ACT NOW: Parliamentary Early Day Motion 1131 Put your MP to work by asking them to acknowledge and sign this motion calling for earlier recognition, diagnosis and needs-led interventions for the 1.5 million people in the UK affected by a hypermobility syndrome. 55 per cent of people take 10 years to reach a diagnosis impacting on not just physical health but on relationships, education and work opportunities and potentially increasing socio-economic dependency. Hypermobility syndromes can be rare, genetic, and potentially life-threatening and as those of us who have them know, these usually invisible illnesses have a broad range of systemic health impacts besides the obvious musculoskeletal symptoms. If (like the HMSA) you are concerned that there is a lack of specialist services in the UK and that services which are available are fragmented and difficult to access when needed as late or lack of diagnosis increases the burden on health and social services, formally ask your representative to sign, or explain why they will not act on this issue. To find and contact your Member of Parliament, use http://www.theyworkforyou.com/mp/ You can read the full text of the tabled motion here: http://www.parliament.uk/edm/2015-16/1131 #hmsaware #bendybasics #writetoyourmp #theyworkforyou #hypermobilitysyndromes #hmsacharity