some quick notes from the dysautonomia international conference about this, some things here may have been incorrectly written down because there was so much (register to learn more and get these presentations in full)
between 10-50% (some studies say 30-50%, huge range) of people who get covid 19 will have PACS and/or chronic symptoms from covid-19. these are only estimates and many patients going on a year or more. these are chronic conditions without cures even from very mild covid-19 cases. the diagnosis of autonomic and autoimmune conditions took years prior to the pandemic and more accurate numbers will be a while
many people notice start of symptoms ~4 weeks after infection
there is autonomic involvement in most cases of PACS
other viral conditions are associated with developing autonomic dysfunction such as sars and mers. POTS often has a viral trigger regardless of what it is
covid 19 involves loss of brain matter
age range is all across the board
the most common autonomic diagnosis is POTS
other common diagnoses include orthostatic intolerance, gastrointestinal disturbance
even with extremely mild covid-19 infection, long term symptoms and chronic illness are common. and by long term, 6+ months. many people stop being able to work at all
brain fog and memory problems are huge, potentially related to the loss of brain matter
there is widespread tissue damage throughout the body from covid-19
there is no diagnostic criteria for PACS yet
statistics estimate there will be over 10 million people in the US with covid-19 related autonomic dysfunction
all doctors should get autonomic training
if you have dysautonomia and develop covid you will very likely get worse, they do not cancel out. get vaccinated
there is an autoimmune aspect to PACS as well as to POTS, still being worked out. covid-19 may cause an autoimmune storm so to speak
a diagnosis of POTS currently requires 6+ months of symptoms, so there will be many more diagnoses as time goes on
there are not enough doctors to care for this influx of autonomic patients
there was a ton of cool information and this is only a snippet. register for the free dysautonomia international virtual conference for the entire presentations
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