We will not trade disabled deaths for abled life. We will not allow disabled people to be disposable or the necessary collateral for the status quo. We will not look away from the mass illness and death that surrounds us or from a state machine that is more committed to churning out profit and privileged comfort with eugenic abandonment.
We know the state has failed us. We are currently witnessing the pandemic state-sanctioned violence of murder, eugenics, abuse and bone-chilling neglect in the face of mass suffering, illness and death. We are the richest nation in the world and we continue to choose greed and comfort over people and life. The state is driving the knife of suffering deeper into the gut of those who are already collapsed on the ground. The cruelty is sweeping and unapologetic.
This is no surprise to many of us on the far left. We have seen what the state is willing to do to its own people. We have never been able to rely on the state because we know the state does not care about us or our people. We have always had to organize outside of the state. This is nothing new. We have been here before and we are here again.
We know we need systemic change so that our peoples can literally survive this pandemic alive, but we also know that the kind of changes we need are most likely not coming. It is in the interest of those in power to keep people uncared for, sick and dependent on dwindling crumbs. This is one reason why ableism and poverty are so effective and why they are often inseparable. There are many things we cannot control or change right now, even as we desperately wish we could. As we fight for systemic changes, we can also try to change what is happening inside of our communities. We can learn from our mistakes and try to, at the very least, not make things worse than they already are.
Pitting the need for state and systemic change against individual and community change sets up a false binary. Both are necessary to get out of the pandemic mess we are in, just as both are necessary for any kind of liberation we are fighting for. We need to provide hazard pay to essential workers, end evictions, pay people to stay home, distribute free tests to everyone and we need everyone to wear masks, stop holding/attending in-person gatherings, stop unnecessary travel and get vaccinated and boosted. There are people on the left who are only talking about the need for a state response, while they themselves are still not vaccinated and boosted or continue to throw/attend in-person gatherings. If transformative justice teaches us anything, it is that systemic change alone is not enough. There are also many changes that must happen at the community and individual levels as well.
Vaccines have laid bare how deep ableism runs in our political movement culture. Disabled people have always known this, but I have been incredibly disappointed and angry at abled people, especially within our movements, who have reinforced abled supremacy via abled culture and entitlement and shirked their responsibility and missed opportunity after opportunity to challenge abled supremacy and act in solidarity with disabled people and communities.
Why have we allowed and contributed to the framing of vaccines as an individual choice instead of collective action, interdependence and solidarity with disabled people (especially those who are high risk), elders, children who cannot get vaccinated, the global south, essential workers and those who do not have the option to work from home? For those who are able to be vaccinated, getting vaccinated is not about personal choice. It is not like deciding to get an abortion; stop saying this. Not getting vaccinated is not âmy body, my choice,â it is more like drunk driving or exposing someone to secondhand smoke.
We should be talking about getting vaccinated and making it part of our political left culture. Not only posting about it on social media, though that is important, but more importantly, engaging in direct conversations with those in our lives. Not in an attempt to shame, because we know from transformative justice that shaming people is not useful, but in a way that invites conversation and sets clear consequences, not punishment.
Getting vaccinated and boosted should be framed as part of our political commitment to interdependence, disability justice and solidarity. I have been truly disheartened, though not surprised, by the amount of people in our movements who are able to get vaccinated, who have not done so and continue to eat out and go to gatherings, instead of staying home to protect others. As someone who has experienced tremendous abuse, including sexual abuse within the medical industrial complex, I do not support forced medical treatments of any kind, including vaccines. I want you to want to do the right thing. I want you to want to protect and care for other people. If you are able to get vaccinated, but are adamant that you do not wish to, then for our collective safety, isolate yourself, stay home and stay away from other people.
Abled culture teaches abled people to be entitled. You are entitled to never have to learn anything about disability and ableism. You are entitled to get to move through the world, and through our movements, with little-to-no understanding or political analysis about disability, even as you pontificate about every other system of oppression and violence. Abled culture in our movements mean that we will say, âwe must center those who are most impacted,â all day every day, but then not include disabled, especially those who are high risk, in the center during a global pandemic. Abled entitlement means that you will still continue to plan your vacation abroad, even amidst the Delta surge; you will still post pictures from your giant family holiday gathering amidst the Omicron surge.
You are not entitled to our deaths. You are not entitled to the deaths of our loved ones in the name of capital, privilege and ânormal.â You are not entitled to our silence about our pain and suffering and the wet tar grief that envelops us. You are not entitled to our fear and terror at the worsening conditions and chaos of this pandemic, wondering if we will ever be able to safely leave our homes again. Â Â



















