#bethytired

[bethybright]

Alicia: The first in a series

Alicia: The first in a series

Perhaps you’ve noticed a certain lack of words coming from these pages as of late. Maybe you haven’t and you’re also sick and tired of reading about how tired I am of being both sick and tired. I wouldn’t blame you. This not writing thing started as me telling myself I needed a little social media break over the holidays. I didn’t want to take pictures of my first family holiday in my new home –…

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[bethybright]

The things we don't talk about (Volume 2)

The things we don’t talk about (Volume 2)

Back in 2017, before my MS went into hyper-speed mode, I shared what I thought at the time was a very open and vulnerable post about some of the body image issues that re-emerged for me two years into my diagnosis. It wasn’t easy for me to hit “publish” on that post called “Broken eyes, broken brains and the things we don’t talk about.” I re-read it just now trying to get back to the headspace I…

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[bethybright]

I'm OK...No, really. I am

I’m OK…No, really. I am

So very many things have gotten in the way of me writing more regular posts it’s hard to decide where to start with listing them, but the change that seems to be the most obvious even to a dumb smart person like me is that I started back to work on January 4 and my dudes, if I may call you my dudes, holy shit. How did I forget what it’s like to work a 50+ hour a week corporate job in such a short…

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[bethybright]

Absurd or Sublime

For anyone with a command of basic math, you’ve probably already figured out that the image up there should be a number 9 and not a number 10. There’s a funny story about how this happened and by funny I mean not funny at all. I wrote the headline last night, when I intended to publish this post and I agonized over whether or not it was quite right but as it turns out, considering what happened,…

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[bethybright]

Wishing I had one of these

Wishing I had one of these

New hair…same old me.

I’ve said before that I’ve never run a marathon before. So when people tell me this experience is a marathon and not a sprint, I struggle to put that into any kind of relevant context for me, the non-runner, the committed non-athlete. I have friends who have run marathons so I have some idea of what’s involved merely by being an observer. But personal experience with…

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[bethybright]

When your switch won't flip

When your switch won’t flip

It’s still off. My switch. It hasn’t gone back on. It’s a real conundrum. First they tell me, rest! Your body is healing, silly person, you’ve just put your body through some real shit. It’s not gonna come back over night. I mean, your body wasn’t even that great going into this whole adventure, so what did you expect? Rest! Wait this out. Be kind to yourself. Take your time.

Or don’t. You…

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[bethybright]

Update from my bubble...Inside the mind of one house-bound MS'er

Update from my bubble…Inside the mind of one house-bound MS’er

Patient, calm, Zen-Beth has left the building, folks. She’s been replaced with Can-We-Get-This-Show-On-The-Road-Beth and you know that’s not a good thing. Not a good thing at all.

Let’s see…where have we been? IN MY GODDAMNED HOUSE, THAT’S WHERE WE’VE BEEN. The Lemtrada after-effects have not dispersed as quickly as I would prefer, meaning I’m still pretty much stumbling around like a crippled…

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[bethybright]

The unexpected upside of Lemtrada

The unexpected upside of Lemtrada

Reader. I cannot tell a lie. This image made me snort.

Before anyone gets too excited, I use that image above ironically at best. I mean, I’m not laying in bed moaning or weeping but I’m also not out skipping in the meadows with butterflies. First of all, it’s November in Western Pennsylvania. It’s goddamn cold out there, people. Or so I’ve been told.

Second, I never expected to be skipping…

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