I'm getting kinda annoyed with the BAFTAs drama ngl. I would really like my tags back. and also I'm scared to go in public but w/e
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I'm getting kinda annoyed with the BAFTAs drama ngl. I would really like my tags back. and also I'm scared to go in public but w/e
Tic in public!!! Tic loudly!!! Tic expressively!!! Take up space!!! Scream at the top of your fucking lungs!!! Be free!!!
sometimes I feel like I don't fit in with other people with tourettes because my symptoms are so mild and well controlled. I'm on an antipsychotic that leaves me with almost no remaining tics and I just don't see many people with mild or well controlled tourettes talking about their experiences. I feel like I'm barely affected by my tourettes because only my neck tics are painful and I don't have horrific tic attacks and all of my self injuring tics are gone. I know, logically, that most people with tourettes look like me. I know that most people with tourettes have relatively mild symptoms but at the same time I feel out of place and like I'm intruding on tourettes discussion by talking about my experiences because my tics are so comparatively mild.
but I don't want to just not talk about it either. I've carried a lot of shame and embarrassment about my tourettes. I was one of the unlucky ducks that developed tourettes when everyone was talking about "tiktok tics" and while I was lucky enough to have a psychiatrist who believed me but the media reaction to people developing tics at the time drove me to be silent about them. I have a close friend with much more severe tics (not from tourettes) and I'm afraid they will think I'm trying to copy them because they had that happen before. I am afraid people will think I'm faking this for attention because my tics are so mild. I have spent so long bottling this up and I want a space to talk about it.
my tics, however few, are embarrassing and painful but I still have a hard time believing I deserve space to talk about them.
if you enjoyed my rant/awareness post for tourettes i made a sideblog about it, follow if you’re interested :))
@ticcticcticcattack
How do you guys feel about tourettes tiktok? A close friend of mine just got kicked out of a movie last night for ticcing and the ticsandroses people have been devastating to how people treat him lately
I've heard lots about the tics and roses situation and I heard that they have a tumblr as well which I will not link because of the harassment they are facing. Apparently tics and roses' family has confirmed that they do not have tourettes syndrome but does have juvenile Huntington's which as far as I know can cause devastating mental symptoms and delusions/psychosis early in life. I've heard that tics and roses has also been doxxed, threatened, had gore and others sent to family members, and other things and I think that despite what they have done they do not deserve to have such things done to their family.
There are lots of news articles being sent to me about the recent explosion of sudden onset verbal tics, especially in preteen girls, since the Coronavirus pandemic, and I think that it is probably influenced partially by stress and partially by something I've heard of called "behavioral contagion", in which people are peer-pressured by a small group into doing something that is considered odd by a large group (I think). I believe that plenty of these people are afflicted by sudden onset transient tics caused by anxiety but others may be attempting to mimic them.
I don't have tiktok, but I do have other social media with short video features and I have seen lots of people with verbal-only tics that are all popular memes and it does seem just a little suspicious to me, however I believe it is not my position as an internet microblogger to accuse 12 year old children of pretending to be disabled, because that's happened to me and I understand that if you are genuinely disabled it's really tough to deal with accusations like that (and also they really are mostly just kids. I understand that just because they are children it does not reduce the harm their actions may cause but lots of the comments and responses to these videos are so cruel and mean!).
Because of the "tiktok tourettes" outbreak as I've heard it been called lots of people who have diagnosed/legitimate tourettes are not being taken seriously. It's rather petty but on some discord servers I am in, voice chats are difficult because of people claiming only fakers can have words as tics. On the tourette syndrome reddit and other disability related forums, lots of users appear to have misconceptions like "to have tourettes, you only need motor tics/ if someone has a meme or anime phrase as a tic it's absolutely fake/ real people with tourettes can't have piercings or tattoos or dyed hair because they can't stay still" and other misconceptions. Even the "you have to have coprolalia to have tourettes" misconception appears to be coming back full swing.
I hope that after the pandemic has run its course for the most part, more people get vaccinated, and people can go back to school/work, that "tiktok tourettes" will go away. For all the people who do actually have sudden onset tics and are no longer being taken seriously in the midst of all this, I am very sorry for y'all.
Also sorry about the movie theater! I've been kicked out of theaters too it's absolutely the most embarrassing thing ever 😔
This morning, I whistled as I walked past someone who was with their dog. The dog reacted, and the owner thought I'd deliberately tried to call it over.
I explained that I had Tourette's and what that meant. The owner immediately told me not to make excuses and that I was clearly doing it on purpose.
They didn't consider for even a second that I could have been telling the truth. This is just one example of the ableism rampant throughout our society that people like me have to deal with on a daily basis.
For fuck's sake, believe us when we talk to you. Listen to us when we explain. And do not EVER tell us that our disabilities are excuses, that it's not a big deal or that we could stop it if we tried hard enough. If you genuinely believe that we could, you have a lot of self-education to do.
TOURETTEGANG??
Way off the usual topic, but...
I’ve just discovered Jade O’Connell and Tourettes Teen on Youtube.
Tell me honestly, do we like them? Are these good channels? I’m enjoying them, Jade O’Connell in particular. Her relationship with her mom is so sweet and wholesome and reminds me so much of my mom in my teen years when my tics were still LOUD AND BIG.
It’s almost like it’s TOO WHOLESOME-- THERE MUST BE EVIL LURKING.
As well, does anyone have any other Youtube channels they’d recommend for TS?
So... I have tics (Tourettes) and they have decided to pick up some lines from my fandoms...
"You hurt my Feelings" -Heathers the Musical
"Treasury or State?" -Hamilton the Musical
"Dancing phalanges" *jazz hands* -Bones
"You get a jello shot!" -Heathers the Musical
"Kiss Kiss Fall In Love!" -Ouran High School Host Club
I can't think of any more right now but there are down to be more to develop soon...