Spoonie Student

Ever heard "you're too young to be sick!"? Yeah, me too. I hope you find comfort in this community, knowing you are not alone!

[spoonie-students-unite]

I can't stand for very long. Today, I went grocery shopping with my mom. We paced Shop rite for maybe 2 hours? We got home. My feet feel like I'm running barefoot on rocks. My moms out on a hike right now that I really wanted to partake in, but I know my feet can't take it. My said to me "you hurt because you've been sitting in bed all day!" She hasn't been home to know where I've been spending my time. I told her I sit at the dining table. She told me that isn't any better. She recommended the couch. I said it's just as bad as the bed. "I don't know what to tell you". Yeah. You can't tell me anything. I ran out of my pain medications. I'm almost out of my other medications. No refills. But SHE makes my appointments. This guy has a wait list of more than 3 months. I hate my body. How can I handle a job if I can't stand? Ugh

[spoonie-students-unite]

Summer Break

I know this tumblr account is new and weird and I’m speaking to no followers, but here I am doing this anyway.

I’m on summer break. My days are filled with sleeping. If I get up to eat before dinner time it’s a miracle. My mom wants me to get a job. I’m trying. But honestly if they need me to work before noon, that will be a struggle.

I’m not being a lazy teenager. I ran out of my pain meds and have to wait until I can get another appointment before I can get more. My fingers are so swollen. The days are passing and I’m barely noticing. This is going to be a long summer.

My mom wants me to get into shape. She says I’ll feel better. That I’ll have more energy. But if I don’t have the energy to stand for too long, where do I pull the energy to do a workout video? Do I pull it out my butt? Do I throw all my spoons for the week at it and pray I can do another video in a few days? I’m so confused.

To all the spoonie high school students, good luck with your finals! I know it takes a lot of work to do something as simple as sit down and take a test, but I’m proud of you for trying, regardless of the result!