete the message. Do not click the link! My wife received this today, the sender even used her name. Pretty sad at a time like this people are trying to run scams and prey on vulnerability.