#bladderremoval

[incurableoptimistest1994]

On my way to see the stoma nurse; got a team behind me! Mammy, my lead nurse Mari, and our amazing friend Mandy! Girl power all the way 💪🏻💖 #nervousaf #firstappointmentwiththestomanurse #bladderremoval #gotateambehindme #girlpoweralltheway💪 #mammymariandmandy #theawesomesauceteam (at Cardiff) https://www.instagram.com/p/BuqwLAdHqlQ/?utm_source=ig_tumblr_share&igshid=1k0uhslcvioh9

[incurableoptimistest1994]

So for all my beloved Insta friends who saw that yesterday’s urgent appointment at Special Cases Clinic with my neuro-renal-urologist didn’t go well, this is what’s up... My consultant has said I need my bladder removed entirely if I wish to survive. The operation is extremely high risk, even for someone without my extremely complicated health. There’s a high likelihood I could die on the operating table. But if I don’t do this, I either die if sepsis (a horrible death) or multiple organ failure caused by the sepsis (a really horrible death. I’d have about 3 years to live in a best case scenario, maybe 5 if I’m lucky. But I’d have a terrible quality of life... Guys, right now I’m leaning towards doing the operation. It has serious risks, but it also has massive benefits if it goes right. And if I don’t do it, I die for sure. But if I do go through with it, I still might die. As you can imagine, this is an extremely upsetting time for me and my loved ones rn. Please be kind. I have an urgent appointment at 10am tomorrow with my palliative care consultant and parents at @CityHospice to discuss everything. Sleep is unlikely to come tonight. #renalsepsissucks #badnews #palliativecarewarrior #devestated #bladderremoval https://www.instagram.com/p/BrRNEMBnzeg/?utm_source=ig_tumblr_share&igshid=nxmmgio73mc