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Hey guys!

I know it’s been a long time we posted on this. Life’s been pretty hard. We’re both busy with school and going to the hospital. Now we have some time during the pandemic. I hope everyone is safe and healthy ( as you can be ). I promise from now on I will post more even talk. I’m even going to make an email. Specially for you guys that’s alone in this time. Or just feel alone. We are here for you. We love all of you. If you want to talk about MHE or just any other illness We are here for you. Or if you just want to talk we are here for you! I’ll try and make the email against tomorrow because we do live in Belgium and the time difference is different. Currently it’s 00:30 here. I will even give Naziha the info of the emails so she can talk to you guys too. ( she lost her password and everything of this tumblr ).

I hope all of you are happy, healthy and painfree!

~~ Kaya 🖤

#hereditary multiple exostoses #hme #multiple exostoses #multiple hereditary exostoses #bumpy bones #chronicillness #chronicpain #mhe

One day it wouldn't hurt so much as it does now I promise -Naziha

#hereditary multiple exostoses #exostoses #bonetumors #multiple exostoses #chronic pain #chronic illness #multiple hereditary exostoses #HME #bumpy bones

Bumpy Bone Club

Link: https://www.etsy.com/listing/242831278/multiple-hereditary-exostoses-awareness?ref=pr_shop

You know a lot about what MHE means. You know what it's like to have bumpy bones. You know about going to the doctor and having X-rays. Maybe you've never had to have an operation, or maybe you've had lots. Maybe your arm is bumpy, maybe your leg...maybe both. Maybe you only have a few bumps, or maybe you have lots. Maybe you can run okay, but maybe you can't run at all and maybe you even have trouble walking sometimes. MHE affects different kids in different ways.

But did you know that MHE affects something besides your bones? It can also affect the way you feel. You might feel like you're the only one in the world who has bumpy bones. You may feel like none of the kids in your school will understand what MHE is. You might be embarrassed for people to see your bumps or scars. You might feel sad that you can't play sports or run as fast as other kids. You might feel like nobody understands you and that you're all alone... but you are not alone! There are kids from all over the world with MHE who face the same problems. They get sad, mad, happy, afraid... They've shared many of the same experiences you have. It can feel really great to make a new friend who understands just how you feel, so...come on in and join THE BUMPY BONE CLUB.

#wristbands #bumpy bones #multiple hereditary exostoses

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