#20.12.16

[chaossmagic]

liv bossing everyone around with a clipboard yelling that everything has to be perfect is my favourite thing

[leongoretzkanews]

December 20: Hamburger SV against FC Schalke 04

[the-blanket-underer]

Dziś jest ten dzień. Ten kiedy już wiem. Kiedy wiem, że nie potrzebuje nikogo. Że mogę spkojnie zatrzasnąć tę puszkę. Zamknąć szkatułkę na wszystkie zamki i zamknąć wszystkie klucze. To moje życie. I mogę z nim zrobić co zechcę. Nikt mnie nie może zmusić bym kontynuowała i nikt nie może kazać mi zostać. Do nikogo nie muszę się przywiązywać i do nikogo nie muszę należeć. Nie muszę z nikim rozmawiać.

[charitabledirection]

Anne Twist helps child with rare condition get funds for treatment

December 20, 2016: Anne Twist, mum to Harry Styles, has a significant number of active followers on her social media accounts that share what she tweets, giving her a large social platform with significant reach. Anne has helped support individuals, many times seriously ill children, in just this way.  Recently, Anne has given her support by sharing the story of  a young 7 year old boy named Ethan Box who has a rare condition called Hypothalamic Hamartoma characterized by epileptic seizures among other symptoms.

It is crucial that Ethan gets the funds for the treatment he needs as this disorder has a high percentage of curability if treated in a timely manner. So getting the word out about Ethan’s justgiving page was essential. Unfortunately, the treatment that Ethan needs is not available nor is it covered by the NHS in the UK, leaving his family to raise the funds to take their son to the US to get treatment.  Timing for this treatment right now is crucial for the highest chance of success at this stage of Ethan’s age and development. Since his diagnosis in October 2014, Hypothalamic Harmartoma has caused Ethan to suffer daily with a variety of epileptic seizures, between 15-25 a day. Complicating his condition is a recent diagnosis of Autism, ADHD, and ODD; all linked to Hypothalamic Harmartoma. The frequency and severity of Ethan’s daily seizures make these much conditions worse. Below is a short video (credited to/shared from ITV London ) about Ethan’s daily battle with his condition:

Now that Ethan’s justgiving account has recieved the attention to raise the initial goal amount for his treatment abroad, there is still funds needed after his treatments with on-going follow up procedures and his trip to and from the US. These funds will hopefully be raised through a fundraiser concert called Smile4Nathan .

Nathan’s family have been touched by the support they have received. His mum, Sharon Box posted this message on Ethan’s justgiving page today expressing their thanks:

- @MrsAnneTwist helps child with rare condition get funds for treatment Anne Twist helps child with rare condition get funds for treatment December 20, 2016: Anne Twist, mum to Harry Styles, has a significant number of active followers on her social media accounts that share what she tweets, giving her a large social platform with significant reach.

[dailyblackburn]

tylerjblackburn: 🌹

[juliandraxlerfans]

Bundesliga match of VfL Wolfsburg against Borussia Mönchengladbach | 20.12.16

[juliandraxlerfans]

Bundesliga match of VfL Wolfsburg against Borussia Mönchengladbach | 20.12.16

[threegood-things]

20.12.16

1. I did some good hair this morning. 2. Took the boy and visited my Nan in hospital. She's doing really really well. 3. CALZONE for dinner. Always a winner.