Owner of Chronic Illness Resource Library

See @chronicillnessresourcelibrary for posts (don't follow this blog, you'll miss out) | https://linktr.ee/chronicillnessresourcelibrary

[spoonieresources]

Hi!

If you're looking for resources on chronic illnesses and how to cope with them, visit @chronicillnessresourcelibrary. This blog will likely remain pretty empty; it's just the owner blog.

Asks are welcome on @chronicillnessresourcelibrary; You can suggest a topic or submit a resource (you are welcome to send in any links or materials you have; it doesn't have to be in any particular format).

🦋 Also posting daily on BlueSky as spoonieresources

📙 And weekly on Substack

You can support my efforts and help me pay for the subscriptions that keep this work going by tipping me via Ko-Fi

Please note: This blog is not run by a healthcare professional; I am just another chronically ill and disabled person who wants to help connect people in my community with resources. I do my best to make sure I am only sharing accurate information and trustworthy sources, backed by science wherever possible, but it is possible I have missed something or made a mistake. Please read the information shared on the blog skeptically and seek advice from a medical professional before changing your medications, starting to use a mobility aid, or making any major lifestyle changes.

📧 [email protected]

🌐 linktr.ee/chronicillnessresourcelibrary

Logo by NEYOVO

[chronicillnessresourcelibrary]

Chronic Illness News from the Past Week

📰 Good news for people suffering from chronic reflux and GERD – a new study is looking into how a probiotic may be a treatment option! "Early results have shown a reduction in Barrett's esophagus, and if cancer develops at all, it occurs much later than in models not treated with the probiotic."

📰 New findings show that once-weekly semaglutide "significantly improved health-related quality of life" for people with type 2 diabetes or chronic kidney disease. Semaglutide was already known to reduce the risk of major kidney disease events mortality. However, these new findings show an effect that goes being objective, clinical measures; patients report feeling a subjective improvement in their everyday lives.

📰 Good news for people with a high risk of developing rheumatoid arthritis; a one year course of abatacept was found to significantly delay the onset (up to 4 years).

📰 New research on gene expression and inflammatory bowel disease (IBD) has given scientists a more detailed picture of the genetics behind IBD, even revealing which specific cells and genes drive the disease. Their findings suggest that IBD develops due to a combination of immune system dysregulation and the gut lining to failing to repair itself properly.

📰 Women spend more time living with pain, depression, anxiety, headache disorders, and musculoskeletal conditions than men do.

📰 Methylphenidate-type psychostimulants may reduce cancer-related fatigue

[chronicillnessresourcelibrary]

Hey y'all,

As I mentioned last week, I'm expanding Chronic Illness Resource Library! I decided to start with adding BlueSky to the mix so if you know someone who doesn't do Tumblr or who is more active on BlueSky, the link is below:

Chronic Illness Resource Library (@spoonieresources.bsky.social)

Sharing fact sheets, how-to guides, online tools, worksheets, research, books, podcasts, and any other helpful info for people living with c

I'm also looking into SubStack for phase 2 so keep an eye out here for future announcements on that.

In the meantime, thank you to everyone who has provided input or sent encouragement! And I'd like to invite you to send me any feedback you have about CIRL (all feedback, positive or negative, is useful); asks and DMs are open or you can drop a comment on this post ✌️

[chronicillnessresourcelibrary]

Another little update...

I've launched a Ko-Fi page for CIRL so if you have a dollar to show your support for my efforts, you can drop it in the tip jar here 🙏. These tips will go towards paying for subscriptions and services that help me do this work.

Adding Substack to the mix is still on the cards but I plan on keeping all my posts there free-to-access — chronically ill people don't need any more pay-walls getting in between them and important information — so this Ko-Fi will likely continue to be the only way for people to support CIRL.

I hope it goes without saying but, just in case, there is absolutely no pressure to send a tip. As a chronically ill and disabled person, I know how tight money is for most of the community, so there is no expectation. But if you have a spare coin and you want to send it my way, it will be helpful and I will be very appreciative! ✌️

[spoonieresources]

I've jumped onto Substack as well!

Intro: What is CIRL and who's behind it?

The mission driving the Chronic Illness Resource Library and a little intro to the person behind the keyboard. (This isn't just for spoonies

[chronicillnessresourcelibrary]

Shout out to NEYOVO for creating CIRL's new logo!

They were great to work with, and listened to exactly what I wanted with the new branding! Go check out their website – www.neyovo.com – they do graphic design, copywriting, brand development, and SEO strategy!

[chronicillnessresourcelibrary]

Hey y'all,

As I mentioned last week, I'm expanding Chronic Illness Resource Library! I decided to start with adding BlueSky to the mix so if you know someone who doesn't do Tumblr or who is more active on BlueSky, the link is below:

Chronic Illness Resource Library (@spoonieresources.bsky.social)

Sharing fact sheets, how-to guides, online tools, worksheets, research, books, podcasts, and any other helpful info for people living with c

I'm also looking into SubStack for phase 2 so keep an eye out here for future announcements on that.

In the meantime, thank you to everyone who has provided input or sent encouragement! And I'd like to invite you to send me any feedback you have about CIRL (all feedback, positive or negative, is useful); asks and DMs are open or you can drop a comment on this post ✌️