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Functional Seizures
Functional Seizures, also called non-epileptic or psychological non-epileptic, look like seizures. They have the same syptoms, but there is no abnormal electrical activity in the brain. The seizures are caused by pschological distress. I was diagnosed with non-epileptic seizures after having a video EEG. I knew the neurologist was misdiagnosing me because part of the scar tissue causing mine…
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DATING AND HAVING EPILEPSY
After losing a loved one that you were married to for 29 years, I can say growing up together because we got married when we were 19. High school sweethearts. He knew about my epilepsy, but it was under control for the first four years That we were married. Having complex partial petit mals weren’t the worst. You just don’t drive. Finding a doctor that knew what he was doing was great. We had to…
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"Samantha Rose Davis Act"
School Seizure First Aid https://www.ncleg.gov/Sessions/2023/Bills/House/PDF/H172v2.pdf?fbclid=IwAR0j6wgp-LKYdQJwoEPBIGEliIFJes0YjoCEdAWtpsHx5asOKoBWyq0W5ag A new act to present to the committee. Always passing in the House of Representatives, being “killed” in the Senate. Why? is the question I want to ask them. A Senator, I won’t give their name out, has a child with epilepsy! How hard is it…
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Peter Churchill, Author "Broadening My Horizons"
Peter Churchill talks about life in England with epilepsy and his book.
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Cathy Tart Living With Epilepsy While Young
How lives can be different with decisions that ARE LIFE CHANGING
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Toney Kincaid, Pres. Epilepsy Assocaition of NC
Toney talks about his life with epilepsy. Now fighting for schools to know seizure first aid act, “Sam Davis’s Law
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"Seize"ure The Day! YouTube Interview with Toney Kincaid, President of the Epilepsy Association of NC
“Seize”ure The Day! YouTube Interview with Toney Kincaid, President of the Epilepsy Association of NC
https://www.facebook.com/photo/?fbid=2617213345079850&set=gm.1069451187268169 you can go to the YouTube site and ask a question that we will see and answer early.
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Another Actor Dies of SUDEP
Another Actor Dies of SUDEP
People still don’t understand epilepsy. It can kill you, 1 out 1,000 people with epilepsy. Here is another actor that dies from Sudden Unexplained Death from Epilepsy from THE SUN. ACTRESS TRAGEDY Amii Lowndes death – Doctor Who actress, 29, died from undiagnosed epilepsy after seizure in parents’ garden Alice Peacock 21:17, 3 Apr 2021Updated: 0:35, 4 Apr 2021 DOCTOR Who actress Amii…
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Adults Understanding Epilepsy
For the first time in my life I had a few people turn their back on me when I told them about my epilepsy. On a trip with the school that my daughter goes to as a chaperone. I planned to go separately so I could have my own hotel room, and fly there so I wouldn’t have to ride the bus. The bus ride was ten hours long. I got a call though asking if I would share a room with someone. I said yes not…
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LIVING WITH EPILEPSY
DUKE UNIVERSITY NEUROLOGY SYMPOSIUM SCAN THE QR CODE FOR THE INFORMATION AND THE SCHEDULE FOR THE SYMPOSIUM: LIFE WITHOUT LIMITS It will be held Saturday November 13, 9am to 1pm. Click on the QR code with your cell phone to see where to register and see the schedule. Will be on Zoom or Webinar. Registering ahead of time will help with how to log on to Zoom or Webinar. Please join me and other…
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CHRISTMAS IS AROUND THE CORNER
CHRISTMAS IS AROUND THE CORNER
THANKING PEOPLE THAT HELP NONPROFITS LIKE THE EPILEPSY ASSOCIATION OF NC Thank you Sam’s Club for helping the Epilepsy Association of NC raise money to give bears to kids in the hospital with epilepsy. Also funding our box gifts filled with toys and other things needed daily. If you want to help just read below. Thank you all. **Exciting News** Epilepsy Association of NC has recently launched…
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Toney is a True Epilepsy Advocate
Toney is a True Epilepsy Advocate
by: Toney Kincaid I have chosen to share with you of my struggles and many hardships including decimations. But let me share a little history on my disease. Epilepsy was first written 4000 before the birth of Jesus Christ and our modern church. And had a stigma even in the early years the early years the God’s though seizures gave people super strengths knowing the future. Many preachers teach…
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North Carolina Seizure Safe Schools, Sam's Law
North Carolina Seizure Safe Schools, Sam’s Law
The Seizure Safe School Bill is stuck in the Senate, SB354. The House of Representatives passed the Bill, HB955. Senators need to open their eyes. If their child had epilepsy, wouldn’t they want teachers to know seizure first aid?
Today is the one year anniversary that Samantha Davis passed away. The Seizure Safe School Bill is named after her, Sam’s Law. https://www.highschoolot.com/u…
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SEIZURE SAFE SCHOOLS
The definition of seizure by the Mayo Clinic is a sudden, uncontrolled electrical disturbance in the brain. In 2017 the CDC says that in the US 3,000,000 adults and 470,000 children have epilepsy.
North Carolina has 15,200 cases of epilepsy in ages of infant – 17 years old. Seizures are broken down into many types and have separate names now depending on location of the brain effected and…
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MARCH 26
Not everyone knows that March 26 is EPILEPSY AWARENESS DAY.
Cassidy Morgan created PURPLE DAY in 2008. Cassidy has epilepsy and wanted people to be more informed about seizures. She wanted to get rid of the myths about epilepsy. The Epilepsy Association of Nova Scotia joined Cassidy to help her campaign.
In 2009, Purple Day was launched internationally! The Epilepsy Association of Nova Scotia…
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MY EPPILEPSY
I have left mesial temporal sclerosis due to a high fever when I was an infant. Having surgery to remove that area when I was twenty-five, I went seizure free for three years. The complex partial petit mal seizures returned. For years I tried multiple medications. Finally found a combination of medications that helped me be seizure free for seven years.
I was taking brand name…
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PECENTAGES
I was talking to someone about how many people in the United States alone have EPILEPSY, and he said something that I couldn’t believe anyone would ever say. I told him that three million people in the United States have epilepsy. His response was, “Oh that’s only one percent”. One percent sounds like a small number. Think about this though, one-third of people with epilepsy can not have it…
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