#teamhmsa

[hmsacharity]

Thank you! 👍🌟 #Repost @gabriellekatherine_ with @repostapp ・・・ Here is a picture of my hand in honor of hypermobility syndromes awareness week. Ehlers-danlos syndrome is a hypermobility syndrome and an heritable connective tissue disorder. Other HCTDs and hypermobility syndromes include Osteogenesis Imperfecta, Marfan Syndrome, and Stickler Syndrome. All hypermobility syndromes are very complicated and need more awareness. #hmsaware #hmsafashion #hmsacharity #teamhmsa #ehlersdanlossyndrome #hypermobilitysyndrome #hdct #bendybasics #spoonie #butyoudontlooksick

[hmsacharity]

Sarah's next blog post is out on our website :) You can find it here: http://hypermobility.org/hmsaware-blogpost/ #hmsaware #bendybasics #mythbusting #blog #hmsa #hmsacharity #teamhmsa #hypermobilitysyndromes #hdct

[hmsacharity]

We are looking for volunteers, who are HMSA members, to assist us with our Information Standard review process. We need a range of people with differing levels of knowledge, from "no knowledge whatsoever" to "expert/professional". As a member you would be part of our Target Audience team and someone we rely on to provide feedback on information that is being prepared for publication. Please note that the information you will be asked to review will be confidential and copyright applies. If you are interested in joining our IS team and would like to know more, please contact [email protected] ☺ #hmsa #hmsaware #hmsacharity #getconnected #bendybasics #teamhmsa #charity #volunteer #informationstandard

[hmsacharity]

Everyone meet Shona! ☺ Shona (@shonalouiseblog ) has Marfan syndrome and kindly agreed to answer questions for our #HMSAware campaign. Find out what we asked her over on our Facebook page! #bendybasics #hmsaware #hmsa #hmsacharity #teamhmsa #MarfanMoment #marfansyndrome #hypermobilitysyndromes #hdct #spoonies

[hmsacharity]

This one could save a life. . Our friends in the states are celebrating #MarfanAwareness throughout February. . Marfan syndrome has to be ruled out during diagnosis of an HDCT as people with Marfan syndrome are particularly vulnerable to specific problems which need careful monitoring and intervention. To find out more visit our website http://www.hypermobility.org/.../the-clinic.../marfan-body-shape/ . #hmsaware #bendybasics #knowthesigns #hmsa #hmsacharity #teamhmsa #hypermobilitysyndromes #marfansyndrome #hdct #zebra #chronicillness

[hmsacharity]

'Too pretty to be in a wheelchair' - BBC News

Five disabled beauty writers explain what fashion and make-up mean to them,

and our very own @SarahWillow87 is among the contributors! You can read more about Sarah and her work with The Hypermobility Syndrome Association and Enhance The UK over on her blog at SarahInWonderland.