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@psoriasis-psucks
an impromptu shoutout to all my fellow gals with skin conditions, you are so beautiful and unique and wonderful!! in high school, my nickname was patches, and not in a cute way. but through years of practiced self love, Ive grown to love the skin Im in, and I hope you can too š
Vitiligo azusa and yuma are so cool! Um, can you make one with subaru having psoriasis? Cause that's what I have and I'm very ashamed about it.. I would like some positivity about it, please?
Itās ok to feel self conscious, but youāre still gorgeous no matter what others say
heres a good boy whos also self conscious but hes so good and beautiful???? i hope you like him!
Hereās to all the people
With scars from their skin condition
Who have ever been told not to wear shorts or T-shirts because they shouldĀ ācover it upā
Who feel like their body is gross or ugly
Who have been pointed at and called disgusting
Who always wear long clothes to cover up
Who get people without a skin condition telling them how to manage it
Who have 6843 different creams and lotions and have lost track of which ones theyāre supposed to be using right now.
Youāre all beautiful, youāre all fantastic and youāre all doing a great job
Still flabbergasted that today, as I was helping a customer, revealing her custom frame order, her friend who was next to her exclaims suddenly, āOMG whatās wrong with you hands?ā
You guys know I have psoriasis. Iāve got some flare ups on my knuckles right now. Most people donāt say anything. Some people may offer suggestions for skin care. Some think that my work is just rough on the hands (which it is but thatās besides the pointā¦).
But this woman, THIS WOMAN. This grown ass woman. Sheās not like fresh out of her teens, nope. Sheās older than me, and Iām in my 30s, and she legit says this to me.
So I say matter of factly, āI have psoriasis.ā
She just goes, āohā and gives me the judgey judging face.
The lady who is picking up her order tries to make it less awkward by bringing up that thereās lots of medications nowadays for psoriasis. Iām kind and friendly with her, even though Iām like āIāve been denied 4 major ones already lolā
Iām just still like, WTF! I was kinda halfway tempted to say that Iām really a zombie but donāt worry I I already went on my lunch breakā¦
Okay okay
I *may* be hopping on the vegetarian/vegan train - but hear me out: I suffer from psoriasis which has been unusually more problematic this summer than normal. I have spots on my arms, legs, back, stomach, and my scalp is next level annoying. There is NO CURE for this. Itās an autoimmune disease. The only thing that has ever really helps is using a tanning bed, which Iām not really interested in at this time. Dairy/meat are gerlnerally known to cause more flare ups (and if I canāt afford meat from animals that roam chemical and cage free, wtf would I support that?). Iām going to try to keep my gluten intake low (also known to cause flare ups). Just load the fuck on veggies, ect. Iām not swearing it off completely, if Iām at someoneās home and there is meat/cheese in something - I wonāt protest. Defintely goibg to be less meat/dairy at home. Idk, this may be a dumb idea but itās worth a shot. Iām so tired of cancelling daytime plans because I donāt want to sweat in a long sleeve tee in the sun - I am just too uncomfortable and it drains my confidence.
listen tf up if you have scalp psoriasisā get some oil (I used coconut) and warm it up. put that shit on your scalp and massage that shit in. leave it on overnight (wrap it tf up so you dont fuck up your pillowcases) or,preferably, longer. when you wake up hop in the shower and wash that shit out with a GENTLE paraben and sulfate free shampoo (tbh I unknowingly used a shampoo with sulfates so fuckkkk but??? theyāre bad) and then do an apple cider vinegar rinse and leave that shit in for upwards of two minutes.
now Iām not saying this is a fix all because Iāve done it all of once and obviously I still have my little dry patches that are flaking off but my itch has been tremendously reduced + I can see that my patches are already clearing up soā¦ try it
Health Skin Update:
Have not started Enbrel because insurance company has denied it on the basis of my psoriasis not being āsevere enoughā
I was denied Stelara to begin with and told to try Enbrel first, now they are denying Enbrel and saying try corticosteroids and phototherapy first.
1) I have been using corticosteroids for over 20 years. If itās not helping I need additional help.
2) I work full time with a very erratic schedule, when do I have time for phototherapy???
3) Have you seen my psoriasis???? How do you know itās not 'severe enoughā?????
Hey guys, I need your help. Any makeup gurus out there willing to help out an inexperienced 33 year old who doesnāt know jack shit about makeup and how to cover things like psoriasis? Iām having a bit of a breakout at the moment and donāt know what to do.
What products would you recommend? Any good YouTube videos I can watch? Any tips you can give me?
Anything youāve got is appreciated.
Psoriasis
Wanted to write this here because itās a bigger platform than my twitter.
I have very mild psoriasis. Usually it breaks out in late winter because I havenāt gotten enough sun and I just have to wait for summer to roll around.
But this Christmas my sister gave me Havtorn Saltbodyscrub from Matas and itās like some miracle cure for psoriasis.
I noticed my psoriasis spots disappeared after I started using it and ever since then, without fail, if I get new spots I just rub it on for a few days and it goes away.
I know how irritating psoriasis can be for some of you, so I thought Iād share.
As the weather warms up in the Northern Hemisphere and we get into shorts season, Iām trying to remind myself that I have just as much right to wear what I want and be outside as anyone else does. I have this reflexive, almost instinctual urge, built up from years of having psoriasis, that makes me want to cover up and hide when it gets sunny out, so I donāt have to expose this part of myself that makes me feel like an outsider. Paradoxically, beautiful weather can worsen my feelings of worthlessness andĀ āless-thanā-ness as I see everyone else running and swimming and existing outside and I feel like thatās something Iām not allowed to have, something that doesnāt belong to me. I need to constantly remind myself that no matter what my skin looks like, I am beautiful and I am human and wearing shorts and being outside belongs to me, too. My self-worth is not determined by my (totally socially-constructed) desirability. Of course, this is so easy to write and so hard to put into practice, especially as I quite Humira in January and my skin is starting to flare again. Self-love is an active, lifelong process, for sure. Reminds me of one of my favorite quotes (which of course applies to those who do not identify as female as well): You donāt owe prettiness to anyone. Not to your boyfriend/spouse/partner, not to your co-workers, especially not to random men on the street. You donāt owe it to your mother, you donāt owe it to your children, you donāt owe it to civilization in general. Prettiness is not a rent you pay for occupying a space marked āfemale.ā - Erin McKean
Hey, thanks for making a blog such as this! It's really great to see people doing it. Coming from someone who has had psoriasis since I was 3. I've experimented with things such as it inflaming from stress, from scented perfumes from alcohol levels in them or how it reacts to different oils. Sunny areas and also swimming in pools help as well as being just active. Also Gluten-free and not so much salty and starch diets as well help. Just wanted to maybe spread this bit of information!
Thank you! Yeah, Iām looking into trying a gluten-free diet ā Iāve always been kind of skeptical (or at least deeply in denial because of how much I love bread) but I have heard from people with both psoriasis and eczema that it does seem to help. I wish I could spend more time in the sun but I have a high skin cancer risk, so I have to be careful. There are so many factors that can affect it that it can be hard to figure out what my personal triggers are, but itās always good to hear about other peopleās experiences!!
Positivity for people with skin conditions is so so so so so so so SO SO SO IMPORTANT.
Quitting Humira
I started using Humira in March of 2015 and was on it through January of this year, when I stopped taking it. Even though my skin was completely clear on Humira (!!), the side effects, while nothing super serious, added up, and I didnāt want to be on it indefinitely. (Also, letās be honest, I really hate giving myself injections.) So far, Iām getting a few little spots but no flare-ups yet, although I think the medication is probably still not entirely cleared from my body. Iām scared that it will rear its head before summer but am really really hoping it stays like this! If it flares again soon, I might experiment with other solutions, like reducing how much dairy I eat. (Iām vegetarian and love cheese but am also lactose-intolerant... Womp womp.) Iām also considering trying Otezla, which my dermatologist said would be the next step, but I want to put off having to take another full-body super-intensive medication for as long as I can...
Have you ever taken a biologic medication and then stopped it? How did it go?
Hey, I think I have psoriasis, but my mother refuses to believe me and says I am overreacting. I've been diagnosed with seborrhea, but it's just getting really severe...I am so scared...what do I do?
Hi. I donāt know when you wrote this and maybe itās been a while, so Iām sorry for the slow response! Have you made any progress yet with your mother? If not, Iām sorry! It sounds like what youāre going through is incredibly frustrating. Since you said youāve been diagnosed with seborrhea, it sounds like you have a doctor you can go to. Any chance you can go back to them? Definitely make sure to keep track (like maybe even write down or draw a diagram) of what symptoms youāve been having and where it has spread or worsened. Psoriasis and seborrhea donāt always affect the same parts of the body, so this will help with a diagnosis. The doctor should take a skin sample too, to be sure -- did they do that before? If not, this is definitely worth asking about if youāre able to go back in.
If your mother is preventing you from going to the doctor in some way, thatās a tricky situation. Maybe sheāll respond better if you show youāve done research on it and have good reason to believe it might be psoriasis? I always find the National Psoriasis Foundationās website to be really helpful. They have a lot of resources which may be of use to you, like fact sheetsĀ you could provide to your mom. Under theĀ āresourcesā tab on the homepage, youāll also find links where you can talk to Patient Navigators or get one-on-one support from someone else with psoriasis. I havenāt personally used this tool before, but I imagine that the Patient Navigators, for instance, might have some other ideas on what you can do.
Is the condition mostly on your scalp or on the rest of the body -- or both? If itās on your scalp, itās definitely worth trying an over-the-counter shampoo if you havenāt yet. Most of them work with both psoriasis and seborrheic dermatitis. Iāve had success with a few, including Selsun Blue, Head & Shoulders, T-Gel, T-Sal, and Nizoral. Iāve also used shampoos made with tea tree oil (like this one).Last but not least: itās going to be okay! I know youāre going through a really stressful time right now (and I absolutely hate when people tell me stuff like this), but stress will likely worsen your skin since stress triggers psoriasis. Donāt forget to take care of yourself as much as you can while youāre trying to get to the bottom of this.
Hi i have Psoriasis ive been useing the creams and there not working its spreading so im thinking about trying one of the pill form medicines and was wondering if anybody has tried any of them
Disclaimer: You may know and have tried all of this stuff already, and if so, my apologies! I just thought Iād flesh out my response with some more general info about psoriasis treatments for anyone who is interested.
First, definitely discuss your concerns with your dermatologist, if you havenāt yet and if you have a dermatologist ā Iām assuming you do since youāre implying you have a prescription for creams. Psoriasis treatment often follows thisĀ ātreatment ladderā, where you try the least riskiest treatment first and then proceed through the nextĀ āstepsā if the psoriasis doesnāt improve. This generally means trying creams (AKA topical ointments, usually steroid creams) first, then ultraviolet light therapy, then systemic medications (which are given orally, in liquid, or via injection) Ā then biologics (which directly affect your immune system and include both pills and injections). In other words, itās possible that, depending on your particular situation, your doctor will try you on UV light treatment or something else first before they try you on biologics.
Iād also suggest exploring alternative treatments if you can ā although everyoneās psoriasis responds to different triggers and solutions, psoriasis is an autoimmune disease, meaning itās tied to the immune system and therefore the healthy functioning of your entire body. Taking care of your whole body as best you can (the usual: drinking plenty of water, eating your vegetables, getting enough sleep, and exercising) really can go a long way. I know thatās way easier to say than do, but it really is important. Itās also really important to moisturize with a good lotion as often as possible. I especially like Lush Dream Cream, Aveeno (or drugstore generic version), and Eucerin. See this old post for other natural remedies.
Also note that there may be ways of increasing the effectiveness of the prescription cream you use, too ā for instance, applying it before bed and wrapping your limbs, etc. in plastic wrap (AKA occlusion). Sounds weird and isnāt the most comfortable thing, but it can help with softening the plaques. Talk to your dermatologist before trying that as some creams are too strong for it and it can damage your skin.
I was on methotrexate (a pill medication) for a year about 8 years ago. It didnāt do a whole lot for me (and I used creams at the same time), but I was also in college and didnāt have a great lifestyle/wasnāt taking care of myself, so Iām sure that made quite a difference. One downside of methotrexate for many people is that you canāt drink alcohol when youāre on it. You also canāt take it if youāre pregnant. And, as with all the biologic medications, because it suppresses your immune system, you can be at increased risk for certain infections. Itās certainly worth a try because it definitely works for many people, but again, your dermatologist (and you!) may want to try other treatments first.
Other pill medications besides methotrexate include OtezlaĀ (which I donāt know much about but might try next time my skin really flares) and a couple other other systemic medications.
Best of luck!
Scientists don't know what causes rheumatoid arthritis, but many suspect that the microbiomeāthe bacteria that live in our gastrointestinal tractsāmay be to blame.
āDoctors arenāt entirely sure what triggers rheumatoid arthritis, a disease in which the body turns on itself to attack the joints, but an emerging body of research is focusing on a potential culprit: the bacteria that live in our intestines.
Several recent studies have found intriguing links between gut microbes, rheumatoid arthritis, and other diseases in which the bodyās immune system goes awry and attacks its own tissue. Ā
A study published in 2013 by Jose Scher, a rheumatologist at New York University, found that people with rheumatoid arthritis were much more likely to have a bug called Prevotella copri in their intestines than people that did not have the disease. In another study published in October, Scher found that patients with psoriatic arthritis, another kind of autoimmune joint disease, had significantly lower levels of other types of intestinal bacteria.ā
When u used to have psoriasis on 70% of your body but now u rock sleeveless clothes without even worrying about flares
